The (not so old) Crocks Cafe -Part 2

rosysparkle

Formaldehyde, that sounds so liberating!

Hope you had a great time, Trialia and soolin.

I've been in sunny France for a fortnight, I hoped the rest and warmth would make the pain lessen but apparently not. I had a great time lazing round the pool though (in the shade, meds mean I can't sit in the sun).

I am trying to fill in the form for getting the DWP to look again at my care needs - I was awarded indefinite HRM but no care over a year ago and I asked them to look again at the care a couple of months ago. But I just can't get my foggy head round this form. I will try again tomorrow.

Indie_Kid

rosy - it might be worth visiting CAB?

Got my letter informing me of my neuro appointment today.

SingleSue

Blimey, been a while since I have been here....

Have come back from the physio today complete with a funky crutch, not funky as in colour but with a weird hand grip thingy as it is beggering up my already beggered wrist plus instructions to use it around the house as well as out and about.

I also started hydrotherapy which was fun but left me barely able to move for 5 days afterwards and in so much pain it was unreal..back tomorrow for another session just as I am getting over the last one!

Apart from that, everything is going about the same.....

LameWolf

*Trundles in, puts clean tablecloths and vases of fresh flowers on tables*

Just checkin' in folks, I hope it's quiet because you're all having a crackalackin' time.:D

My best wishes to all our Cafe community.:o

Trialia

More cracka-knackered than anything else, lol, but appreciatin' the good wishes anyway. Trying to rest up. I knew that convention would kick me to the kerb.

Indie_Kid

Could do with some advice please:

As mentioned earlier in this thread, I have a neuro appointment a week on Monday (I really wish it was tomorrow...) - what should I expect?

For anyone who doesn't know, my situation is as follows:
Due to a rare eye movement disorder, I can't hold my head straight. Well, I can't but can't see that well. Anyway, in June I went to a gig and since then have had nothing but pain in my neck and shoulders. I was originally prescribed Naproxen - this made me feel very sick. I then went back to my GP who said that my only option (tried physio a few years - left me in more pain) is botox injections. Before they do the injections, they of course need to do tests to find out what exactly I've done to my neck.

Trialia

Wish I could tell you SH, but my only neuro appointment so far has been the one ten years ago where they diagnosed me with Raynaud's, which, obviously, doesn't have much to do with the head and neck. They'll probably want to test your nerve conduction in the area with electrodes, though. It doesn't hurt much, IIRC...

hannahO_2

Hello,

I was wondering if anyone knows or dealt with someone who suffers from memory loss or dementia? The reasons why I ask is that I am suffering from poor concentration and memory loss at the moment and the thing is I'm having a problem remembering if I closed or locked my flat door after I've gone out to a shop etc. I have come to term with the fact that if I left the door open and someone got in or if the house burns down, so be it..... hope everyone realise and get out in time (!) and I'll have to cross that bridge if it happens but is there any good systems or routine I should follow so that I don't panic every time I go out? I thought about changing the lock to one of those 'push-on number lock on the door' type (don't know the name of it) but I have problem with passwords too so even if I get rid of the keys, there is the problem of possibly forgetting the combination to open the door. My memory is bad to the point that I didn't know how to switch on my mobile this morning even though I had it for almost 3 years.

Trialia

Yep. Quite a few of us on this thread, actually - memory loss and poor concentration are some of the more frustrating symptoms of fibromyalgia syndrome.

What I do to help me remember - when I come home I always put the key in the lock on the inside, so I see it when I go for the door handle and take it out, so I have it in my hand to lock the door. Then I always put it in the same pocket of my coat, so I don't forget where it is...

hannahO_2

You have given me some idea so thanks Trialia.
Thankfully, I have not forgotton to take keys with me so that's not a problem but I might decided to assign rule : keys in left pocket after I 'locked' the door but never before or something like that.

Also I might make an appointment with gp next week because I have never thought or looked into FM before. I had full blood test done for Lupus this year but the results came back as all normal. I still have numerous symptoms and my gp gave an answer to all of my 'symptoms' that it could be one of those thing type of twilight diagnoses.

Having read some articles about FM, I learnt that the symptoms overlaps but FM does not damage organs like Lupus. I also didn't know that hypermobility increases chance of developing FM which I have (scale 4/9). I had it since childhood and thought nothing of it apart from my arms and fingers looked ugly when it bent backwards.