Turned Down for MRC DLA But Fit Criteria

Titch89

The text on a computer is much easier to read than text in a book.

dmg24

Titch89 wrote: »

The text on a computer is much easier to read than text in a book.

You have been given numerous ideas as to how to read text from books. What do you think other people do?

You stated earlier that we were not answering the questions that you had asked, yet you have never clarified what the questions were. Care to do so now?

~Chameleon~

I was checking your profile and at 11:58 you were still viewing the main benefits forum, so it took you less than 60 seconds to become aware of a new post to your thread, and then read and reply to it, all with your poor vision?? I rest my case! :rolleyes:


You also failed to answer why you can't get glasses with reactive lenses and anti-glare coating to help with your photophobia?

Casey1709

Titch89 wrote: »

Why can't I work? Because right now, it's impossible to actually go out with getting a sore head & eyes. I'm also rarely (well, usually only evenings) fully awake.

.....

How do you plan to cope with doing 2 courses at college then?????

briona

Titch89 wrote: »

Why can't I work? Because right now, it's impossible to actually go out with getting a sore head & eyes. I'm also rarely (well, usually only evenings) fully awake.

Where have I ever said that I'm going to spend my life on benefits? Obviously, I' just going to go college for one year, go to uni for three years & get myself in debt and then not bother to work. Really worth doing, isn't it? :rolleyes:

You may not have SAID that you are "planning to spend a life on benefits" (as you keep repeating) but you soon contradict yourself (as indeed you have above) by insisting that you "can't work". If you can't work then you will have to be on benefits in order to survive. Or am I missing something? Oh and you never replied to my comment on VAT!

Have you checked out this website: http://www.nystagmusnet.org/

They have a forum for people with Nystagmus, which actually makes for quite interesting reading. If you check out the "What job do you do?" thread on the Employment board it looks as though there are many opportunities available to you (well far more than the FOUR that you claim are the only things available to you).

On another thread someone mentions contacting Remploy and Action for the Blind (incidentally suggestions made by another user on the thread you had deleted). There is nothing stopping you from contacting them. And because of the DDA, as a disabled person you can tick a box on all job application forms requesting an interview.

The real problem though is that you don't WANT to work. Instead of being grateful for suggestions, you simply repeat the same old things and put more barriers up as to why this would never work for you... Sadly, the "poor me" attitude wears thin very quickly. Like I said before, you're 19 with your whole life ahead of you but if you don't make any effort now to get out and do something with it, the years will simply drag by...

Casey1709

Titch89 wrote: »

They've not said anything. They are under the impression that they can't do anything to help me. Of course, I know they can't (currently) give me some sort of magic cure. Yet, they're telling me that there's no form of equipment (tinted/dark glasses, magnifying stuff, etc) that will work.

Err... didn't you say on one of your deleted threads that the eye infirmary had said you had to have a 22" laptop (£1200) which you then expected the college to pay for??????

SuziQ

Why can't I work? Because right now, it's impossible to actually go out with getting a sore head & eyes. I'm also rarely (well, usually only evenings) fully awake.

Where have I ever said that I'm going to spend my life on benefits? Obviously, I' just going to go college for one year, go to uni for three years & get myself in debt and then not bother to work. Really worth doing, isn't it? :rolleyes:

You say you can't work-then imply you will once you finish Uni-so what will have changed in that time.

It seems to me you actually haven't researched the very real and effective practical solutions to improving your vision.

I have suffered with sevee migraines all my woring life brought on by strip lighting-I also get a sore head and eyes,but have to take painkillers and get on with it! This is the first time in my life I haven't worked (so 30 years employed) and it's driving me mad,I would much rather be at work achieving something.
I have Total colitis-which means I spend long periods in pain and with diarrhoea (sorry-too much info!) I also suffer with arthritis-autoimmune conditions tend to run together,and suffer from bouts of Iritis-at those times I have to have drops put in my eyes to expand the pupil so I can't even focus and have dreadful pain and totally red eyes-I loo hideaous but I have still had to go to work with it,despite the pain,humiliation and poor eyesight which mean I have to walk rather than drive to my places of work.

Austism is totally different to what I've got.

Yes and it varies from one individual to another too. My son has problems communicating,understanding what other people say to him,poor concentration levels and has no empathy. He finds it really difficult to mix with other kids as he gets in their faces and has no perecption of personal space. He has an enormous hill to climb,please don't belittle other people's disbility as then you are being a hypocrite!


Nystagmus Network
Helpline: 0845 634 2630
Email: [EMAIL="info@nystagmusnet.org"]info@nystagmusnet.org [/EMAIL]
The Nystagmus Network was set up in the mid-1980s and has over 800 members. The two main aims of this national self-help group are to support all those affected by nystagmus and to encourage the search for a treatment and a cure. Services include a telephone helpline, meetings, talks, booklets and a range of information leaflets.

Here is the info re challenging a decision re DLA

http://www.rnib.org.uk/xpedio/groups/public/documents/publicwebsite/public_challenge_decision.hcsp

Glyndwr_2

Titch89 wrote: »

I have no idea if they know about my photophobia, but it is generally a side affect of having Nystagmus.

You, yourself say:

Originally Posted by Titch89
Nystagmus is different for everyone.

How do you expect them to help you then, or make any suggestions, if you don't bother telling them about it? They aren't mind readers.

In one of you previous threads (conveniently deleted), you stated that you only just failed to achieve the required vision to be able to drive, yet you also say that you can not see when you are out and therefore bump into things and need help. If your eyesight is that good that you can almost drive, then you can not need help when you are out. If it is that bad that you need supervision when you are out, you can not almost be able to drive.

You do like to contradict yourself.

I have worked with totally blind people & those with almost no vision (e.g. can distinguish some light/dark). Some have had a dog, some just use canes. They have been able to fully function in the office, with some adaptions, and have taken a full part in office life and social life.

Plymouth has extensive bus routes which cover all of the city and have good, regular serivces.

Have you looked into the mobility schemes which provide cheap transport-all my local areas run this through the local council and provide taxi services for a nominal fee. If you don't qualify for these schemes then you need to accept things are not as bad as you think.

Your response:

They only give stuff like to people in wheelchairs. I did look into it (generally because if I'm in another city, I spend loads on taxis) but it appears that no such thing exists.

So why won't these people help you?
http://www.plymshopmobilityct.fsnet.co.uk/
They take people on pre-booked journeys for either medical or social purposes. You do not have to be in a wheelchair to use their services.

If you want the large print page then use this link:
http://www.plymshopmobilityct.fsnet.co.uk/ccarlrge.htm
What excuse will you use this time?

~Chameleon~

As I said on the other thread, which has now been deleted, I think we're wasting our time trying to help this person as he/she appears to have absolutely no intention of trying to improve their situation and will come up with an excuse why not to try any of the suggestions we make.

SuziQ

I have a feeling that when anyone posts anything helpful,Tich sits there disecting it and looking for the 'catch' or proof it's of no use to her,rather than getting excited and thinking 'hey great-this could be really useful!' Posting on here for help only meant one thing to the OP-agree with me or keep quiet.