Daydream thread... without the rose-tinted specs

Itismehonest

If I tell my medic friends I've read the gumph in a prescribed medicine they say "Nooooo. Don't ever do that. That gumph is just there to cover the backs of the pharmaceutical companies. If you feel worse then get further attention but never ever read things like the list of side effects".:rotfl:

ukmaggie45

Davesnave wrote: »

Errr, I said "doesn't think you have..."

Didn't say anything about trust.

Hmmm!

Davesnave wrote: »

I think the internet is great for looking up symptoms, or the implications of a known illness, and especially for gaining support from others, but many web sites/forums are not particularly good. Unskilled research can also lead people to put the willies up themselves unnecessarily.

As in everything, use with care, rather like you said.

Don't think I did say that, I assume all on this thread know that anyway. I guess I have a very jaundiced view of GPs after seeing for over 20 years now how useless most of them are to their ME patients. (both in person and online too) I've been very lucky in that at least my GPs listen to me, and are supportive. Which is why I'm scared at the prospect of moving to new ones. Who knows what they will be like! :eek::eek::eek:

But don't really have much choice, as I get older I'm more likely to need home visits. And OH is older than me so who knows how long he'll still be able to take me to GP visits as he does at the mo. I just hit 65 while on holiday, and a bloody miserable day it was too! We ended up celebrating (or should that be commiserating? ) the day after, when we sat up till around 3am watching Tom Petty's 30th anniversary gig on YouTube!

Across 2 days downed 2 bottles of Lidl Champagne, recommend it! Cheap and cheerful, but much better than you might expect for the price. Why pay more for expensive named stuff that doesn't actually do better in tastings?

Itismehonest

A Lidl of what you fancy does you good, eh, maggie :beer::D

alfie_1

i think ive been lucky with my GP.:D

i was with one from child to 10yrs ago [deceased] and then his partner till now. they have always acted very quickly getting appointments for further exploritries....
i saw him for something on the 3rd, had scans etc on 8th, operation on the 22nd. not bad in my books.

thats not to say ive met some monsters IN the hospitals... but nothing that wasnt resolved..;)

i moved out of thier catchment area but as long as i dont ask for a home visit i can stay with them.....suits me

alfie_1

Itismehonest wrote: »

A Lidl of what you fancy does you good, eh, maggie :beer::D

:rotfl::rotfl::rotfl: :T

Better_Days

ukmaggie45 wrote: »

I assume all on this thread know that anyway. I guess I have a very jaundiced view of GPs after seeing for over 20 years now how useless most of them are to their ME patients. (both in person and online too) I've been very lucky in that at least my GPs listen to me, and are supportive. Which is why I'm scared at the prospect of moving to new ones. Who knows what they will be like! :eek::eek::eek:

I know exactly what you mean ukmaggie45. I have learnt the hard way to be very careful about prescribed meds. It took me 5 years to get a diagnosis of ME. I only got that far because I researched my symptoms on the internet, asked to be referred to a specialist unit and then I had to wait 9 months to see a specialist consultant. Turns out I was lucky. When he retired in 2007 he wasn't replaced.

During those 5 years of declining health which started with a dose of flu from which I didn't recover fully and ended with being housebound and unable to work I was sent from pillar to post by a succession of healthcare 'professionals'. I was sent to the gym to exercise - the worst thing for people with ME. But the consultants didn't listen when I said it was making me worse. Oh, but exercise is good for you they insisted.

Throughout it was assumed that my ill health was psychological in origin and I was given 6 or 7 different mood altering medications. None worked, and some had significant and unpleasant side effects. Instead of trying to work out why I wasn't improving on the meds they just 'tried another one' until I had enough.

What made it worse was that when I requested a copy of my medical records I discovered my GP had asked the consultant to consider a diagnosis of ME (sadly she didn't tell me at the time) but they ignored this request. They discharged me more unwell than when they started.

One of the most unpleasant side effects was one that made me feel disassociated from my body. I remember sitting in the doctors surgery feeling that I didn't need to use the doors and I could walk through walls. I can understand how people think they can fly. At the same time it felt like I had bolts of energy flying out from the palms of my hands and from my feet. Another medication had very unpleasant withdrawal effects and it took me 9 months to get off it. The best meds I was given during this period had no effect at all, and the worst were difficult to withdraw from and had nasty side effects.

Between 2007 and 2011 I had a wonderful GP, but unfortunately she has moved on now, so it is just pot luck. Very few HCP's understand how severe ME can be and that when I say I must lie down, I am not throwing a hissy fit, but if I don't get to lie down I will become very poorly indeed.

There are attempts to change the culture in the NHS so that care is more patient led. If the doctors that I had caring for me early on had actually listened to what I was telling them, instead of assuming they knew it all, then the outcome for me may have been different.

Having said all of the above, the care I received earlier this year at the breast clinic was excellent, and they operated under a LA at my specific request so as to have as to ameliorate the impact of the anaesthetic on my ME.

Rummer

Good evening

I have had mixed experiences with medical staff, some have been amazing and have truly gone above and beyond to ensure I have received the care I need and others have been less than ideal. Guess it is the same as any profession.

We just had people out quoting for the work in our bathroom which made it all very real and exciting. I keep making squeeeeeeee noises when I think about having a real, shiny, grown up bathroom instead of our current mix and match monstrosity :j:j:j

Hubby also finally started to paint the nursery :j

Better_Days

Rummer wrote: »

We just had people out quoting for the work in our bathroom which made it all very real and exciting. I keep making squeeeeeeee noises when I think about having a real, shiny, grown up bathroom instead of our current mix and match monstrosity :j:j:j

Ohh, have you decided on a colour scheme for the bathroom? At our previous bungalow the bathroom was the last room to be done, and in retrospect I wished I had done it sooner. Really missing the power shower in this rental!!

r.a.i.n.b.o.w

I'm not happy with my tomatoes :mad:

Grew - on window sill & kitchen side, south facing - 6 types of tom: marmande, gardeners delight, sungold, yellow pear, tigerella, black russian. I have to hand-pollinate, which I do once a day when the plants are flowering.

Sun gold and marmande didn't produce one fruit. Yellow pear had blossom end rot. Gardeners Delight, Tigerella and Black russian all produced fruit, BUT all split and went very soft within a day or 2 of starting to ripen. Worst harvest yet!

Rummer

Better_Days wrote: »

Ohh, have you decided on a colour scheme for the bathroom? At our previous bungalow the bathroom was the last room to be done, and in retrospect I wished I had done it sooner. Really missing the power shower in this rental!!

The suite is white and victorian in style so we are going for medium/large matt white tiles from floor to ceiling with an strip of mixed silvery grey brick tiles from roof to the bath. Our floor is dark grey slate. I am also angling for a victorian style radiator After many many years of beige/brown I am so looking forward to a change.

Our thinking was to keep the tile work and suite simple so that we can change the towels and other bits and pieces to give us a bit of variety