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DLA claim
Comments
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OP, have you been clear about your son's care needs? On my son's form, I spell things out. For example,
'R has difficulty with dressing. He cannot make suitable choices about appropriate clothing to wear. For example, he sometimes chooses shorts and Tshirt even if there is snow on the ground and we are going out, because he does not understand why this is not suitable clothing. Equally, he will insist on wearing heavy jogging pants, long sleeved top, and sweatshirt on a hot and sunny day. He does not realise that clothing should be chosen according to suitability for weather, occasion, etc.
R does not recognise when he puts clothes on back to front or inside out. He cannot choose colours and patterns appropriately.
R cannot fasten buttons very well. His fingers are hypermobile and he has difficulty in pushing a button through a button hole. He does get there eventually, but it can take five minutes for him to fasten a single button. He cannot manage zips. He can connect the two parts of the zip at the bottom, but cannot hold them in place long enough for them to link together. This is very frustrating for him and can lead to tears and upset.
R needs to wear boots with specialist insoles provided by the hospital. The hospital recommend Timberland boots, as these have a 'tilt' from heel to toe, which encourages R's feet to move in a more natural fashion when walking. The boots also offer the support needed for his hypermobile ankles. He needs encouragement to loosen the laces sufficiently to enable him to put the boots onto his feet. Although he can then put the boots on, he sometimes has to be reminded which foot is which. If he puts the boots on the wrong feet, he does not recognise this.
R cannot tie or untie laces. He sits down to have his laces tied, as standing can be painful for him. When he offers his foot to me, so that I can tie the laces, his foot is twisted. He cannot straighten his foot to enable me to tie his laces properly, so I have to twist my arms sideways in order to fasten the laces.
R can pull a Tshirt over his head, but struggles to straighten the seams against the sides of his body. If I didn't straighten them, his clothes would be twisted and uncomfortable. He cannot straighten a collar.
R can pull on his own socks, but if they are not straight, he cannot fix them. I have to do this to prevent discomfort.
R cannot wear slippers, as he cannot keep them on his feet. Also, the hypermobility of his ankles means that slippers do not offer sufficient support. This is painful for R.
Because of R's difficulty with clothing, and his double incontinence, R does not wear traditional school trousers. He cannot fasten the tops of the trousers, nor can he unfasten them. Instead, his school have given permission for him to wear dark grey jogging pants.'
I know it is quite long, and wouldn't fit into the box provided on the DLA form, but it does give an accurate picture of the difficulties that my son faces when he needs to get dressed.
If you complete the form in such detail, you can use additional pages. Just make sure each one is labelled with your child's name and reference number at the top, followed by the question number and title.0 -
Hamlett ive just watched it and what a couragous little boy you have .It made me cry.
Fight fight fight for his dla he deserves it
Mum/carer to Dallas who has Aicardi Syndrome,everyday i look at you makes my life fulfilled.0 -
"wattdallas" thanks alot for your message.
"jackieb" when we went to one tribunal they had already decided on what to do..before they even listened to us..they had it planned before we got there.
thats the time we took our son in a wheelchair and with his halo. there was no other reason for them to be shocked when we walked in the room..then ask us to wait outside for 5 minutes while they talked..we should have went in and discussed our case,,the only reason they asked us to wait outside was to change what they already had planned..so i know for sure that some are planned before you even state your case.0 -
That's just ridiculous. Some of them simply can't read the information they've been given. You must feel as if you're begging for what your son is very clearly entitled to.0
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"gregbythesea" your exactly right.
also atos must be doing something wrong or else that tv programme wouldnt have been shown.
i had a phonecall from the "DLA" decision maker a few weeks ago stating he turned down my sons dla because..like i said on a previous post.
he was crying one night of leg pains,we took him to the local hospital and they used this ONE OFF VISIT to decide his case..NOT the 10 spinal operations hes had..NOT the things he said he cannot do himself..NOT the help we give him..NOT the 12 years of medical history from the QMC hospital..BUT a one off visit to the local hospital.
DISGUSTING..im sure some of these forms are not read by the dla0 -
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pickpocketlocket wrote: »You know this is not true, don't you? Sorry, couldn't tell if you were being ironic or not!

it is 100% true.0 -
Does that mean obese people can get vouchers for food :rotfl:Haters are gonna hate - you're not obliged to participate0
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