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PIP for Aspergers

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  • nannytone_2
    nannytone_2 Posts: 12,999 Forumite
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    i have mild asperger, but it doesnt form part of my DLA claim.
    i wasnt diagnosed intil i was in my 30's and i lmow aomee of the things i do and say, are thought of as odd by other people.
    the thing i find most difficult is interacting with people i dont know.

    but thats where my sight problems help... i have a PA because of this and i get her to make all my phone calls and ask for things in shops etc.

    i dont know how much of an issue it would be if i didnt have sight problems too, as im not always sure if its the fact that i cant see or the aspergers that makes me so uncomfortable.

    also, i dont know how much is aspergers and how much is just my personality.

    now im going to go into a long session of overthinking, to try and work it out lol
  • nannytone_2
    nannytone_2 Posts: 12,999 Forumite
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    before research was done, people that suffered from autistic dpectrum disorders were called '!!!!!!; and locked away.
    an ASD diagnosis doesnt mean someone isnt capable of living a full and 'normal' life.
    but it helps to explain why other people consider me to be 'odd' ( i prefer unique!)
    in fact its thought that most people sit on the spectrum somewhere, but for a few its a very debilitating condition rather than just a 'quirk'
  • seven-day-weekend
    seven-day-weekend Posts: 36,755 Forumite
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    edited 15 February 2013 at 10:38PM
    There has been a huge influx of people diagnosed with aspergers or autism in the last 20/30 years. Wonder why?

    Because it has only been recognised as a genuine autistic spectrum disorder in the last twenty years. I wish it had been known when my son was at school, he might have got the help he needed. He was just classed as 'odd', 'eccentric', a 'square peg' 'immature', 'lazy' etc, and because he is high-functioning, people did not realise how much support he needed. Even his girlfriend, who is only 25, was not diagnosed until she went to Uni (where she had to drop out because she couldn't cope socially).

    Roy Cropper in Coronation Street, is a good example of a high-functioning Aspie, imo.
    (AKA HRH_MUngo)
    Member #10 of £2 savers club
    Imagine someone holding forth on biology whose only knowledge of the subject is the Book of British Birds, and you have a rough idea of what it feels like to read Richard Dawkins on theology: Terry Eagleton
  • I guess it's one that is very subjective. I can be given virtually identical ed reports from often the same ed psych for 2 students. Educationally they are usually on par, elsewhere they are miles apart. Some cannot dress themselves fully (different or no socks, t shirt back to front, zip undone, hygiene prompts (I literally have to tell to blow noses). Others are in the main regular students. I can see same diagnosis leads to a differing amount of care for those affected.
  • I guess it's one that is very subjective. I can be given virtually identical ed reports from often the same ed psych for 2 students. Educationally they are usually on par, elsewhere they are miles apart. Some cannot dress themselves fully (different or no socks, t shirt back to front, zip undone, hygiene prompts (I literally have to tell to blow noses). Others are in the main regular students. I can see same diagnosis leads to a differing amount of care for those affected.

    My son is very intelligent and does well in his job at Morrisons, but still can't tie a tie, find his way round a strange place and could not tie laces until he went to Secondary School. However, he will hold conversations about Shakespeare, or Stephen Hawking, or string theory and baffle me. Aspies are literally wired differently. They see the world differently to other people.
    (AKA HRH_MUngo)
    Member #10 of £2 savers club
    Imagine someone holding forth on biology whose only knowledge of the subject is the Book of British Birds, and you have a rough idea of what it feels like to read Richard Dawkins on theology: Terry Eagleton
  • nannytone_2
    nannytone_2 Posts: 12,999 Forumite
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    i know how i see the world .... i find it rather odd that other people dont see it the same way i do ....

    persona;;y i think its them that have the problem... my way of going about things makes total sense to me!
  • seven-day-weekend
    seven-day-weekend Posts: 36,755 Forumite
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    edited 15 February 2013 at 11:00PM
    nannytone wrote: »
    i know how i see the world .... i find it rather odd that other people dont see it the same way i do ....

    persona;;y i think its them that have the problem... my way of going about things makes total sense to me!

    Quite right too....that's why I said 'differently'. Not better, not worse, just different and often very interesting!
    (AKA HRH_MUngo)
    Member #10 of £2 savers club
    Imagine someone holding forth on biology whose only knowledge of the subject is the Book of British Birds, and you have a rough idea of what it feels like to read Richard Dawkins on theology: Terry Eagleton
  • Own_My_Own
    Own_My_Own Posts: 6,098 Forumite
    Xmas Saver!
    nannytone wrote: »
    i know how i see the world .... i find it rather odd that other people dont see it the same way i do ....

    persona;;y i think its them that have the problem... my way of going about things makes total sense to me!

    When I look at my son I sometimes wonder how the world would be if we all had it.

    The blank look on his face does make me feel sad, but he does make me laugh. He is so truthful it can be embarrassing. Like the time he told me he couldn't get on the bus because the fat lady was in his way. The fat lady did not look happy.

    He doesn't understand sayings, and to be quite truthful, I don't know why we use them. Anybody with any sense would actually pull their socks up when told to, wouldn't they.
  • nannytone_2
    nannytone_2 Posts: 12,999 Forumite
    Part of the Furniture 10,000 Posts Name Dropper Combo Breaker
    i have to say that no ones ever called me boring!
    i find the obsessive side of things rather hard to cope with at times. the older i get, the more 'havits; i pick up. like doing things in a certain order and at a certain time .
    it can really throw me if i cant do things i 'should' be doing for any reason.
    my father in law has been in hospital for the past 3 weeks, and now part of my routine is going to see him 3 times a week, on the same days and at the same times ....
    but this leaves me short of time to do certain other things that ive devided somewhere along the line that i 'should' be doing.
    it can be veru restricting and i cant force myself to change my routine... but it makes me very unsettled and irritable and even feeling guilty.

    thanl god i havent found a habit for drinking or anything else thats too bad for me.

    im thinking about it now .....
    eating is a big thing with me.
    i HAVE to eat at the same times everyday. and i eat the same thing every day for months on end ( its beans on toast at the minute). then i change to something else and eat that everyday for months.
    i can see that this isnt normal behaviour, but i cant stop myself.
    the mind is a weird thing indeed
  • seven-day-weekend
    seven-day-weekend Posts: 36,755 Forumite
    Part of the Furniture 10,000 Posts Name Dropper Photogenic
    edited 15 February 2013 at 11:25PM
    My son is very truthful too, although as he has got older he has realised that there are different ways of telling the truth. I am like this too.

    He doesn't seem to feel the cold and wears the same clothes whatever the weather.

    He does not like changes, even in the house, when he lived with us he was always unsettled if we changed the furniture or changed it round. I remember once when we removed some moss from the kitchen roof, it unsettled him for days.

    He can talk in endless monologues about something that interests him (sometimes it is interesting, but usually it's about something no-one else has the slightest bit of interest in), and cannot read the bored, glazed expression or the body language that says the other person has had enough. If they try to change the subject he will just talk louder. :) Again though, as he has got older he can accept (but not understand) that other people may not find the strategical moves of a Warhammer army as fascinating as he does and will eventually give up trying to convert you to the joys of model armies. (This passion for geeky hobbies, coupled with the monologue, is symptomatic of AS - again, look at Roy Cropper with his steam trains).

    But the condition also usually brings truthful, trustworthy people who just say it as it is because they don't know any other way to say it - what you see is what you get, you won't get a two-faced Aspie. And the single-minded passion for geeky hobbies has its upside too - look where Bill Gates' passion for computers got him :)

    Anyway, I've rambled, (I can do a monologue too and have sometimes wondered if I am on the AS), hope this helps people to understand.
    (AKA HRH_MUngo)
    Member #10 of £2 savers club
    Imagine someone holding forth on biology whose only knowledge of the subject is the Book of British Birds, and you have a rough idea of what it feels like to read Richard Dawkins on theology: Terry Eagleton
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