Epilepsy

bigjl

Save_It wrote: »

it is a medical condition that has serious long term implications, but if controlled you are good to go. Thanks for your medical opinion, bit of a Contradiction thought :cool:

You really don't understand that statement, here is it in another example, Diabetes is a serious long term medical condition which, like epilepsy, can be almost completely controlled with medication.

Having either will afford protection under the DDA, but unless it results in mobility or care issues you are not entitled to DLA.

These are facts if you don't wish to here informed opinion then don't post on a public forum, by doing so infers you have little knowledge of the problem you have asked for advise or opinions on.

And you are welcome to my medical opinion as actually I am in a position to give one, unlike you.

And I don't like getting PM's saying I am a stalker, if you put information in the public domain then everybody has a right to view that information, you don't think the advice to check if it is a means tested benefit us relevant, I do.

Some info', obtained after a quick google search

Introduction to Disability Living Allowance (DLA) for people with epilepsy

Printer-friendly version PDF Version Last updated 23 Nov 2009, review date due 30 Jan 2010
Disability Living Allowance (DLA) is a tax-free social security benefit for people with an illness or disability who need help with:

• getting around
• personal care, or
• both of these.

You can claim DLA even if you:

• do not actually get the help you need
• live alone, or
• are working

DLA is made up of two components (parts). You may qualify for just one component or both components.

• The care component - if you need help with your personal care because of your disability
• The mobility component - if you need help to get around because of your disability.

newstudent24

nannytone wrote: »

if you are not allowed to drive anymore, you may find that you are entitled to a free bus pass. i know its different in all areas but it doesnt hurt to ask!

Yeah I forgot to mention I have a free bus pass only trouble is I can't use it before 9.30am (the same rule applies to the over-60's bus pass).

calleyw

newstudent24 wrote: »

Yeah I forgot to mention I have a free bus pass only trouble is I can't use it before 9.30am (the same rule applies to the over-60's bus pass).

In my local area you can use it before 9.30am.

As long as it a local service. And before 9.30am on weekends.

Yours

Calley

MrsManda

If you are on medication due to epilepsy and have a free prescription card because of it you can use the card as evidence to apply for a disabled railcard.
You get a 1/3 of rail travel for yourself and one person travelling with you.

seeya23

newstudent24 wrote: »

Yeah I forgot to mention I have a free bus pass only trouble is I can't use it before 9.30am (the same rule applies to the over-60's bus pass).

in nottingham you can use it from the first bus

dktreesea

Save_It wrote: »

My daugter has recently been diagnosed with Epilepsy as she has been suffering from seizures since early this year.

Are they any benefits that she would qualify for, the consultant mentioned applying for DLA just wondered if anyone has any experiances of applying for dla for someone with epilepsy?

A friend of my daughter's has epilepsy. Sudden attacks and uncontrolled. She get's DLA for the daughter (care issues and mobility issues), taxi fares covered in case she has to be rushed to the hospital and they can't get an ambulance straight away (important apparently when it happens at school) and also the mother gets a carer's allowance.

I think you should apply.

Save_It_2

Just an update.

We applied on the 06/09 and we have today heard that she has been awarded LRM from the date of the claim. Quite a quick turn around especially as they had to wait for reports from the school and the consultant.

We have not recived the letter yet as to why she was only awarded LRM and not LRC but the chap at the DLA said we could ask for a reconsideration if we wanted.

Not sure if we will as we could lose the LRM she currently qualifies for. Think i'll make a decision after the letter comes given the reason why she did not qualify for the LRC element.

Thanks for all the replies from the helpfull posters.

Does anyone know if you have to inform working tax about the DLA payment? Is it classed as income?

Indie_Kid

Save_It wrote: »

Does anyone know if you have to inform working tax about the DLA payment? Is it classed as income?

DLA isn't income. But if your child receives any rate of DLA, you may qualify for a disability element within tax credits.

Save_It_2

Just got the confirmation letter through,

Mobility; granted

You need someone to guide or supervise you when you are walking on routes that you are unfamiliar with

Care: refused

You do not need help cooking preparing meals

You do not ned constant supervision to avoid injury to you/others

No prolonged attention needs at night.

Not sure about the lack of supervison during the day but think im going to ask for a reconsideration.

Save_It_2

Just a quick update,

I asked for a written explanation into the reasons why & how they made their decision.

Today I got a letter stating that my daughter had been awarded the below.

Mobility; Refused

you do not need someone to guide or supervise you when you are walking on routes that you are unfamiliar with

Care: Granted

You do need extra help for personal care.

It basically totally contradicts the original award we had.

First letter: Care refused, Mobility Granted

Second Letter: Care granted, Mobility refused.

I now have two letters from DWP stating that my daughter needs care/mobility with for valid explinations and also why she does not need care/mobility with valid explinations.

Just for the record she has only been receiving one payment for her mobility. Just goes to show that the system needs some more quality checks putting in place.