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The Muscular Dystrophy Website is a mine of information:
www.muscular-dystrophy.org
and
www.actionduchenne.org (duchenne being the most common and severe type of md)0 -
I'd like to add WWW.hemihelp.org.uk
for children with cerabal palsey and hemi-plegua
This site (forums) has saved me a fortune on tips on specific things to buy and good advice from parents that have wasted money on items that sound good but generaly a waste of money.0 -
http://www.mdf.org.uk/ - MDF The Bipolar Organisation
http://www.bbc.co.uk/ouch/ - Ouch! - The BBC's disability "section"We may not have it all together, but together we have it all :beer:
B&SC Member No 324
Living with ME, fibromyalgia and (newly diagnosed but been there a long time) EDS Type 3 (Hypermobility). Woo hoo :rotfl:0 -
Not sure where this should go so will try here? How about groups/charities that have forums or are just good as information points? I've found special kids in the uk great - it organises family events and has lots of other info and the other charity, doesn't have a forum but is good for info/lending library/grants is Cerebra. http://www.cerebra.org.uk/ and http://www.specialkidsintheuk.org/0
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What a GREAT post thank you .~We are all going to hell and guess who Is driving the bus~*Norn Iron club Member 294* (Hi, we’ve had to remove part of your signature. If you’re not sure why please read the forum rules or email the forum team if you’re still unsure - MSE Forum Team)0
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Here's another link - not a forum as such but a useful charity who help disabled people get back into work:
http://www.shaw-trust.org.uk/page/5/0 -
Could you add please the following site, it's American but it is so helpful. It was started by Christine who has Lupus and everyone disabled should read her 'The Spoon Theory'.
http://www.butyoudontlooksick.com/0 -
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descartesmum wrote: »Could you add please the following site, it's American but it is so helpful. It was started by Christine who has Lupus and everyone disabled should read her 'The Spoon Theory'.
http://www.butyoudontlooksick.com/If your dog thinks you're the best, don't seek a second opinion.;)0 -
Thanks Foxy what a great idea , to have a disabled forum on here to so that we can all help each other when we find something out.
Kindest Wishes
Angel x0
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