Taxi...from an ugly duckling to a swan

NorthernLas

Taxi - Is there a Macmillan info centre at the chemo unit? If there is there should be a financial adviser person who may be able to help you fill in the correct words on the form. If nothing else, phone up for a form and your claim will be backdated to the date you phoned instead of the date you submit!

S x

dizzy_lizzie

Huge hugs Taxi.
Don't worry what other folk think either. That's their problem. You should get what you're entitled to!
Take care
x

taxi73

NorthernLas wrote: »

Taxi - Is there a Macmillan info centre at the chemo unit? If there is there should be a financial adviser person who may be able to help you fill in the correct words on the form. If nothing else, phone up for a form and your claim will be backdated to the date you phoned instead of the date you submit!

S x

There is a Macmillan info centre but no benefit advisor there as I asked the other week but may phone up the helpline to ask them

mum2one

hope your not having a bad night, - def ring for a DLA form, but give your local council a ring, as they have a department, that helps with all the forms, they know what to say in 10 words, which would take me 100 words to put in writing.
xx

taxi73

Just trying to chill before I go to sleep ..trying not to think of chemo tomorrow..lol
You're up late too...
Will sort DLA stuff after I know how this chemo will effect me...last one was ok but it was only the Taxol part.I have Avastin/Taxol tomorrow

Gemmzie

Hope it went okay today taxi xx

mum2one

Gemmzie wrote: »

Hope it went okay today taxi xx

ditto from me too.

got DD poorly, shes got some type of virus, so up late incase she was poorly. xx

lucielle

Hope you're back home and doing ok.
L

taxi73

Thanks all x Gosh,that was a hard day that I don't wish to repeat.

I'm afraid to say that I had a melt down today and had a strop to rival a 2 year old and would not have earned a sticker for being brave.

Got to hospital for 2pm appointment...already anxious
Got called in at nearly 3 o clock..more anxious
Put in to side room that made me feel really claustrophobic as it was so small,dull and airless....voiced my opinion and result
Moved into same side room as last week..like this as it is larger,has bed,more airy and brighter so am now happy to face my fear

Try to canulate me and after much messing manage it
Flush done..fine
Steroids in...OMG tingles in head and bits that cannot be mentioned but soon over
Anti sick in....uneventful
Antihistamines....OMG I turn to devil child in a few minutes as felt like my head had blown off my body demanding all drips be removed and to let me go home and die as I aint doing this !!!! no more...nurse eventually calmed me...don't know how long as everything was so slow in my head...was ashamed of my behaviour and apologised and she said it was the rush of the anti histamines that probably did it...I was pretty dam scared of this reaction.
Next came Avastin ...hour and half....ok but couldn't get comfy and they took me in the big room
then flush and ranitidine
Then Taxol....another hour
Then flush

In between different chemos the sister came round and has decided to fit a PICC line on monday and hopefully,this should rid me of some of the anxiety surrounding them inserting cannulas that they have left me with since my chemo treatment a couple of years ago.
Luckily, the nurses understood my totally stupid,behaviour and were really kind to me..god bless them.
I cannot believe I acted that way and I didn't mean to it was not me,I am not like that

Apart from the guilt am not feeling too bad..on steroid high still yet

mum2one

So sorry you had a bad afternoon, it sounds like you were really put through the mill, hopefully a PICC line will be easier.

Hopefully there put you straight into the bigger room next week, with everything your going through I'd have been on a melt down on day one, your brave, dignified, and one of the strongest people I know.

Theres nothing to be guilty over, it sounds like the meds caused the reaction, is there anyone at home with you for the next couple of days, you make sure you get some rest,

Big hugs from us all, u take care, xx