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Violent special needs/autism teenager help!

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Comments

  • shegirl
    shegirl Posts: 10,107 Forumite
    I've got allsorts Daska.OT's down here take forever to do anything though and nobody considered SPD for a long time (probably because he gets stressy anyway and wasn't able to tell us).He's 13 now and we saw OT last year for an assessment,seen (a very yummy!)one this year when asking for help with soundproofing etc and that's it so far!!!

    I would say I wish ds could go to a gym (to let things out really-exercise and stretching calms him to an extent) but I'm kinda glad he can't in a way,don't fancy him getting stronger ;):rotfl:
    If women are birds and freedom is flight are trapped women Dodos?
  • daska
    daska Posts: 6,212 Forumite
    Part of the Furniture Combo Breaker
    When we saw the first NHS OT they had no impact equipment at all, we donated a spacehopper and had to take his trampette in to keep him focused during the assessments LOL. Poor lass, we did feel sorry for her, she was so obviously completely out of her depth.
    Eat food. Not too much. Mostly plants - Michael Pollan
    48 down, 22 to go
    Low carb, low oxalate Primal + dairy
    From size 24 to 16 and now stuck...
  • shegirl
    shegirl Posts: 10,107 Forumite
    Have you considered one of those hammocks or chairs that are suspended from either the ceiling or a pole?They've got to have some swing to them,surely?
    If women are birds and freedom is flight are trapped women Dodos?
  • daska
    daska Posts: 6,212 Forumite
    Part of the Furniture Combo Breaker
    Yep, problem is that we can't suspend anything - the joy of being in private rented! - and the ones on supports are either not stable enough to cope with him or well out of our price range. Thankfully the new OT is happy to write in support of him needing this type of equipment so we can hopefully apply for some funding to help :D (she's also happy to write to the housing dept in support of us needing somewhere to live which has sufficient space for equipment for him, which is even better :D)
    Eat food. Not too much. Mostly plants - Michael Pollan
    48 down, 22 to go
    Low carb, low oxalate Primal + dairy
    From size 24 to 16 and now stuck...
  • eskimo26
    eskimo26 Posts: 897 Forumite
    Part of the Furniture 500 Posts Name Dropper Combo Breaker
    Thought there would be some sensory issues there somewhere!

    Whether a sandtimer/clock etc would get chucked across the room is neither here nor there tbh it's not uncommon ;) Persistance is key lol It gets better eventually!
    With regard to sensory problems you can work on them and use things to get the sensory input they need.Ocupational therapists take an age to see,unfortunately.

    I'll actually be studying to be one from January 2013 but obviously will take 2/3 years and i'll have no specialisms. I'm hoping to be accepted by Cardiff university.

    I'm actually convinced she was diagnosed but so long ago they've forgotten. Because frankly i can see a lot of things i recognise in the checklist from birth so i'll be a bit shocked if it hasn't been picked up.
    Take a look at sites such as spacekraft for sensory bits,callers and you can get some 'games' and cards there to help work on understanding facial expressions and emotions.You can timers etc there too!

    Thanks i'll take a look.
    The social worker won't be able to deal with you on just your say so. Your Uncle needs to tell them to contact you. He can do this in writing if it's easier, you could even write the letter and get him to sign it.

    He sent an e-mail to say that i'm to be treated as if acting on his behalf in every way. She is ignoring me because she can, the last thing she wants is someone getting proper timelines in writing that they can then base a complaint on. She probably also dislikes me for involving the local councillor, her line manager and the manager of the whole department.

    But i've dealt with social workers for 2 years, since my Mum started fostering, she's going to find its not easy to brush me off but don't worry i'm very firm but always polite. :)

    Some form of parent group has been mentioned since i sent the last e-mail, to help the parents with training i believe.

    Will start putting pressure on her GP, i think it's a new one so may be more willing then the old.

    She doesn't mind being touched if anything she's got Hyposensitivity To Touch (Under-Responsive).

    Thanks again got some chasing to do.
  • daska
    daska Posts: 6,212 Forumite
    Part of the Furniture Combo Breaker
    In which case he just needs to learn one stock phrase: "i'm sorry, I'm not feeling well. Please speak with my niece as primary contact as I have requested." and keep repeating it like a broken record.

    Good luck with the university application.
    Eat food. Not too much. Mostly plants - Michael Pollan
    48 down, 22 to go
    Low carb, low oxalate Primal + dairy
    From size 24 to 16 and now stuck...
  • aneres
    aneres Posts: 432 Forumite
    Part of the Furniture Combo Breaker
    Eskimo I have read this thread the whole way through and your Uncle is very lucky to have such a supportive Nephew like you. I'm sure you have been a tower of strength to them.

    Look after yourself

    aneres
  • **Patty**
    **Patty** Posts: 1,385 Forumite
    Daska:

    http://www.rompa.com/swing-frame.html


    Try BDF Newlife for funding xx
    Autism Mum Survival Kit: Duct tape, Polyfilla, WD40, Batteries (lots of),various chargers, vats of coffee, bacon & wine. :)
  • daska
    daska Posts: 6,212 Forumite
    Part of the Furniture Combo Breaker
    **Patty** wrote: »
    Daska:

    http://www.rompa.com/swing-frame.html


    Try BDF Newlife for funding xx

    Thank you for the pointer on funding. Unfortunately they don't recommend that frame for a single point attachment. Funnily enough though I've just spotted a Little Tikes one that does have a disc swing and is only £120 from John Lewis - I may have to investigate further :D
    Eat food. Not too much. Mostly plants - Michael Pollan
    48 down, 22 to go
    Low carb, low oxalate Primal + dairy
    From size 24 to 16 and now stuck...
  • shegirl
    shegirl Posts: 10,107 Forumite
    daska wrote: »
    Thank you for the pointer on funding. Unfortunately they don't recommend that frame for a single point attachment. Funnily enough though I've just spotted a Little Tikes one that does have a disc swing and is only £120 from John Lewis - I may have to investigate further :D

    It's so much nicer when you can find cheaper alternatives!The prices of some things are ridiculous
    If women are birds and freedom is flight are trapped women Dodos?
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