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The (not so old) Crocks Cafe -Part 2 - Page 97

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The (not so old) Crocks Cafe -Part 2

edited 25 July 2010 at 5:42PM in Disability Money Matters
1.9K replies 98.2K views
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Replies

  • Indie_KidIndie_Kid Forumite
    23.1K posts
    mary-op wrote: »
    Same with computer chair.............blessed thing I've got at the minute isn't too comfy.

    Have you heard of Posturite? I've just had an assessment done by them because I have issues with sitting up. (I can sit up - but due to the way I still, it's very painful) I had my assessment done because I'm a uni student - they may also assess non-students.
    Sealed pot challenge #232. Gold stars from Sue-UU - :staradmin :staradmin £75.29 banked
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  • mcculloch29mcculloch29 Forumite
    5K posts
    Rampant Recycler
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    Typing away from my riser-recliner, where I shall sleep tonight. Argos have given a delivery time of 7 am onwards and my son (6' 5'' and useful) disposed of my bed and mattress singlehandedly earlier this evening. I did think of blowing up the air mattress but also thought of rising from the air mattress on the floor, without support... :eek: it wasn't going to happen.

    Bit of a mind-shift tomorrow. The choice was, as a currently single person do I have a single bed for the first tine in 35 years and also buy a new cooker and oak dining suite that I quite fancied, or do I spend an arm and a leg on a kingsize adjustable, one half of which may never be used?

    Dining suite and cooker have been much admired, I'll take the afternoon off tomorrow to buy new bedding ..... :D
    Erma Bombeck, American writer: "If I had my life to live over again... I would have burned the pink candle, sculptured like a rose, that melted in storage." Don't keep things 'for best' - that day never comes. Use them and enjoy them now.
  • mcculloch29mcculloch29 Forumite
    5K posts
    Rampant Recycler
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    A fairly fitful night on the riser recliner. Argos texted that delivery would be between 9 and 11 and then delivered at 7.40 am! :eek: Luckily I was up and running at that point.

    But all is well ... looking forward to a good night's sleep tonight and going out on my trike later to buy some lovely new bedding.
    Erma Bombeck, American writer: "If I had my life to live over again... I would have burned the pink candle, sculptured like a rose, that melted in storage." Don't keep things 'for best' - that day never comes. Use them and enjoy them now.
  • mary-opmary-op Forumite
    3.6K posts
    sunnyone - thanks for all that info. Will look into this meditation when I start my physio. Not sure when that'll be though at the minute. If I haven't heard by the time I see consultant on 15th I'll mention it to him to gee them up a bit.
    Thanks for the info on wheelchairs as well. I was thinking of getting a simple one that I can be pushed around in ...........just to get me out of the house and see some shops or something. Mind you its so cold at the minute I think given the choice I'd probably opt to stay in. I'll mention wheelchair services to GP. I know I'll need a good cushion as the problems are at the base of my spine. Seem to spend my days on about three cushions..............slight exaggeration...........it's two really..............lol Only way I can feel comfortable.
    I'm looking out for stair gate and so is foster daughter. We're both also scanning local ads for recliner but nothing yet so might end up with her going to argos for me fr stair gate. 2nd hand shops here had two electric recliners that were huge and I don't want anything so big as that.........there was a smaller one but OH tried it and said it was really uncomfortable................they're so expensive to buy new aren't they.

    sh1305 - thanks. Not heard of Posturite. How do I find out more ? I make a point of sitting in the right position and all that its just that the chairs got a fairly hard seat and with the base of the spine being the problem I need something soft.

    Had fairly positive day today and actually did some card making and found a local chiropodist who does home visits -what a relief it will be to get my feet sorted out properly. OH freaks out at the mere thought so no point asking him and he does so much for me already.

    Hope you're all ok:)
    I would be unstoppable if only I could get started !

    (previously known as mary43)
  • TrialiaTrialia Forumite
    1.1K posts
    My meditation usually starts with simple mindfulness of breathing - quite easy to learn. Just close your eyes and count each breath you take, up to 10, then back to 1, and back to 10 again. Just close everything out that you can. It's best to be in a quiet atmosphere, not too much clutter or external noise. :)

    I didn't get rid of the headache. Still got it. :( And my laptop charger has died, so I'm without my computer for a bit - fortunately for me, my friend owed me a tenner so he's bought me a new one on eBay, which should be here by the weekend. And my houseguest is letting me use her netbook for a bit. :)
    Homosexual, Unitarian, young, British, female, disabled. Do you need more?
  • Hi everyone just a quick update. I saw the GP again today and he agreed that a 7yr really shouldn't be able to put her feet on her head!!! He has agrred to refer her to paeds. I know it's not the right department but at least she will be in the system.

    I just want to say a huge thank you to all who helped me with this especially Trialia xxx
    I'm sure I will continue to annoy you all with my endless questions if noone minds:o

    Sorry I have brain melt today so can't remember aything I have just read so hugs to whoever needs them and thanks again.
  • Indie_KidIndie_Kid Forumite
    23.1K posts
    Mary - http://www.posturite.co.uk/PosturiteSite/pages/home/default.asp

    I am still not feeling well. If anything, I'm feeling worse. Had the silly dog try to sit on my head earlier. :rotfl:
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    50p saver #40 £20 banked
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  • edited 26 January 2011 at 8:07PM
    mary-opmary-op Forumite
    3.6K posts
    edited 26 January 2011 at 8:07PM
    Trialia - thanks for that. Might give that a try. Sounds like something I could do when I go to bed and OH is having some time for himself downstairs.

    needing help - when I was born my feet and legs were wrapped under me somehow........nearly had to have caliphers then they straightened out but its still left me with very flexible legs..............in my 30's I could do all sorts of yoga positions.........i.e. feet behind my head............wonder if thats the cause of my current problem though its been diagnosed as bone thinning and I can't see the connection

    sh1305 - thanks for the link. I've had a look but think they're a bit out of my price range at the minute. Till DLA is sorted out and I know exactly what I'm going to get I'm a bit scared to spend too much money on anything.
    Have seen an advert in newspaper for booster cushion, fit armchair or kitchen/dining chair and wonder if that might be an answer for the time being.
    Hope you feel better soon............dog trying to sit on your head can't help though I'm sure he/she's just trying to show a bit of comfort.

    Managed to find a chirpodist who does home visits...........and she lives locally. Only found her by doing search with google and thought it be just my luck it would be an old number and address and she'd not be there anymore. But she is and she's coming next Wednesday to sort my feet out...............oh roll on............:)
    I would be unstoppable if only I could get started !

    (previously known as mary43)
  • sunnyonesunnyone Forumite
    4.7K posts
    Tenth Anniversary
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    mary-op wrote: »
    sunnyone - thanks for all that info. Will look into this meditation when I start my physio. Not sure when that'll be though at the minute. If I haven't heard by the time I see consultant on 15th I'll mention it to him to gee them up a bit.
    Thanks for the info on wheelchairs as well. I was thinking of getting a simple one that I can be pushed around in ...........just to get me out of the house and see some shops or something. Mind you its so cold at the minute I think given the choice I'd probably opt to stay in. I'll mention wheelchair services to GP. I know I'll need a good cushion as the problems are at the base of my spine. Seem to spend my days on about three cushions..............slight exaggeration...........it's two really..............lol Only way I can feel comfortable.
    I'm looking out for stair gate and so is foster daughter. We're both also scanning local ads for recliner but nothing yet so might end up with her going to argos for me fr stair gate. 2nd hand shops here had two electric recliners that were huge and I don't want anything so big as that.........there was a smaller one but OH tried it and said it was really uncomfortable................they're so expensive to buy new aren't they.

    I need specialist cushions mary op, I currently use ones that are anatomiacally shaped to allow my smashed back/tail bone and pelvis to rest comfortably for long periods, they are memory foam gel with recceses for my legs and lack of bum (I lost it when I lot the ability to walk/stand) and Im waiting for a third one to be delivered but at over £170 a pop I certainly couldnt afford to buy them :eek:

    I am eternally grateful that the NHS provide my wheelchairs, cushions and hearing aids, I never get fobbed off with cheap inferiour items and the servicing is second to none.

    I had my hearing aids re programmed, new moulds and re tubed today, last week I had my powerchair serviced and new motors, servos/brakes, rear wheels and tyres fitted, a new seat was fitted and a new cushion ordered which would have cost me a fortune and loads of hassle but our service agent serviced my powerchair and returned two days later to fit the new parts (it would have been the next day but I was busy, they always come at a convienet time for me)

    M&S had some nice powered rise and recline chairs for £350 in the sale a while ago and I thought that was a decent deal, to make room for my recliner I had to get rid of the conservetory furniture because it was just too big in the sitting room but at least I can enjoy the birds again now, its so nice in the conservitory and I had forgotten that.
  • SingleSueSingleSue Forumite
    11.2K posts
    Part of the Furniture 10,000 Posts Name Dropper Photogenic
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    Well, I had to call for an emergency appointment today for youngest....I really didn't think we would be able to go the two weeks!

    His peak flows were well down this morning but I was a good girl and followed the asthma nurse's instructions and got an emergency appointment (he was 60 below the minimum level she set on Monday, so not even a tiny bit under but a lot under).

    Firstly the doctor didn't seem to know her job, secondly, she hadn't bothered to read his notes (asked me how much of the brown puffer he takes - he hasn't used a brown puffer for years), got confused when I was telling her why the nurse had said to bring him straight up if he went below the line (hospital's instructions to keep a very close eye on him and especially when his levels start dropping as he is so brittle) and then called in our family doctor.

    Now this doctor is the one I swore never to see again after last year and middle son...basically, he palmed me off saying he only had a mild infection and to go away, only for middle son to end up in hospital a few hours later being diagnosed with a serious and life threatening infection and me being told off for dellaying seeking medical attention!

    Anyway, the upshot of the family doctor coming in was me being told I was over reacting, that I must have misunderstood the nurse, that he would only consider putting him on steroids once he was below 50% of normal peak flows and then wouldn't listen when I explained he was already on added steroids and had been for nearly 4 weeks.

    It is just so annoying, the hospital consultant, the respiratory nurse, the asthma nurse have all told me that with youngest, the panic station is not 50% of normal peak flow but 70% of peak flow as below that, his O2 sats drop alarmingly and dangerously and also because he goes off so damn quickly once he reaches 70%.

    His peak flow did come up a tiny bit but it is still below the line the nurse drew..the line that he was not to go under. If it drops down again, I will just take him up to the PAU directly.

    But first it will be a sleepless night.........another sleepless night.
    We made it! Two graduated, 1 currently at university, been hard work but it shows there is a possibility of a chance of normal (ish) life after a diagnosis (or two) of ASD. It's not been the easiest route but I am so glad I ignored everything and everyone and did my own therapies with them.
    Eldests' EDS diagnosis 4.5.10, mine 13.1.11 eekk!
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