Afraid of the future

grazzzz

princessdon wrote: »

I sympathise as I have no inner ear function and suffer nausea and dizziness but I work full time and have a pretty active life.

I qualify for ESA (don't claim) on a separate issue as it hits a descriptor yet the one that causes problems is my drop attacks and vomiting from ear related issues.

I find some alternative therapies help me, have you looked at this? I still take motilium and beta histine and anti dizzy tablets daily but life style changes really helped.

I have seen a professor of balance in Harley street I have chronic vestibular dysfunction due to a virus that disabled the inner ear function have been told peripheral vision physio is the only way to help my condition my brain fires recepteors to the non working ear but doesn't realise it doesn't decipher the messages my left ear and brain hasn't yet over compensated and they say my age is against me at 52 , some days are better than others however in the main I cannot function normally and suffer severe fatigue as the brain continues to try to communicate the the non working ear I sleep from between 12 to 15 hours a day. However I am told this is normal

princessdon

grazzzz wrote: »

I have seen a professor of balance in Harley street I have chronic vestibular dysfunction due to a virus that disabled the inner ear function have been told peripheral vision physio is the only way to help my condition my brain fires recepteors to the non working ear but doesn't realise it doesn't decipher the messages my left ear and brain hasn't yet over compensated and they say my age is against me at 52 , some days are better than others however in the main I cannot function normally and suffer severe fatigue as the brain continues to try to communicate the the non working ear I sleep from between 12 to 15 hours a day. However I am told this is normal

It's normal but you adapt. I attend a meniers group and many have zero bilateral function (both ears) yet we work and function.

have you considered support and asking for medication.

Your brain is easily trained to adapt and there are courses and therapy that many do to lessen (it won't go away) the symptoms.

At 52 you are far too young to give up on a quality of life without exploring other avenues.

Ps I still dive and regularly, life doesn't need to be over with treatment,

grazzzz

jacques_chirac wrote: »

You still need to speak to the DWP. The fact that you are in a debt management plan will help, but don't pay out anything until you are sure they are ok with it.

Yes, your son has his own life to live, but you looked after him for (at least!) 18 years, so now it is time for him to do his part.

He is off to work for his employers abroad so he won't be able to help me

grazzzz

princessdon wrote: »

It's normal but you adapt. I attend a meniers group and many have zero bilateral function (both ears) yet we work and function.

have you considered support and asking for medication.

Your brain is easily trained to adapt and there are courses and therapy that many do to lessen (it won't go away) the symptoms.

At 52 you are far too young to give up on a quality of life without exploring other avenues.

Ps I still dive and regularly, life doesn't need to be over with treatment,

I was advised by my ENT consultant that the virus had disabled the inner ear completely and that medication would not help I have been referred as a private patient to a professor of balance in London and extensive physio at the Wellington hospital however my private health care stopped so I am waiting for NHL treatment with the professor who does one day a week at the London hospital on the NHS however have been waiting a year now

jacques_chirac

grazzzz wrote: »

He is off to work for his employers abroad so he won't be able to help me

He is not leaving for a month - more than enough time to find you somewhere to live and get some support in place.

I am shocked he is not doing this for you without asking - that's what we do as we get older, help those who helped us for all those years. Does he realise how worried you are, has he even asked what your plans are once the house is sold?

princessdon

grazzzz wrote: »

I was advised by my ENT consultant that the virus had disabled the inner ear completely and that medication would not help I have been referred as a private patient to a professor of balance in London and extensive physio at the Wellington hospital however my private health care stopped so I am waiting for NHL treatment with the professor who does one day a week at the London hospital on the NHS however have been waiting a year now

Im lucky that I have private insurance and also a good local ENT with balance specialist,

But ....

Complimentary therapies helped more. cutting sodium from diet, increasing zinc and others helped far more.

5 years ago I was having drop attacks (would literaly drop down like a sack of potatoes) and now rarely suffer.

Ask your GP to prescribe anti sickness and ask for something to cope with dizziness.

you are FAR too young to give up your life without exploring other avenues.

I found Chinese medicine helped (but my inner ear loss is caused by a tumour) and I get cluster (AKA suicide headaches) but I'd rather have pain than feel drunk 24/7 and fall down in the street.

Please get more medical help and look to support groups as there are many with same issues who work full time and live a normal active life.

grazzzz

princessdon wrote: »

Im lucky that I have private insurance and also a good local ENT with balance specialist,

But ....

Complimentary therapies helped more. cutting sodium from diet, increasing zinc and others helped far more.

5 years ago I was having drop attacks (would literaly drop down like a sack of potatoes) and now rarely suffer.

Ask your GP to prescribe anti sickness and ask for something to cope with dizziness.

you are FAR too young to give up your life without exploring other avenues.

I found Chinese medicine helped (but my inner ear loss is caused by a tumour) and I get cluster (AKA suicide headaches) but I'd rather have pain than feel drunk 24/7 and fall down in the street.

Please get more medical help and look to support groups as there are many with same issues who work full time and live a normal active life.

I had anti dizziness tablets when I first had the condition these mad me worse not better and was prescribed by my GP when I saw my ENT consultant he said they were useless with my condition . So did the balance professor they have said physiotherapy is the only way forward for the brain to adjust through peripheral vision exercises

princessdon

grazzzz wrote: »

I had anti dizziness tablets when I first had the condition these mad me worse not better and was prescribed by my GP when I saw my ENT consultant he said they were useless with my condition . So did the balance professor they have said physiotherapy is the only way forward for the brain to adjust through peripheral vision exercises

Yet flying doesn't affect this?

What medication have you tried?

grazzzz

princessdon wrote: »

Yet flying doesn't affect this?

What medication have you tried?

Flying not flown for years , no idea what the medication was I took it back in 2010 before the found out what was wrong with me I have seen neurologists , cardio specialists ENT specialists and extensive physio sessions my private health bill was over 15 k when I finally gave up my private health I have had an ear op for a growth on my left ear also and the dreaded hot and cold water pumped in to the ears to stimulate the balance system to which I was constantly sick for the full 30 mins of the procedure

evenasus

princessdon wrote: »

You have an inner ear problem in one ear only, it really does not have to mean end of life as you know it.

What medication are you on, what have you tried?

You're correct there princessdon.

A virus destroyed my hearing completely in my right ear - well the ENT consultant 'thinks' it was a virus.
This was five years ago. And yes, it causes some problems but I'm a determined, strong willed person and will not let it get the better of me.

The most annoying things I find, are the constant wind noise in my ear. Balance.
Not being able to find the blessed phone when it rings and it's not on its cradle.
Hearing music as I used to.

Oh and if there are two or more people talking in a room, I can't hear the person talking to me.