When the disability team screw up....

LunaLady

You poor love. Hope there is light at the end of the tunnel soon.

jeanmd

(((hugs)))

I know this would only be a short term help, but have you thought about getting Community care Grant? You can get up to £500 which would help you to pay for someone short term so you can at least have a bath in peace.

This is a quote from the FAQ here http://www.irs-review.org.uk/faq/ccg.htm#how that I think would apply to you.

If someone is part of a family coping with exceptional pressures.
The key test is that help with the expenses would help both the applicant and another family member cope with very difficult situations.

For example, you and your family might be under exceptional pressures because of circumstances such as illness, disability, a disaster or poor living conditions. It might be a single, major pressure or the cumulative effect of a number of problems. The overall effect on the family rather than the type of problem is most important. You may be able to get a grant to pay to for an item or service that would ease the exceptional pressures, whatever they might be.

I think in your circumstances you should go for the full £500 to ease things for a few weeks until something else is hopefully sorted.
https://www.gov.uk/community-care-grant
If you phone your local benefits office they will give you the contact number for your local CCG office. They come through within a couple of weeks normally.

Don't word the application as wanting the money for respite as they don't pay out for it.

Hope this helps a little. J xx

NAR

Oh shegirl you are having a dreadful time currently. :wall:

I do hope you get a "break" soon, which will give you a bit more me time xx

shegirl

NAR wrote: »

Oh shegirl you are having a dreadful time currently. :wall:

I do hope you get a "break" soon, which will give you a bit more me time xx

I'll be ok,I hope! It's hard to explain how just having one evening to yourself or being able to wake up normally without having to be on your feet in seconds and straight into a routine that isn't of your choosing makes such a difference:rotfl:

The little things in life make such a difference!

I'll get something sorted :-s

tom9980

Can you tell us a bit more about the school shegirl? are they a normal school or a specialist school for disabled children? one of the biggest problems is a normal school are often forced to adapt to children and situations they are simply not equipped to deal with.

shegirl

tom9980 wrote: »

Can you tell us a bit more about the school shegirl? are they a normal school or a specialist school for disabled children? one of the biggest problems is a normal school are often forced to adapt to children and situations they are simply not equipped to deal with.

Specialist school.nobody in their right mind would put my darling boy in a normal school lol

nlj1520

Just caught up with this thread and wanted to send you a virtual hug.
I strongly suggest you contact the Challenging Behaviour Foundation if you haven't already done so. They will have specialist knowledge of your legal rights, another source of information and possibly help to get an advocate for your son would be your local Carers Branch.
A friend of mine who went through similar battles found a lot started to happen once her son had an advocate. It added real weight to her arguments as they were independent of all except the person they were advocating for.
I know from bitter experience that when caring for someone like your (and my) son energy and time are in scant supply, but if you ever have them, do follow up these contacts.
Wishing all the very, very best.

shegirl

nlj1520 wrote: »

Just caught up with this thread and wanted to send you a virtual hug.
I strongly suggest you contact the Challenging Behaviour Foundation if you haven't already done so. They will have specialist knowledge of your legal rights, another source of information and possibly help to get an advocate for your son would be your local Carers Branch.
A friend of mine who went through similar battles found a lot started to happen once her son had an advocate. It added real weight to her arguments as they were independent of all except the person they were advocating for.
I know from bitter experience that when caring for someone like your (and my) son energy and time are in scant supply, but if you ever have them, do follow up these contacts.
Wishing all the very, very best.

Yep,his psychologist suggested an advocate and I'll be making enquiries this week.

I keep meaning to contact the challenging behaviour association but haven't yet.It's on my to do list.

Thank you If I at least get some bits in progress I'll feel a bit better.More than anything at the moment it's fear that's the biggest drain on me

HB58

I sincerely hope that you find a way forward soon.

duchy

Bah stupid iPad I wrote a novel then lost it

Big hugs Sweetie....any news ?