Dla & epilepsy-- recived dbd33 letter does this spell bad news????

GlasweJen

ESA - employment support allowance.

I didn't realise that epilepsy was assessed differently to other disabilities for DLA purposes, can I have a link please? Also does it apply to people who suffer from blackouts and non-epileptic seizures?

Indie_Kid

GlasweJen wrote: »

Also does it apply to people who suffer from blackouts and non-epileptic seizures?

It should do. You just need to prove that you have care and /or mobility needs. The diagnosis (or lack of) doesn't matter.

GlasweJen

I already get DLA for blackouts but if they should take into account how it affects others then I should be on higher care because i have night terrors related to my condition and have the house up for most of the night on a bad day (which is 2 or 3 times a week). They argue that I don't need higher care because i'm not at risk when i'm snug in bed which is fair enough but if how I affect others is taken into account i've been on the wrong award for the last 6 years.

Indie_Kid

DLA is meant to be done on an average day; not bad day.

emmab2001

sorry i wrote a long post but it has got lost!!! so i'll try to answer some of your posts again!!

ok here i go again!!

i don't what people to misunderstand me but i was only been honest on my form when they asked is if needed help on the night i explained in the form before about my spina bifida and i also informed them about the few times a month that my husband helps me not only with my back issues but with the fact that i also on occassion can suffer with night seizures i did not write that i needed help EVERY night or just write that it was a bad night i made expamples if my needs on a good day and on a bad day
does that make sence????

i have been so so many meds i started on ( excuse the spellings) lamotrogine then moved to epillim the combined epillim and troprimate now just high does of troprimate but it's not working

at the moment i have no respite from my attacks they happen every day if not full seizures them the absence ones which in truth scare me more

i can not thank you all enough for all you time and posts

GlasweJen

yes i know that sh1305, i used to fill these forms in professionally and 2-3 times a week, is usually enough to qualify for the next band up, especially when the condition is unpredictable like mine is. I have never heard of exceptions for epilepsy though and would like a link.

[Deleted User]

emmab2001 wrote: »

thank you so much for all your replys i filled the form our comparing both my best and worse days but i thought it would be best to put down both!!

i have since a fall down the stairs at aged 18 had pain every day in my back they put this down to an aggrevation of the spine and the spina bifida i take pain relief every day but have been determend for this never to affect me other than having a few bad days a month i do ok on pain meds and i get stiff during the night and find it hard to get out of bed but my hubby helps me

i have never before the epilelpsy was diagnosed tried to claim anything.


i think they have questioned it due to the fact i have not seen the consultant since sept and my condition has been getting worse i will contact the dla on monday and inform them of the change in my condition and mention my gp has been my primary contact for the past 4 months while i wait again for the consultant!!

have any fellow epilepsy sufferers claimed dla with success???

i will find it so frustraiting if i'm turned down as for almost a year i have been unable to work or fully look after my children which hurst more than anything and my husband can not work due to the children and me needing constant supervision

thanks so much again for your time and help!!

many people with epilepsy claim dla successfully,i for one
I did pick up on what you said about getting an aura prior to the tonics(metal taste in mouth)they would have picked up on that as well,how often do you have absences and are they without warning?
The fact that you havent seen a consultant for 4 months is irrelevant,i only see mine at best evry 12 months for meds review.
good luck

[Deleted User]

GlasweJen wrote: »

ESA - employment support allowance.

I didn't realise that epilepsy was assessed differently to other disabilities for DLA purposes, can I have a link please? Also does it apply to people who suffer from blackouts and non-epileptic seizures?

Jen you are right in saying that its not assessed differently for dla purposes as dla is all about care and or mobility needs not the condition

Indie_Kid

Jen - link to disability handbook. http://www.dwp.gov.uk/docs/ch14.pdf

sarahlouise210

Epilepsy in Parents of Young Children 14.10.1 A parent (mother or father) with epilepsy, who is caring for an infant or young child may pose a risk. In the event of an attack occurring without warning the parent may drop or fall upon the child. In cases where the risk of this happening is considerable, the parent may need supervision through the day. The risk becomes much less as the child becomes more independent.

extract from Disabilty Handbook