Eden Project?

daska

LadyMorticia wrote: »

One of my friends said that she'd wish she had given in and got a wheelchair when she was of moderate severity because she feels it would have given her more independence and maybe haulted the M.E abit. I'm not sure how true that is but I just want to be able to keep as much independence as I can and try to do normal things.

I'd second what your friend said. ME is an illness you have to fight cannily. Being obstinate and determined to do as much as possible doesn't, in my experience, help the recovery process.

In my case a GP who didn't have a clue told me to carry on doing as much as I was already doing (and crashing) and to then try to do more every day. Result was I got worse and worse. It wasn't until my husband and two of the kids had left home and I got a live in carer that we were able to reduce what I HAD to do to the level that I wouldn't crash on a daily basis. I can now go a week or more without crashing and achieve an enormous amount more. It's not that I'm better but that I play it at it's own game. As soon as I start with the "I want to do this and I'm not going to let this illness stop me" the vicious cycle starts again.

(DS2 is 3 and has developmental problems so it's very difficult to manage my energy.)

SingleSue

I am one who will overdo things to try to prove to myself I don't have problems.....I am writing this from my bed after overdoing things yesterday :rotfl:

Can't stay here though, dinner to be cooked, boys to be looked after (eldest out at work so he can't help), so will just have to dose myself up to get through today.

I voiced the possibility of me hiring a wheelchair for when we go to Pleasurewood hills this year as my inability to walk around too much last year really put the downer on our day out...eldest turned around and said "Well don't expect me to push you! It would be two of us in a wheelchair if I did" (His hips and shoulders dislocate at the slightest thing)

Oh well, it will be the sitting down at every opportunity approach then....

daska

Could you not hire a scooter instead, you'll all have more fun and suffer less.

A_Flock_Of_Sheep

I hope you have a lovely day. ME is a horrid illness. RADAR keys are very handy too. Do you have a Blue Badge to park too? Very handy for ME sufferers too.

SingleSue

The RADAR key is brilliant, have had one now for about 10 years and wouldn't be without it.

LadyMorticia

I've applied for a blue badge but I only receive LRM DLA so I'm not sure how successful it will be but I was just honest about my mobility problems so we'll see what happens.

R.e. The scooter. I have no spatial awareness whatsoever. I'd be a bit worried about running people over with it. :S

My OH said that he doesn't mind pushing me. I know that I wouldn't have the energy to push myself.

I do think that scooters are handy things to have when you have mobility problems. I just don't know how dangerous I'd be with one.

Thank you for all of the answers. I'll try and reply more in-depth soon. Brain fog has attacked me again.

Mupette

I've been too embarrassed to use my radar key.

Used it once when needing loo, opened door to find someone on the loo, i was so apologetic. The door was locked, this key has managed to unlock it with someone using the facilities..

So very wary of using it now

Invalidation

Went to Eden Project last year, Told them at the till that I was disabled and my wife was my carer and they didnt ask for any proof.
You can also book a powered wheelchir online to use and I think thats free.

daska

Invalidation wrote: »

Went to Eden Project last year, Told them at the till that I was disabled and my wife was my carer and they didnt ask for any proof.
You can also book a powered wheelchir online to use and I think thats free.

Wow, that's brilliant! Are the powered chairs carer controlled? I might consider taking up my cousin's offer of a day out, I can't get the scooter there by train so it would make all the difference.

LM - here's the telephone number for chairs and the accessibility guide.

Careful_with_that_Axe

Did you have a good day? How did it go? Shame the weather wasn't nicer for you.