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Struggling with Dad after his stroke- long post!

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Comments

  • sunnyone
    sunnyone Posts: 4,716 Forumite
    Tenth Anniversary 1,000 Posts Combo Breaker
    I had to stop reading at the begining of post 5 because it mentioned vascular dementia and I am now facing with my husband.

    My husband's stroke was three years ago now, he has had further TIA's since and one other suspected stroke.

    Has your dad seen a Neuropsychatrist? if not he needs to ASAP for comprehensive neuropsycholoical assessment, they are a rarety in the NHS but its really worth while seeing one as they are the only people who can help your dad cope with the mental after affects of his stroke, it sounds like he has the same speach problems as my husband, he can put together a sentance in his brain but he cant translate that into speach which leaves him very, very distressed (Aphasia) and he also sounds like he has PBA (pseudobulbar affect) which is treatable by CBT.

    I will add to this thread later but Im a bit upset atm because my husband has become distressed by seeing a RSPCA commercial on TV (part of his PBA)
  • MrsDrink
    MrsDrink Posts: 4,538 Forumite
    ((Sunnyone))
  • My dad also suffered like this and ended up with dementia (I don't mean to alarm you at all, not everyone who has a stroke gets dementia). I think you need to concentrate on your own health and your baby. This is what your dad would want if he was his usual self. It can take many months to recover and both you and your mum need some outside help. It would probably help for you to meet up with some people in the same situation as you so that you can share experiences and get advice. I do hope things improve and you can relax a bit and enjoy your baby.
  • heartbreak_star
    heartbreak_star Posts: 8,287 Forumite
    Part of the Furniture 1,000 Posts Combo Breaker Rampant Recycler
    sunnyone wrote: »
    I had to stop reading at the begining of post 5 because it mentioned vascular dementia and I am now facing with my husband.

    My husband's stroke was three years ago now, he has had further TIA's since and one other suspected stroke.

    Has your dad seen a Neuropsychatrist? if not he needs to ASAP for comprehensive neuropsycholoical assessment, they are a rarety in the NHS but its really worth while seeing one as they are the only people who can help your dad cope with the mental after affects of his stroke, it sounds like he has the same speach problems as my husband, he can put together a sentance in his brain but he cant translate that into speach which leaves him very, very distressed (Aphasia) and he also sounds like he has PBA (pseudobulbar affect) which is treatable by CBT.

    I will add to this thread later but Im a bit upset atm because my husband has become distressed by seeing a RSPCA commercial on TV (part of his PBA)

    That was my post, and I am sorry it caused you distress :(

    You make some very valid points re diagnosis though, my dad had a lot of speech problems and it made him sad.

    Lots of love to you and your husband.

    HBS x
    "I believe in ordinary acts of bravery, in the courage that drives one person to stand up for another."

    "It's easy to know what you're against, quite another to know what you're for."

    #Bremainer
  • Sezzagirl
    Sezzagirl Posts: 360 Forumite
    Oh Giraffodil, what an awful position you and your family are in

    Some of the advice you've been given on here is excellent and I'm sure will help you and your family

    Looking at your position from a slightly different angle, you appear to be feeling a bit isolated now you've left work. I wonder if you have an NCT group in your area or something similar that you could hook into. The NCT will often run Ante-Natel classes but even if you don't want to go to the classes, they often have coffee mornings or Bumps and Babes groups where you can meets up with other women and families who either are expecting or have small babies. If you're feeling poorly, there's usually someone who can give you a cup of tea and some sympathy!

    I think that with everything else going on in your life, you need to have support and something else to be involved in

    My NCT group was a big support when my boys were little and, now the oldest is just about to leave school, my best friend is still someone I met at a coffee morning!

    Good Luck and Every Best Wish
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