In pain 247

merlin68

Have you got mobile joints? Took me years to get a diagnosis of ehlos danlos.

SPELLKASTER

Its my upper left arm means I cannot lay on my left when in bed, and its very painful in general.

With regards to my feet, its just sheer agony to walk.

My right ankle clicks and feels like its going to give way, whereas in my left foot, I have pins and needles sensation throughout my foot and is just very painful.

My bloods came back normal, but I can be referred to a rhuematologist for further tests which I am going to ask for.

NYM

racon wrote: »

Hey, the pain clinic that I have been to is fantastic. They have managed to get my constant pain totally under control with a mix of drugs.
Unfortunately as everyone knows, if you have care needs/mobility problems that are caused by pain and you then have medication that resolves that pain, then you are deemed by the DWP not to have any care/mobility problems. Your problems are under control.

How on earth that can be described as 'unfortunate' ?

merlin68

It was a reumatologist who diagnosed me. It took six months to get an appointment though. they can also diagnose fibro and rheumatoid arthiritis.
I had those pains in my feet and got told it was plantular fasculitis.
I also have pins and needles in my left arm but this is down to arthiritis apparently.

NYM

My g/mother has Reynauds. She couldn't hold anything, her fingers would go white, then blue and eventually, the skin on the tips of her fingers started to peel. Unfortunately, she also got it in her feet. (I always thought it only affected hands...)

She described it as pins and needles at first that increased to such a pain level that she felt like she was walking on glass

She'd had several blood tests that didn't indicate anything and was given naproxen (sp?) for the pain. Over the following few weeks, she started to hurt everywhere. My Mum insisted she went with her to an appointment and that they did a more detailed blood test. She was diagnosed with Rheumatoid Arthritis.

Such an evil disease...

SPELLKASTER

Thank you for the replies, I shall take on board and ask my gp a load of questions on monday.

Would I need a more comprehensive blood test other then the routine for full blood count etc etc!!

NYM

SPELLKASTER wrote: »

Thank you for the replies, I shall take on board and ask my gp a load of questions on monday.

Would I need a more comprehensive blood test other then the routine for full blood count etc etc!!

Yes, I would think so.

This site describes various blood tests and why they're needed.

http://www.nhs.uk/Conditions/Blood-tests/Pages/What-it-is-used-for.aspx


Keep a diary of every symptom you have and how it affects you.
Take it with you to your Doctors. Don't be fobbed off because s/he is busy !

racon

NYM wrote: »

How on earth that can be described as 'unfortunate' ?

Hey, it depends on your point of view.
If someone was to claim a disability/sickness benefit with genuine problems ie mobilising/caring due to pain, they would generally be awarded the benefit provided that the evidence was of good quality. If after seeing the pain clinic and with using the drugs prescribed the pain is reduced to a more manageable level, the question of being able to claim the same benefit will result in failure.
If the medication removes the pain, the benefit is removed as it is under control.
That is unfortunate for the claimant on one part in losing financial assistance, but fortunate on the other as the needs/mobility issues are removed giving the claimant a more comfortable life pain free.

racon

NYM wrote: »

She was diagnosed with Rheumatoid Arthritis.

Such an evil disease...

Hey, like your grandmother, most elderly people, especially women are prone to this - it is just one of those things that life throws at you for which you have to cope with - well that is what my late mother used to say!.

nannytone_2

racon wrote: »

Hey, it depends on your point of view.
If someone was to claim a disability/sickness benefit with genuine problems ie mobilising/caring due to pain, they would generally be awarded the benefit provided that the evidence was of good quality. If after seeing the pain clinic and with using the drugs prescribed the pain is reduced to a more manageable level, the question of being able to claim the same benefit will result in failure.
If the medication removes the pain, the benefit is removed as it is under control.
That is unfortunate for the claimant on one part in losing financial assistance, but fortunate on the other as the needs/mobility issues are removed giving the claimant a more comfortable life pain free.

the 'financial assistance' is awarded to help cover the cost mf the mobility/care needs.
so obviously if you no longer have the needs, you no longer require the assistance?
i get DLA for being blind. i use it to part fund my PA and to pay for her petrol/parking and any other expenses she has related to me.
if i could suddenly see, i wouldn't have these expenses and so wouldn't need the financial assistance!