Does Anyone Claim DLA For Hypermobility

joshuasmummy09
joshuasmummy09 Posts: 6 Forumite
edited 3 August 2011 at 10:53PM in Benefits & tax credits
Hi, Can anyone help, i suffer with hypermobility, i am in constant pain and sometimes cant move in the mornings when i wake up due to the pain (my doctor said these are flare ups of the hypermobility) Ive applied for DLA and i got a letter back saying they have not made a decision as they requested a report from my gp, then about 2 weeks later they sent another letter saying that they have not made a decision as they have requested a report froom my consultant, thats was about a week an half ago, i applied last year and they only requested a report from doctor and i got refused, does this mean ive got a better chance at getting the dla because they have requested a report from both my gp and consultant, and how long roughly does it take for them to get a report from the consultant

Thank you
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Comments

  • Hi,

    If you speak to the Consultants secretary ask if they have received the letter request from DLA and ask if the can tell you when the letter will be sent. Once DLA receive this letter they normally get back to you fairly quick even if its first to cknowledge to you that they have got the reply from the Consultant.

    Hope this helps:)
  • Anubis_2
    Anubis_2 Posts: 4,077 Forumite
    Be aware that consultants are not obligated to fill in the forms, and quite a few will not respond to them.

    As for it meaning you have a better chance, not necessarily, it means they are wanting more information before making a decision as your doctors form may be unclear.
    How people treat you becomes their karma; how you react becomes yours.
  • I had a similar issue. They wrote to my doctor, however my doctor's surgery don't respond to DLA letters and the letter from the consultant took so long that they eventually sent me to see an independant doctor. They were really good though and let me know via letter and phone calls what was happening and why it was taking so long. Once I saw 'their' doctor, I got an answer within 2 weeks.
  • richard9991
    richard9991 Posts: 1,618 Forumite
    I had a similar issue. They wrote to my doctor, however my doctor's surgery don't respond to DLA letters and the letter from the consultant took so long that they eventually sent me to see an independant doctor. They were really good though and let me know via letter and phone calls what was happening and why it was taking so long. Once I saw 'their' doctor, I got an answer within 2 weeks.
    it is part of a gps contract with the nhs to reply and comment on any info the dwp require hospital consultants are not obliged to give info to dwp so if your surgery is not supplying info to the dwp they are breaking there contract with the nhs and should be reported
  • Hi, thanks for the info everyone.

    I have now had another letter saying that they still havnt made a desision, does this mean they are still waiting for the report from the consultant or do you think it means that they have recieved the report and that they are now going to be making a desision, any ideas???

    Thank you :)
  • I would think they are still waiting. I received a couple of letters from them saying sorry they had not been able to make a decision yet. It's better that they get all the evidence before they make their decision and not just say no.

    I found them very helpful. I sent as much info as I could myself including letters from my GP. Mine was held up because I moved and changed GP's and my new GP didn't fill in the form (not their policy). DWP gave up on them in the end and sent me to an independant assessor (doctor), who was extremely thorough.

    You can always ring them and ask what the stage your claim is at and is there anything else you can do to help. They will let you know if they haven't received the info back from the consultant.
  • Anubis_2
    Anubis_2 Posts: 4,077 Forumite
    I would think they are still waiting. I received a couple of letters from them saying sorry they had not been able to make a decision yet. It's better that they get all the evidence before they make their decision and not just say no.

    I found them very helpful. I sent as much info as I could myself including letters from my GP. Mine was held up because I moved and changed GP's and my new GP didn't fill in the form (not their policy). DWP gave up on them in the end and sent me to an independant assessor (doctor), who was extremely thorough.

    You can always ring them and ask what the stage your claim is at and is there anything else you can do to help. They will let you know if they haven't received the info back from the consultant.

    GPs have no choice, they have to fill in the form. Consultants or specialists however, are not obligated to. If your GP does not fill in the form the DLA send to them, they should be reported.
    How people treat you becomes their karma; how you react becomes yours.
  • tailz03
    tailz03 Posts: 20 Forumite
    I'm in exactly the same situation as you, right down to the pain in the mornings. I sent my form off just over a month ago and after receiving two letters in the first week apologising that they couldn't make a decision yet i haven't heard anything since. It's so frustrating as its such a horrible condition that people don't seem to realise. On bad days such as today i had to use my crutches to go to work as i struggled to stand up and suddenly everyone was like 'omg are you okay?' 'do you need any help with that' 'do you want me to carry anything for you?' which was nice but it misses the fact that just because i don't always have crutches doesn't mean im not in pain. :(
  • My daughter received DLA for Hypermobility Syndrome. After our first claim was dismissed (despite being a wheelchair user!) we applied again with some help from a Welfare Rights Officer. She helped us and advised us to send copies of hopsital appointments, OT home assessment, paperwork for crutches and the wheelchair, physio appointment, copies of prescriptions, etc. I also called the team looking after her at the hospital and explained that I needed to know whether they had done a report for the DLA, as our GP did not know first hand about the condition or how it affected my daughter, and without the report we could not get any financial assistance. The Consultant eventually sent the report off, but it took us 8 months to get the DLA, although this is backdated to when you first applied. Good news though, if you need to renew - our renewal took just two weeks this time round!
  • onetomany
    onetomany Posts: 2,170 Forumite
    my son got high rate for hms, and low muscle tone and a sleep disorer then he got refuse because a consultant said he didnt think he need any disability benifiet, i was guted i apealed but was refused again , he still has really bad days breaks my heart when i have to leave him to go work good luck op
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