Dla & epilepsy-- recived dbd33 letter does this spell bad news????

GlasweJen

Ah so this is specific to people with these disorders who have babies/toddlers and not applicable to people who live in a house full of adults.

sarahlouise210

GlasweJen wrote: »

Ah so this is specific to people with these disorders who have babies/toddlers and not applicable to people who live in a house full of adults.

yes although it may disturb your household, your night terrors do not pose any risk ... bummer I know !

GlasweJen

lol don't they? ever had a screaming somnabulant with conciouness issues running about the house? 2 broken arms, 1 broken jaw, 1 broken collar bone, 3 broken noses and more black eyes than i can count because of stuff that occurs at night, albeit over a space of 7 years or so, when i was younger they threatened to take me into care because they refused to believe my mum when she said it happened at night and no one knew it was any different to me normally screaming til i came into the room caked in blood or with bones sticking out my skin.

sarahlouise210

.........lol........ perhaps you should try for a higher rate then ! Sorry to hear its so bad.

GlasweJen

No I don't injure myself often enough to get high rate, if it was purely based on how often i had the whole house up they'd probably make a whole new category just for me.

vandanfc

The fact that you injure yourself at all should be looked at again - what if you hurt a member of the family who was trying to help you ? I would ask for a review.

vandanfc

Emma, can you ask to see your consultant, you really need your meds looking at and adjusting.

What may also be causing confusion is that usually absence seizures are seen in children and young people, very unusual in an adult, so this may be one of the reasons for DLA asking for more info. http://www.patient.co.uk/health/Epilepsy-Childhood-Absence-Seizures.htm

GlasweJen

been there done that with them, as far as they're concerned i only need help at night about 3 times a year which is nowhere near enough for me to get HRC and I agree with them. I wouldn't injure a member of my family, all of my problems come from falling over things walking into things or falling down stairs, I don't lash out at people or anything but I do have some interesting conversations (apparently i once told my mum i was catching a cloud to make curry with).

The house is jen proofed to some extent now, there is a baby gate, ikea hands on the corners of all the furniture and catches on cupboards to stop me getting into them, there's also lots of locks on the house doors because i used to be partial to taking walks outside at 4am.

vandanfc

Looks like you've got most things covered then.

[Deleted User]

vandanfc wrote: »

Emma, can you ask to see your consultant, you really need your meds looking at and adjusting.

What may also be causing confusion is that usually absence seizures are seen in children and young people, very unusual in an adult, so this may be one of the reasons for DLA asking for more info. http://www.patient.co.uk/health/Epilepsy-Childhood-Absence-Seizures.htm

i`m sorry but i`ve been in contact with many people with epilepsy over the last 11 years of all ages and absence seizures are far from unusual in adults,and the link you give provides confusing information.What can be said is that children who have only absences usually grow out of them in their late teenage years.Also the OP saw her consultant in sept 2009 it is not always a good idea to swap and change meds just for the fun of it.