Violent special needs/autism teenager help!

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  • verysillyguy06
    verysillyguy06 Posts: 37,692 Forumite
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    Eskimo,

    Shegirl is right as well as shown in her behaviour around 'people' 'things ' leaving....

    Apart from other things like: Is she suffering from physical pain?

    Toothache? Stomach ache because of her puberty? Headaches....

    Mental check list with children who cannot express it for themselves got to be:

    1. Physical problems
    2. Environmental changes....in school? At home? Parents less active, sister more busy with her own things...
    3. Teenagers are always hungry, that is part of it in many cases...
    You have the right to remain silent.Anything you do say will be misquoted and then used against you ;)

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  • shegirl
    shegirl Posts: 10,107 Forumite
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    Good points.

    There are many causes.DS had 'bubbles in belly' (wind lol) the other night and flipping heck it was like world war 3:rotfl:

    First thing I always assess is any changes in the home,largely because physical problems ds shows in a bizarre way not knowing he's showing anything.

    Does she have any sensory sensitivities that are known?

    Is the food thing about control?Would it hurt for her to have had food?

    Just a thought,but has there been an increase since your uncle had the stroke?Especially the trying to have things that aren't hers and the stress over people leaving?If so,there may be an incredible fear of loss there.
    Eskimo,

    Shegirl is right as well as shown in her behaviour around 'people' 'things ' leaving....

    Apart from other things like: Is she suffering from physical pain?

    Toothache? Stomach ache because of her puberty? Headaches....

    Mental check list with children who cannot express it for themselves got to be:

    1. Physical problems
    2. Environmental changes....in school? At home? Parents less active, sister more busy with her own things...
    3. Teenagers are always hungry, that is part of it in many cases...
    If women are birds and freedom is flight are trapped women Dodos?
  • shegirl
    shegirl Posts: 10,107 Forumite
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    No,it won't be seen as terrible or unrealistic,I'm not sure a 'medical history' is so much required.Just good knowledge of the situation and the extreme distress she is under.You'd be surprised at how many parents BEG for medication.It took a long time for me to allow ds to go on it as it was very much a last resort to help him through things.Remember these kids are on medication for their own sake.

    I'd be requesting an urgent referral to CAMHS.
    eskimo26 wrote: »
    I don't disagree with you i just don't want my Uncle going into Hospital long term or suddenly dying, despite his wife being his registered carer the reality is he does ALL the administrative stuff for the running of the family.

    If they where to lose him it would destroy the family.

    I'm not sure why her anxiety is so high, she just freaks out. My uncle and his wife are both gentle natured. They were extremely loving of her and may have spoilt her a bit i fear.

    The behaviorist has been working with them for 5 years though and school say she is fine, the house environment is a huge trigger for her. Having said that her Grandmother and the old carer who use to take her have both said they can't cope and that is outside the house.

    Won't they think we're terrible/unrealistic for asking for anti-psychotics when there is no medical history?
    If women are birds and freedom is flight are trapped women Dodos?
  • Savvy_Sue
    Savvy_Sue Posts: 46,050 Forumite
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    eskimo26 wrote: »
    violent grasping, her grip is insanely powerful, the last time i felt anything like that is when my Grandmother was delirious with Dementia.
    Interesting you should say that: I remember when DS1 was quite small we went on a tractor ride, and there was a child in the queue who was very repetitive. When it was time to get off this child grabbed my wrist to get down, pushing past us, and it really hurt me, despite the child being only appearing to be 7 or 8 - not a teenager! When I made a comment - because I was in pain from this child's action - I was shouted at and told the child was autistic. Not sure how I was supposed to know that, but hey ...

    Anyway, I'm guessing that this 'not knowing their own strength' is another area where those on the autistic spectrum just aren't aware.
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  • eskimo26
    eskimo26 Posts: 897 Forumite
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    edited 7 October 2012 at 1:39AM
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    shegirl wrote: »
    Good points.

    There are many causes.DS had 'bubbles in belly' (wind lol) the other night and flipping heck it was like world war 3:rotfl:

    First thing I always assess is any changes in the home,largely because physical problems ds shows in a bizarre way not knowing he's showing anything.

    Does she have any sensory sensitivities that are known?

    Is the food thing about control?Would it hurt for her to have had food?

    Just a thought,but has there been an increase since your uncle had the stroke?Especially the trying to have things that aren't hers and the stress over people leaving?If so,there may be an incredible fear of loss there.

    I'll have to ask tomorrow, i just woke them on the house phone as they weren't answering the mobile and i freaked. They are all asleep now.

    She has always been ravenous but quite small for her age, so it predates any changes. I would imagine she will eat as long as it is in front of her and won't stop. We didn't want to feed her to much or to close to bedtime because of digestion, tummy ache etc.

    Though tbh she never complains of it even when she eats like a horse.

    No sensory sensitivities.

    The school is newly started this semester but again her problems predate it and were just as severe. They are trying to move her into her own room on the advise of the professionals who were insistent [i don't disagree.] She still calls it the guest room, she has refused to move any of her things in and gets abusive if they try. But again fairly new change and problems predate it.

    There is a meeting between the school and behavioural nurse, what are they likely to discuss?

    We understand about 'new places' that is why we have told social services we will compromise and have a carer come in during flare up periods [waking and sleeping] instead of completely removing her to a respite centre.

    But if push comes to shove the options are wearing very very thin sadly. They have offered until her care needs meeting on the 25th, 2 nights of overnight respite which might have helped straight after her Core assessment 5 months ago but is out of the question now.

    Is it normal not to implement a care plan even after a Core Assessment? It was finished in March and they only followed some very basic areas of it, the easiest and the ones they were already doing.

    I notice 'create a referral for consideration of SEAT'. Does anyone know what that is?

    Another trigger is calling her by her name as she prefers to be known by an actors name, she is quite obsessive about this. She will say 'i am...' and 'am i...' or just correct you. If you call her by her given name she gets very angry. If you can't pronounce the name EXACTLY she will correct you, she is very very astute with repetition and listening and has no problems repeating foreign words perfectly first time.

    She will bring it up even if you refer to her as 'young lady' and she will bring it up out of the blue, it's one of her favourite questions. She accepts a few nicknames that are variations on this actors name, we couldn't pronounce it so we made nicknames.

    She will create less of a fuss with teenagers, very little bad behaviour, she emulates them and wants their attention.

    Absolutely savvy-sue i think it's one of the huge reasons i cases where children are moved to specialist centres. Even the repetitive tapping it is not violent but it is so precise and strong that it hurt me after 5/6 taps.

    Anyone remember that programme following the autistic and/or aesperger's boy, he was in goth get up and was moved to a specialist home. His issues centred around bullying and proving to his parents how adult he was, one scene showed him at his brothers 19th [?] birthday.
  • Savvy_Sue
    Savvy_Sue Posts: 46,050 Forumite
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    eskimo26 wrote: »
    They are trying to move her into her own room on the advise of the professionals who were insistent [i don't disagree.] She still calls it the guest room, she has refused to move any of her things in and gets abusive if they try.
    This might sound like an obvious question, but why not move her sister and leave her in her old familiar room? Would that help at all?
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  • eskimo26
    eskimo26 Posts: 897 Forumite
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    Savvy_Sue wrote: »
    This might sound like an obvious question, but why not move her sister and leave her in her old familiar room? Would that help at all?

    Originally she was sharing with her Sister but i think most recently because of her strong insistence she was in her parents' bedroom and sleeping in their bed, her clothes and things are in there.

    She doesn't seem interested in the old room, it would also be a huge upheaval to move her sister into the substantially smaller room as she is doing GCSE's and her stuff wouldn't fit as she has a pc and generally a lot more things. [double bed, desk for h/w etc].
  • shegirl
    shegirl Posts: 10,107 Forumite
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    eskimo26 wrote: »
    Originally she was sharing with her Sister but i think most recently because of her strong insistence she was in her parents' bedroom and sleeping in their bed, her clothes and things are in there.

    She doesn't seem interested in the old room, it would also be a huge upheaval to move her sister into the substantially smaller room as she is doing GCSE's and her stuff wouldn't fit as she has a pc and generally a lot more things. [double bed, desk for h/w etc].

    Yeah,because it's normal and a need for a 16 year old girl to have a double bed:eek:

    Does the other daughter get preference in any other way?

    If the autistic recently has been insisting on sleeping in her parents room I'd have a stab at insecurity and fear.
    If women are birds and freedom is flight are trapped women Dodos?
  • daska
    daska Posts: 6,212 Forumite
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    The not knowing their own strength can be an indication of sensory processing disorder. DS2 is like this and incredibly strong, he just doesn't 'get it'.

    Why is the consultant not involved here? She obviously has been under the care of one if she has a diagnosis of autism. I think I'd be bypassing the GP and demanding an urgent appointment with someone who might be prepared to help.
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  • shegirl
    shegirl Posts: 10,107 Forumite
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    daska wrote: »
    The not knowing their own strength can be an indication of sensory processing disorder. DS2 is like this and incredibly strong, he just doesn't 'get it'.

    Why is the consultant not involved here? She obviously has been under the care of one if she has a diagnosis of autism. I think I'd be bypassing the GP and demanding an urgent appointment with someone who might be prepared to help.

    Completely agree.It's all very well them saying she has no sensory sensitivities too but if they aren't very intuitive and she hasn't had proper help and they haven't told people things she may very well have them but nobody has picked up on it.
    If women are birds and freedom is flight are trapped women Dodos?
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