Anyone who suffers from Chronic Pain should sign this 2 get MPs to take notice of us.

danielfulshaw

Anyone who suffers form chronic pain can sign-up for their patient petition & newsletter

http://www.paincoalition.org.uk/form3.html

It says that they work to bring the issue of chronic pain to the attention of MPs; about time! So the more signatures the better.

sharon59

I have signed-there are not enough resources in uk -we seem to be left to fend for ourselves.shall forward to others in my fibro support group.

colin13

signed petition hopefully it will bring pain to fore front of treatment

sorted_2

I have signed, hope it helps all of us who have to live our lives in pain.

danielfulshaw

Great! - the more that sign I think, the better.

foxxymynx

We need to speak to our MPs and make them aware of what is wrong with the NHS and Chronic Pain.

The NHS doesn't get enough funding to deal with all of the referrals in a timely manner. There are no targets for the NHS to treat people with Chronic Pain. Why? Because chronic pain doesn't directly kill you! However, it's a huge, huge political issue! If more people were treat, even with decent pain management courses and those people were informed correctly about help available to go back to work, more people who are currently unable to work because of chronic pain, would be able to do some kind of work, which means more taxes getting paid, less benefits being dished out etc etc.

Pssst

Why,on the pain coalition website,is there a specific menu tab for pain in women?

danielfulshaw

..looks like they had a specific campaign last year about pain in women - it is now a medical fact that women feel pain differently to men

cally6008

Thanks, I have posted this on the HMSA forum as well.

danielfulshaw

Thanks...for the uninititaed, what's the hmsa forum?

cally6008

Hypermobility Syndrome Association.

What is the Hypermobility Syndrome?

Connective tissue proteins such as collagen give the body its intrinsic toughness. When they are differently formed, the results are mainly felt in the "moving parts" - the joints, muscles, tendons, ligaments - which are laxer and more fragile than is the case for most people. The result is joint laxity with hypermobility and with it comes vulnerability to the effects of injury.
The Hypermobility Syndrome is said to exist when symptoms are produced, a state of affairs that may affect only a minority of hypermobile people. It is probably more correct to refer to Hypermobility Syndromes (in the plural) as a family of related genetically-based conditions which differ not only in the particular protein affected, but also in the degree of difference of formation. Thus at one end of the spectrum are the diseases with the potentially serious complications such as Marfan Syndrome or Ehlers-Danlos Syndrome Vascular Type (formally EDS IV). At the other end are what is now called on good evidence Benign Joint Hypermobility Syndrome (BJHS) and Ehlers-Danlos Hypermobile Type (formerly EDS III), which may be one and the same. These may cause troublesome and persistent problems, but do not affect the vital organs and thus do not pose a serious threat to life.
Although there is still much to learn, understanding of these conditions is advancing and the knowledge gained can help people deal with the various aspects.

http://www.hypermobility.org (be warned, survey pop up on first page)