Too little to live on .I just cant manage .

welshmoneylover

Where's the OP gone to?

sunnyone

nono wrote: »

No I didn't mean that. Disability is not black and white.
BTW I know how serious high rate care is, I''m doing all I can to stay off it no matter how much pain it causes me.
With respect I wasn't suggesting my comment should be a new guideline, I was talking about my particular case which I won't bore you with.

What a stupid sentance from someone who hasnt a clue about DLA.

bestpud

nono wrote: »

BTW I know how serious high rate care is, I''m doing all I can to stay off it no matter how much pain it causes me.

What on earth are you talking about??

sunnyone wrote: »

What a stupid sentance from someone who hasnt a clue about DLA.

Quite!

As far as I am aware, it is decision makers who decide the level of each element you qualify for and I can see no reason whatsoever for someone trying to stay off the care element but welcome the higher rate for mobility!

I mean, why would you??

nono_2

I mean I am doing all I can to hang on to my independance. I know this is not the same for most people but it would be easy for me to give in and let someone else do everything for me. It hurts a great deal to do the simplest things like get dressed, get something out of a cupboard or stand up unaided but in MY CASE I can physically do those things but it hurts an incredible amount so I could say I can't do it and let someone else do it for me but that bit of independance is important to me so I struggle on crying in pain and taking 50 times longer to do it than it used to. Obviously it is up to the decision maker but me doing something and not doing something effects that decision. I will not lie on the form nor when the Medical Services doctor comes to see me at home lying in bed will I tell him quite how hard something is to do or that I can't do something when I can but hurts a ridiculous amount or takes a ridiculous amount of time to do. I don't need the money, if I did maybe it would be different.
I realise this sounds stupid but my disability is stupid too. I'll tell you in the hope you may understand. Several years ago I broke my back in an accident at work, this break will not unite and the previous attempt to unite it failed after 6 months. I am left with at 5-10 ml gap (changeable apparently) between each edge of the fracture, which, when I move or breathe, sometimes comes together lightly or touches and rubs sideways on itself. This leaves me in constant aggonising pain and when the coming together happens feels like the knife in my back is being twisted. 500mg of morphine daily, amongst many other things, only just helps. I can't stand, walk or sit, including a wheel chair, without being in such pain I could scream but I have to, to keep my self sane, even if it is for 60 seconds a time.
If I was reading this I wouldn't belive someone could live like this with very little help but having a surgeon who I have great faith in and will be cutting me up shortly helps. If this next operation doesn't help then I will need more help because I won't be able to carry on like this.
Also being on such large quantities of painkillers does leave me acting very stupidly but that doesn't mean that I am. I would say calling someone who is suffering in anyway stupid is not only more stupid but a lot of other things too.

Sorry op for high jacking your thread, I felt compelled to explain myself.

bestpud

nono wrote: »

I mean I am doing all I can to hang on to my independance. I know this is not the same for most people but it would be easy for me to give in and let someone else do everything for me. It hurts a great deal to do the simplest things like get dressed, get something out of a cupboard or stand up unaided but in MY CASE I can physically do those things but it hurts an incredible amount so I could say I can't do it and let someone else do it for me but that bit of independance is important to me so I struggle on crying in pain and taking 50 times longer to do it than it used to. Obviously it is up to the decision maker but me doing something and not doing something effects that decision. I will not lie on the form nor when the Medical Services doctor comes to see me at home lying in bed will I tell him quite how hard something is to do or that I can't do something when I can but hurts a ridiculous amount or takes a ridiculous amount of time to do. I don't need the money, if I did maybe it would be different.
I realise this sounds stupid but my disability is stupid too. I'll tell you in the hope you may understand. Several years ago I broke my back in an accident at work, this break will not unite and the previous attempt to unite it failed after 6 months. I am left with at 5-10 ml gap (changeable apparently) between each edge of the fracture, which, when I move or breathe, sometimes comes together lightly or touches and rubs sideways on itself. This leaves me in constant aggonising pain and when the coming together happens feels like the knife in my back is being twisted. 500mg of morphine daily, amongst many other things, only just helps. I can't stand, walk or sit, including a wheel chair, without being in such pain I could scream but I have to, to keep my self sane, even if it is for 60 seconds a time.
If I was reading this I wouldn't belive someone could live like this with very little help but having a surgeon who I have great faith in and will be cutting me up shortly helps. If this next operation doesn't help then I will need more help because I won't be able to carry on like this.
Also being on such large quantities of painkillers does leave me acting very stupidly but that doesn't mean that I am. I would say calling someone who is suffering in anyway stupid is not only more stupid but a lot of other things too.

Sorry op for high jacking your thread, I felt compelled to explain myself.

But you don't actually need to have someone do all this for you to be entitled to the money!

It is to cover all the extra things you need because of the disability; not just a carer.