Walking how much pain?

summerof0763

thanks tobruck,had a horrendous last two weeks with my back,already on a pile of tablets that are not touching the pain just now,was at pain clinic today for my acupunture,and was them who said to go and have a think about it,then go and see the doc,but to be honest do not really have anyone who understands the pain i am in to discuss pro's n cons.
feel like my life is pain and tablets argh!! never mind adding the rest of my disabling issues lol

Saversue

Invasion wrote: »

I think that maybe this is what Soolin was wanting to avoid, rather than saying anyone had done anything wrong, this thread was just on the right side of the line with regards to medical advice.

Unfortunately Summer of 0763 I believe answering this question would be giving medical advice. Only your doctor can advise you on which meds to take, though it might be worth a google search to have a look for possible side effects and see other people's experiences

TOBRUK wrote: »

Hi summerof0763,sorry but I can't comment on the gabentin as I've never had it, but I do take the pregabalin (the maximum dose allowed which is 600mg a day) and never had any problems with it, no bad reactions or any side effects, but everyone is different. Your GP wouldn't put you on the max dose straight off, but gradually up the dose to see how you get on with it.;)

Thanks linni and only_mee, I'm still unaware what the problem was/is with this thread as I can't see that anyone has given dodgy advice here. It's all been responsible and very supportive.:)

I agree with you Saversue about Soolin, it would be good to receive some sort of response from him/her about where we are supposed to have gone wrong as it were - so that we don't do it again!! He/she has obviously been following this thread! Perhaps they only want to see nasty abusive threads on here, and there are plenty to choose from! I have also seen threads where people are advising all sorts of things that they really shouldn't and are left to it!

It does make you nervous of posting at all, and it is quite upsetting!:(

summerof0763 wrote: »

thanks tobruck,had a horrendous last two weeks with my back,already on a pile of tablets that are not touching the pain just now,was at pain clinic today for my acupunture,and was them who said to go and have a think about it,then go and see the doc,but to be honest do not really have anyone who understands the pain i am in to discuss pro's n cons.
feel like my life is pain and tablets argh!! never mind adding the rest of my disabling issues lol

Hello all you nice people, still not had any feedback from the evasive Soolin.

I wonder if it's time for a new post asking for feedback on what it permissible and what views on the subject other happy and grateful users of Disability & Dosh have.
In fact I might just get it started
As I am also very down about the whole thing.

If I am allowed to take about pain? I have been on a four week Pain Management Programme. There are only a few hospitals in the Country who offer it and its quite an arduous task going through the assessment process to get on it. If anyone would like more information then let me know, as long as it's all-right with Soolin I will explain anything you want to know._pale_:think:_pale_

only_mee

I did the pain management programme many moons ago, i hope you get out of it more than i did

sunnyone

only_mee wrote: »

I did the pain management programme many moons ago, i hope you get out of it more than i did

My first one was rubbish and I had a bad fall because they believed that I could walk unaided, something that all the rest of the team involved in my care totally disagreed with but the second one was great and the things I learnt totally changed my life and the pain was under control until just over a year ago, I will always be in pain but it was at a level that I could cope with.

I needed very strong drugs to control the pain alongside copeing stratergies until I got RA last year, Im having surgery on Tuesday and Im hopeing that after post op pain my pain regime can be tweaked and Ill get back to "normal".

I still use the books that were prescribed by the course as refreshers and Ive lent them to a few people but its hard to learn somethings without help (and the books can be sooooo insulting in there anologies) I love what they call self hypnosis but its really a relaxation method thats great for resting your body when you cant sleep.

summerof0763

my pain clinic offered me pain management course,but because there is always a big turnout,they agree that i would not benefit from it,as would never be able to keep up with conversation,though pain clinic gave me a pile of leaflets yesterday to try and help me.
not looked yet as too much pain and cannot concentrate.
wish there was something strong enough to numb the pain!!

summerof0763

meant to say would not benefit me,due to being profoundly deaf

sunnyone

summerof0763 wrote: »

my pain clinic offered me pain management course,but because there is always a big turnout,they agree that i would not benefit from it,as would never be able to keep up with conversation,though pain clinic gave me a pile of leaflets yesterday to try and help me.
not looked yet as too much pain and cannot concentrate.
wish there was something strong enough to numb the pain!!

What have you tried for your pain?

And I did my second pain managment course mostly one on one because of my deafness.

summerof0763

sunnyone wrote: »

What have you tried for your pain?

And I did my second pain managment course mostly one on one because of my deafness.

hi sunnyone,i cannot remember which tablets have tried,i rely on my doc to say,too bad a memory,yikes
just now am on 50mg tramadol take 2 4times a day
50mg amitripyline 2 at night
diazepam when it goes into spasmns
and today have been given pregabalin 50mg 1x2times a day to see if they help,i pray they do.
i have never been offered pain management one to one in the 8yrs i have been attending clinic,dont know if they do it here as i know they have had to space appointments for clinic further apart,i now only get acupunture every 10 wks instead of every 5wks as they are so busy,which is a nightmare

snoop2008

Debbiedeboo, I do agreee that some people do underrestimate their conditions. I was one of them until my daughter told my social worker just how bad, my walking, sitting, incontinence, stumbling and doing daily tasks were. I use to feel ashamed about my incontinence, periods, and bathing needs and played down these conditions. I was adviced to tell my doctor who I hadn't seen for nearly 9 months. Again I never told the doctor how much I was struggling. Pride was also a major problem with walking! I found myself a home working job, and needed to get to a solicitor for identification purposes. That journey nearly cost me life. I managed the bus there but on the way back, the bus route had been diverted. Confused with pain, I couldn't tell where the hell I was!! I asked someone the nearest bus to where I lived , everyone said no buses. Well, I struggled to walk, and my hips were almost given up on me. 3 people asked if I needed help, as I was sweating. I didn't get a cab, because of my fear of being attacked. I tried hard not to show anyone that something was wrong. The point I am making is that people do play down their conditons. I was so embarressed to use a walking stick at first, ashamed to tell my doc about the other problems I was suffering from.

I also agree with pipkin. I really believe that telling the DWP about your good days as well as bad shows the whole picture. I wrote about the incident above. Even if a person CAN DO something, I have learned you have to show them how doing that activity causes you differculty!! and like my walking, although slow, I could not sustain that journey everyday. Likewise, I can cook, but can not stand for more than 10 minutes, finishing a meal is horrendous. I can have a bath, but need my carer to raise my legs using a electric bath lift, to get in and out. I can dry my top body but can not bend to do the bottom. I can not sit at hairdressers because of stiff neck of cervical spondylosis. All these activities I need help with.

I receive the HRC/HRM, because I told the truth of good and bad days and I didn't play down my conditions as I use to from shame of having a disability and getting the sack because I could no longer do my job.