PIP for Aspergers

I heard it will be difficult to get PIP with "hidden disabilities" like Asperger's, is that true? like alot of people on DLA I'm very anxious about it and it causes depression/stress. My family and friends say to not worry about it until it happens. I just hope the people who assess have a understanding of what Asperger's is and someone who has it can look perfectly capable until you get to know them and the complex issues they face on a daily basics.
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  • McKneff
    McKneff Posts: 38,857 Forumite
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    Dla is for any care and mobility

    It really depends on the extent of the aspergers to be honest.

    My friend has a son who has Aspergers, he has been to college, he is now a qualifeidl hardscape landscape gardener, he can give you the latin and English name of any plant yu put in front of him.He does have hidden problems. He needs no care or mobility help but he has the support of a lot of family and friends so like I say, it depends.
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  • The lower rate of DLA is being abolished when PIP comes in. So presumably if someone only gets low rate DLA, they will not qualify for PIP.

    My son's girlfriend who has Aspergers' Syndrome gets low rate care and mobility DLA at the moment and is expecting to lose this once PIP comes in.

    The criteria for DLA and PIP is care and mobility needs, not the condition, so if the person with AS has enough care and/or mobility needs, then they will qualify.
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  • nannytone_2
    nannytone_2 Posts: 12,981 Forumite
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    iy isnt strictly true that people on low eate DLA wont get PIP.
    i know its changing to just 2 rates, but everyone will bve reasessed and so if their care needs are sufficient, they will be put on the standard level of PIP.

    it's all well and good publishing the descriptors and points for each category, but until we know how theyre going to apply them ... we're non wiser.

    we can try to work this out for ourselves, but none of us are objective when it comes to our own circumstances.##if they applied the same amount of points to me that my PA did ... i'd be on the higher rate of both compinants! and to be hones, i don't thibnbk i should be on the higher rate for care.

    and after a supersesion, i remain on low rate of both componants of DLA.

    we meed to wait and see how they award the points before we have any real understanding of how PIP will work
  • Gentile
    Gentile Posts: 246 Forumite
    Sadly Aspergers etc was very badly misused by a lot of people. I know personally quite a few people who did this to get more money. Obviously the media picked this up and I am not surprised that the government want to put a stop to this,.
  • Own_My_Own
    Own_My_Own Posts: 6,098 Forumite
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    edited 15 February 2013 at 11:26AM
    Gentile wrote: »
    Sadly Aspergers etc was very badly misused by a lot of people. I know personally quite a few people who did this to get more money. Obviously the media picked this up and I am not surprised that the government want to put a stop to this,.

    How did they do this ?

    My son has letters from doctors and specialists about his ASD. I don't think somebody can just say they have it and apply for DLA.


    You need to change your friends if you know quite a few people who pretend to have ASD who try to get DLA fraudulently.

    We don't know anyone else here with it.
  • Nada666
    Nada666 Posts: 5,004 Forumite
    The thought of having to live on £71.71 per week causes anyone anxiety and stress and depression. There is no particular reason why most aspies should receive a penny more than this minimum. If there are particular circumstances then they can be accommodated by the system. But it should not be an automatic right.
  • seven-day-weekend
    seven-day-weekend Posts: 36,755 Forumite
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    edited 15 February 2013 at 11:49AM
    OMO, I understand how difficult it can be for people with AS, even with a mild case like my son (who does not claim anything for it). He still needs help with some things that most 33-year-olds do not, although he works and has his own home. His girlfriend is further along the spectrum than him (i.e. worse), he has to help her with lots of things, even things like what to do at work if you have finished the job you were told to do and what to say to people in specific circumstances. That is why she has got her low rate DLA, she does need help that other people don't. She has a statement from an Ed Psych.

    If anyone has this condition other than mildly, they will need an awful lot of help.

    However, I do think it has been over-diagnosed, which does not help the genuine cases.

    I hope your son gets what he is entitled to.
    (AKA HRH_MUngo)
    Member #10 of £2 savers club
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  • duchy
    duchy Posts: 19,511 Forumite
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    OMO, I understand how difficult it can be for people with AS, even with a mild case like my son (who does not claim anything for it). He still needs help with some things that most 33-year-olds do not, although he works and has his own home. His girlfriend is further along the spectrum than him (i.e. worse), he has to help her with things, even things like what to do at work if you have finished the job you were told to do and what to say to people in specific circumstances. That is why she has got her low rate DLA, she does need help that other people don't. She hasa statement from an Ed Psych.

    If anyone has this condition other than mildly, they will need an awful lot of help.

    However, I do think it has been over-diagnosed, which does not help the genuine cases.

    I hope your son gets what he is entitled to.


    This

    My 21 son just about manages because I'm around and although I encourage him to be as independent as possible he simply wouldn't cope without my support unlike a non Asd young person. How that is going to translate with the new scheme is anyone's guess.
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  • ILW
    ILW Posts: 18,333 Forumite
    I have a close relation with Asbergers, but fail to see how it requires extra cash.
  • Own_My_Own
    Own_My_Own Posts: 6,098 Forumite
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    The problem with Aspergers it that people forget it is part of the autistic spectrum disorder. Spectrum being in this case the important word. Everyone with it is somewhere on the spectrum but in a different place.
    Just because the boy down your street with it can get on a bus does not mean the boy in next street can.

    The sooner people realise that, the better it will be for everyone who has it and they families.
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