Menieres disease & tinnitus

Chia

magoogy wrote: »

ooh who let the holier than thou people in?

i could get the money but i wont
i could claim but i wont
im not rich but wont abuse the system, etc

well i could go on about what is bringing our benefits system to the ground but wont....i get dla and i blooming appreciate it cos it pays for my taxis as i cannot walk around by myself - whats so wrong about that?

some people need to stop judging.....

oh and if you ever get menieres you will realise it isnt a minor ailmont...!!!!!!!!!!

OK, I'm not hating, and I'm all for legitimate DLA claims being paid out, but in another thread didn't you say you take taxis because you are afraid of dogs? That is not the same as "cannot walk around by myself" in terms of what the government should be paying for. I'd bet that if you weren't enabled to take taxis, you'd find a way to overcome your fear/phobia.

Savvy_Sue

Step away from the keyboard ...

We're talking about an affliction which varies in its severity, and from one day to another. And sufferers may have other disabilities / illnesses as well.

Given that DLA isn't awarded lightly, let's agree that those who feel they need it should claim, and those who don't feel they need it shouldn't, thus saving themselves much angst and anxiety while they wait for the claim / renewal / appeal to run its course.

magoogy

while i do have a major fear of dogs and there is no way i would/could walk outdoors due to them the specialists also beleive there could be some connection too to the fact i cannot actually hear the dogs if they were to come to me and thus it makes my fear worse...my deafness/menieres, etc makes me panic so much more as it isolates me more...

as for if i had to pay for the taxis myself i would still find a way - how dare you state that i would soon overcome my fear!!! its not something you can turn on and off like a tap.....i also only get low in mobility so it doesnt actually go far.....

oystercatcher

Just found this thread. I have vertigo and balance problems. Still waiting for a diagnoses, have been unable to work for 7 months. Am finding it difficult to carry out even the most basic tasks. It's a very frustrating condition.

There's a useful forum www.dizzytimes.com with lots of information. Some of the members there recieve DLA for this very disabling condition. Some of them still manage to work. It can affect people in different ways and with varying severity.

Savvy_Sue

OK, while we're sharing useful information about dizzy sites, there's another one here for labyrinthitis, which is where dizzy times sprang from, I see.

I wish I'd known about them when I was very badly affected. Thankfully mine was BPV which the audiologist sorted out for me, and it's never been as bad since!

ilovedevon

harlina wrote: »

if everyone claimed for such ailments and got the money dont u think this country would be in an even worse state than we are in now there are amputees out there that dont claim ect ppl in real pain and real disabilities i have no problem with claiming I could deffo claim but wont and i aint rich

'real disability' meaning something you can see?
There are many disabilities which are not visible, ppl on this thread are suffering from some, please consider this. :T

purplegirluk1

I have just read this and think it might be the answer to my ear problems and weird dizzy spells! I have had tinnitus in my left ear for about 6 years, been through ENT and offered a gromit. I didn't want this as my sister has had so many and her ear is so scared she can't have any more. I just live with the spongey sound in my ear all day, its not the worst thing I have. But recently, the last year maybe I have been having dizzy spells, mostly when I am out of the house, I will be walking along and suddenly it seems like everything in my peripheral vision is swinging past me. I have a feeling like i'm walking too fast or i'm on a really fast travelator, does that make sense? Does that sound like a symptom of miniers? I would love to be able to do something about these funny moments. I had put it down to my M.E but I often put anything down to that when it probably isn't.

Errata

Meniere's is a syndrom which has three components: a degree of hearing loss, tinnitus and dizzyness/problems with balance. Bad attacks of dizzyness/loss of balance tend to come and go in clusters of attacks when the sufferer may also feel nauseous and sometimes vomit, and feel generally not very well at all.

I have had it for over 20 years and this morning did a great header into the paper recycling box which lives in the front garden, bruising my knee and my ego ! Will I ever learn caution ? Probably not.

oystercatcher

Purplegirl, there are several illnesses which can cause problems with dizziness and balance just as you describe. It can be very limiting to be like this.
I have now been diagnosed with BPPV and vestibulopathy. I had to go privately to get a diagnosis in the end as not many ENT doctors specialise in balance disorders.
It's worth going back to your GP and describing the balance and dizziness and asking for another referral. As far as I know grommets aren't used to treat this condition.
The www.dizzytimes.com site has loads of information. I learned loads there also the labrynthitis site someone else mentioned.

Edited to say YES, your symptoms make perfect sense and you're not alone!

louisebt

I am 32 and have been unable to work for 8 years with various problems... I was diagnosed with Meniers some years ago after extensive testing.... i had all the symptoms, dizzyness/sickness/hearing loss etc.... I went private to see an ENT and eventually went private again to see a neurologist as i'd moved, had to change hospitals for appointments and no one could agree... in the end I was diagnosed with M.E.... I also have hearing loss, fatigue, i'm an agrophobia (thats another story) and only really leave the house to walk my dogs or sometimes I go to the shop on the end of the street (they know my problems and know how to help me if i panic/black out).

I am on incapacity and lower rate dla for care and mobility, i am on it indefinately.

I also have a severe fear of people and because of my vertigo I cant travel so if i do leave the house where i go is always in walking distance.... i cant go visit friends, not even neighbours, i dont feel 'safe' in their houses...

Its hard going and very lonely at times, I feel for each and every one of you suffering these problems