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  • oh i hope my post hasnt caused a rift here ( sorry if it has )
    i dont get to post much here due to ill health buti just wanted to put my point across from someone who is totally reliant on my hubby/carer and my DLA care componant and help people understand why this matter is so important to everyone who will be affected by ANY changes that happen either now or in the future
    the media and papers do not help in the way people on DLA are portrayed, you know i feel ashamed to be on benefits, i hate it, because i feel like a scrounger (although i had 3 part time jobs before i came ill and my hubby 2 jobs)
    but if these changes go through i dont know what will happen to us.
  • misty_blue wrote: »
    oh i hope my post hasnt caused a rift here ( sorry if it has )
    i dont get to post much here due to ill health buti just wanted to put my point across from someone who is totally reliant on my hubby/carer and my DLA care componant and help people understand why this matter is so important to everyone who will be affected by ANY changes that happen either now or in the future
    the media and papers do not help in the way people on DLA are portrayed, you know i feel ashamed to be on benefits, i hate it, because i feel like a scrounger (although i had 3 part time jobs before i came ill and my hubby 2 jobs)
    but if these changes go through i dont know what will happen to us.
    Misty don't worry and nobody thinks you're a scrounger, you are entitled to the benefits you're claiming. It is very unlikely that genuine claimants are going to end up without, I think there is some scare mongering going on. It is good that they are going to look at DLA as there will be some claimants that should not be getting it, but you obviously do need it.
  • I am really new to this forum, and don't quite know how to even post a message but thought this subject deserved a reply, using this box!!

    I am a member of Benefits & Work, purely because I have been campaigning for years and years for my sister to get her deserved payments. Last week took her to a ESA medical assesment what a fiasco, humiliating too, another fight on our hands no doubt. When I read the article about DLA/AA my heart sank again. We have to get the country behind us on this one. Will be contacting my MP soon.

    Can someone tell me how to post a message from scratch please?

    Thanks
  • Funnily enough i have just posted on dis and dosh about this having received the email from b&w,I have however bee aware of these plans for some time,and a green paper will be published on november 13th following consultations,and believe it or not some disability groups appear to be in favour of this change.However initially these changes are expected to affect AA and not DLA,but if they can get this into law then next step will be DLA,it is estimated that £1 billion a year could be saved.
    Now I recieve lrm and mrc for my severe epilepsy,but I cant for the life of me see what would be gained by this being paid to social services or even god forbid some"outside"agency,what are they going to do for me that my family dont already do care wise,and how will they provide help mobility wise,as what I need is someone with me everytime I leave the house,will i be limited to 2 15 minute "trips" a week under supervision from mobility/care R US??
  • nogginthenog
    nogginthenog Posts: 2,649 Forumite
    Part of the Furniture Combo Breaker
    edited 6 August 2009 at 11:04AM
    healy wrote: »
    I realise it is not perfect but would hope that those in real need would get more help from Social Services if the change happens.

    Note I said hope because the money from peoples DLA could just disappear into a big black hole.

    If This DID eventualy come to fruition,where Social Services took control of disabled peoples care,..Freedon of choice would be taken away from disabled people.
    Child of a Fighting Race.
  • Lady_K
    Lady_K Posts: 4,429 Forumite
    Part of the Furniture Combo Breaker
    edited 6 August 2009 at 8:40AM
    misty_blue wrote: »
    sorry healy but one size does not fit all,
    yes there are a lot of dodgy claims, but some genuine people do NOT get the help now when they need it from either DLA or social services who will be responsible for peoples care should these changes happen.

    take my life for example, i need 24 hour care, i am bedridden, doubly incontinent and totally reliant on my husband/carer for my needs, even typing this.
    my hubby worked 2 jobs until i took ill, i have blackouts, cannot feed myself, wash or dress myself and need my incontinence pads changed 5 times a day, i need frequent washes to prevent urine sores
    who is going to care for me if i lose my care componant, and what happens to my hubby, he is my carer, i need him 24 hours a day 7 days a week
    i had carers come in from social services at one point,
    i was allowed 30 minutes in the morning and 1 hour at night, who the hell is going to do all the things my hubby does 24/7, not social services or any one else i can guarantee you that.

    That is the way I was thinking when I recieved the email, if they change things completely over to the dla and social services it will surely cost them much more money to provide that kind of help, its imposible really. I just hope it gets worked out fairly in the end but I can imagine a lot of people not getting the full care they need this way.

    I get a lot of help from my daughters and some family and dla and social services would not be able to cover all of this, so to me it would seem that dla and social services would keep the money but partners, carers and family will still have to do most of the work anyway and you will have the added stress and worry of lack of money

    While they are changing all of this I think there should be a separate assesment done in needy cases for other kinds of help like extra fuel costs, cleaning, gardening ect because its obvious disabled people often need these things as they cannot do them themselves
    Thanx

    Lady_K
  • purplecatlover
    purplecatlover Posts: 6,628 Forumite
    Part of the Furniture 1,000 Posts
    they have had over 5000 people sign up to the campaign in the first 24 hours.....
  • mumoftwins
    mumoftwins Posts: 2,498 Forumite
    they have had over 5000 people sign up to the campaign in the first 24 hours.....
    And they were hoping for 1,000 by the end of August! Just goes to show how much this could affect people and how strongly they feel about the proposed changes :confused:
    Christians Against Poverty - www.capuk.org
  • Healy
    I really hope that sometime in the future you never need any care because of a disability. I have been disabled for the past 4 years after a major accident causing me to be a paraplegic in need of care and help. I was in the army fit well and serving my country. I get DLA care and mobility if the benefits are cut and the money goes to Social Services and controlled how the money is used for services only I hope you can come and pay my bills I get a half pension for the forces as the accident did not happen on active service and had 10 years to retirement. I rely on the DLA to provide a car with adaptations and the care portion to pay my bills. My wife is my carer but has to work to make ends. If the gvnmt do as they want every disabled person whether legitimate or not will have the money cut. There are no plans to replace it and no green paper to say how the money is to be spent only that Social Services will use it to provide services. Does that mean the Council Tax will reduce as a portion of that goes to pay for social services? It is not a perfect world I agree and I still have to have medicals to prove I am still a paraplegic??? I failed once because the ATOS Medical ticked a wrong box and was classed as fit to work and fully able-bodied.
    I know that some people fradulantly claim however the gvnmt do try and crack down on this quite vervantly. However for the 100 Million fradulantly claimed, there are companies in the UK that operate and trade fully and only in the UK but use the Tax Havens of Jersey or other tax havens and evade over a billion per year in corporate tax.
    The tax office themselves rent ALL of their offices from a company that was formed in the UK but moved its hq to Jersey to evade the tax paid by the tax office. This is a greater amount for any gvnmt to try and rectify but it is easier to persecute the individual or the less able in society than go for the big bucks.
    Look at the bigger picture Healy LOOK AT THE BIGGER PICTURE
  • mumoftwins
    mumoftwins Posts: 2,498 Forumite
    massey7466 wrote: »
    Healy
    I really hope that sometime in the future you never need any care because of a disability. I have been disabled for the past 4 years after a major accident causing me to be a paraplegic in need of care and help. I was in the army fit well and serving my country. I get DLA care and mobility if the benefits are cut and the money goes to Social Services and controlled how the money is used for services only I hope you can come and pay my bills I get a half pension for the forces as the accident did not happen on active service and had 10 years to retirement. I rely on the DLA to provide a car with adaptations and the care portion to pay my bills. My wife is my carer but has to work to make ends. If the gvnmt do as they want every disabled person whether legitimate or not will have the money cut. There are no plans to replace it and no green paper to say how the money is to be spent only that Social Services will use it to provide services. Does that mean the Council Tax will reduce as a portion of that goes to pay for social services? It is not a perfect world I agree and I still have to have medicals to prove I am still a paraplegic??? I failed once because the ATOS Medical ticked a wrong box and was classed as fit to work and fully able-bodied.
    I know that some people fradulantly claim however the gvnmt do try and crack down on this quite vervantly. However for the 100 Million fradulantly claimed, there are companies in the UK that operate and trade fully and only in the UK but use the Tax Havens of Jersey or other tax havens and evade over a billion per year in corporate tax.
    The tax office themselves rent ALL of their offices from a company that was formed in the UK but moved its hq to Jersey to evade the tax paid by the tax office. This is a greater amount for any gvnmt to try and rectify but it is easier to persecute the individual or the less able in society than go for the big bucks.
    Look at the bigger picture Healy LOOK AT THE BIGGER PICTURE


    Totally agree with you massey, also it is extremely dificult to be awarded DLA as so much proof of your disablilites are required from Drs, Consultants and the like. Perhaps they would be better looking at other ways of saving money such as you suggest, rather than hitting those most vulnerable and who need it most.
    Christians Against Poverty - www.capuk.org
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