new dla medicals

Breast_Cancer_Survivor

seven-day-weekend wrote: »

Withthe best will in the world krisskross, by your own argument, shouldn't your husband have filed in the forms himself with no help?

I undestand why you did it for him of course, but just using it as an illustration that some people DO need help filling them in, even intelligent people.

My son's girlfriend needs help because she is unable to explain herself clearly. Like the poster above she is on the Autistic Spectrum (Asperger's Syndrome) and has difficulty understanding the 'open' type of question on the form, nor is she able to explain her needs clearly to another person. it is a symptom of her condition. Therefore my son, husband and myself helped her to word the answers more appropriately. We did not lie ot exaggerate, but her answer of 'I need someone to help me understand' tells no-one anything. We helped her to expand on her answer detailing the sort of things she has problems understanding, what effect this has upon her everyday life and what help she needs to enable her to understand.

People do need help sometimes, so I think it a bit unfair to say that everyone should fill in the forms with no help.

I was turned down for DLA when I initially applied due to the fact that i'd misunderstood alot of the questions but i'm getting the hang of it now due to my OT explaining what the questions actually meant.

It's also very difficult to admit the things that you can't do.

It makes me cry when I read any of the reports my OT has written about me as it all sounds so negative.

Breast_Cancer_Survivor

easy wrote: »

But tbh I think that's part of our current problem. DLA is awarded because of the things an individual says they can't do for themselves.

I believe my original independent medical all those years ago was in order to judge whether my "inability to do things" was consistent with expectation given my medical diagnoses (difficult in my case, as I have congenital problems which have never been diagnosed).

I certainly believe that all new applications for DLA should include a fresh medical assessment alongside opinions from professionals treating the patient.

And given the parlous state of britains public finances, to me it makes sense that those currently in receipt of such benefits should be re-assessed, to ensure that the right people are receiving the right benefits.

It holds no fear for me.

Having applied for DLA & had to appeal then go to tribunal before being awarded my low rate care/mobility I can state for a fact that they don't believe everything you write on your form. They write to your GP & Specialist's for they're medical opinions to see if they confirm your difficulties.

When they wrote to the Pyschiatrist I was seeing at the time he claimed I had a personaility disorder despite the fact that I had told him that i'd been diagnosed with Asperger's. He said that he didn't believe that I had Asperger's so wouldn't even take it into account.

Consequently I was turned down as they didn't even bother writting to the Pychiatrist that had actually diagnosed me. :eek:

I think that getting DLA has been gradually getting more difficult for a few years now from the evidence of the amount of threads you see where people have been turned down when they have obvious care/mobility needs.

Indie_Kid

Breast_Cancer_Survivor wrote: »

Having applied for DLA & had to appeal then go to tribunal before being awarded my low rate care/mobility I can state for a fact that they don't believe everything you write on your form. They write to your GP & Specialist's for they're medical opinions to see if they confirm your difficulties.

They only did this the first time after I asked to go to appeal. The scond and third time they didn't bother. The second time, they told me that I can't possibly have bowel problems. I also found out (because of the bunch of papers I was given before my tribunal) that they think that Nystagmus doesn't cause balance problems - obviously, those that have the balance problems (at least 90% of people I know with Nystagmus have mentioned these problems) are lying.:mad:

And they haven't bothered contacting my GP or consultants this time either. Ho hum, looks like another appeal then.:mad:

krisskross

I believe that soon it will not be enough to demonstrate that one has care needs. I think applicants will be required to show that the money is actually used to help meet those needs. Seems silly that you can continue to struggle along with unmet care needs for which you are being paid. Makes one wonder how great these needs actually are.

Oldernotwiser

sh1305 wrote: »

(at least 90% of people I know with Nystagmus have mentioned these problems) are lying.:mad:

You know more than 10 people who have nystagmus?

Breast_Cancer_Survivor

sh1305 wrote: »

They only did this the first time after I asked to go to appeal. The scond and third time they didn't bother. The second time, they told me that I can't possibly have bowel problems. I also found out (because of the bunch of papers I was given before my tribunal) that they think that Nystagmus doesn't cause balance problems - obviously, those that have the balance problems (at least 90% of people I know with Nystagmus have mentioned these problems) are lying.:mad:

And they haven't bothered contacting my GP or consultants this time either. Ho hum, looks like another appeal then.:mad:

Don't give up sh, I think that's why they make it so difficult to put genuine people of claiming as they can't stand the hassle.

Indie_Kid

Oldernotwiser wrote: »

You know more than 10 people who have nystagmus?

I moderate a forum for people with nystagmus and have met several people with Nystagmus too.

Indie_Kid

krisskross wrote: »

I believe that soon it will not be enough to demonstrate that one has care needs. I think applicants will be required to show that the money is actually used to help meet those needs. Seems silly that you can continue to struggle along with unmet care needs for which you are being paid. Makes one wonder how great these needs actually are.

But how on earth do you do that if like me, you need to buy one-off items?

when_will_it_end

its like carers allowence which i dont recieve because i work if i did an they gave it to someone to do the job from an agency i would need an exra room for them to stay over night

TheBottomLine_2

krisskross wrote: »

Seems silly that you can continue to struggle along with unmet care needs for which you are being paid.

I agree it makes no sense. I tried to think of something to add but couldn't, you've summed it up perfectly.