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Hidden Disabilities Time To Fight Back

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  • Oh gosh I so see how everyone else is now...CelticMS I'm so sorry your neighbours are aloof. I do worry about where it is all going...
    A few weeks ago I was in A&E (with partner - he's fine now) - anyway - I stood at the desk with stick, a lady came in carrying an obviously sick child in her arms - not one person - male or female - got up and offered her a seat --much lesser one - I went to the vet with my cat (me with stick carrying basket in other hand) again no one as much as got up to open the door...so when I left (naughty naughty) I left it wide open .....I realise times change - but what are the new manners? Do they have any?? I'll stop now or I'll type a rant !!! (48 going on ......)
    Mx
  • Ames
    Ames Posts: 18,459 Forumite
    I've had a lot of the same experiences. Glares when parking in a disabled bay or using lifts.

    I used to go on another forum and spoke about my boyfriend moving in so he could care for me, and then that I was going to mystery shop gigs, and was asked how I could go to gigs if I couldn't even cook a meal. (Disabled seating area, is how). I found it hilarious that being unable to cook a meal to them was the most disabled you could get!

    I too use my stick partly as a visual clue that there's something wrong.

    One of the best was from social services when I was trying to get an assessment. They gave lots of excuses, the best being 'if you take medication for the bipolar then you wont have the ME problems'. !!!!!!?!

    A couple of weeks ago I got a community care grant giro. I gave it to my bf/carer to cash but he didn't have my ID, so he came out to the car to fetch me. The cashier at the post office wouldn't let me go straight to the front of the queue, even though bf had already queued once. By the time I'd stood in line to get to the front I was about to collapse.

    And don't get me started about the discrimination I faced at university!

    What/where is the disability thread that people are complaining about, I must have missed that completely.
    Unless I say otherwise 'you' means the general you not you specifically.
  • pipkin71
    pipkin71 Posts: 21,821 Forumite
    Interesting thread.

    I have seen a lot of stigma for those with a hidden disability lately, not least on the locked thread in DT.

    I have a physical disability. At the moment, I can't walk without aides, and even though it's a struggle, I use crutches [the hospital did offer me a zimmer frame but my own :o:o:o saw me refuse!]

    It is often people who don't understand your disability that will shout the loudest that you're not genuine, but it is their own ignorance that is at fault.

    Highlighting the problems of a hidden or physical disability, and making people more aware that just because they don't understand something doesn't mean a person is a fraud would be a start.

    Pipkin xxxx
    There is something delicious about writing the first words of a story. You never quite know where they'll take you - Beatrix Potter
  • mummytofour
    mummytofour Posts: 2,636 Forumite
    Hi guys!
    Im a mum of 5, one has ADHD and ASD and another 3 have ADHD traits. I am dyslexia and my mum has schizophrenia and has done since before I was born.

    The amount of abuse I have had from society over the years could of made me bitter and twisted. As a child the mental and verbal abuse was horrific. I had a 'mental' mum, life sucked. I have tried the best for my kids and yet they get bullied as my son has ADHD and ASD children take it out on his sibling ( in a verbal way more than any other way)

    The thing is I just do not see societies negative views. When I see somebody who is acting out of the norm ( whatever that is) in my mind there is a reason, I do not understand why others don't see this? I know that many ppl dont have the experiences of hidden disabilities but that's not so much the point, the point is everybody is an individual and society as a whole keeps seeing the rest of society as a herd of sheep all to be the same, treated the same.

    The key is education and the only real way to educated is to educate from the bottom up. The little children in nursery and reception need to be taught and exposed to hidden diabilites and disability on the whole, within a generation the out look could be brighter but only if we can help shake this prejudice that rules at the moment.

    I forgot to say that I decided if you cant beat em join em.... I will kick !!! in less that 3 yrs when (praying) I qualify as a a social worker. I promise I will fight the corner for all my service users :-)
    Debt free and plan on staying that way!!!!
  • It's a tough one, hidden disabilities are by their nature, hidden, and it's not as if people with hidden disabilities want to go around shouting from the rooftops about their problems.

    On the one hand you need to make services available to everyone by offering facilities for disabled people, but on the other you don't want the facilities to be abused by people who don't need to use them, so how do you make sure the facilities aren't being abused?

    It is also impossible for everybody in the country to know about every hidden disability, I doubt even doctor's could ever know about every disability. It always makes me wonder when people say they are trying to raise awareness whether it's actually the right thing to do or does this constant bombardment of awareness raising just confuse people even more?

    I don't think the solution lies in raising awareness to specific disabilities, but to somehow try and make people more tolerant and to assume people who are using disabled facilities actually need to use them and not just assume someone is guilty until proven innocent. I'm sure the vast majority of disabled people don't mind being asked in a civil manner why they are using a service, it's when people launch in to a tirade of abuse or just give dirty looks that make people feel uncomfortable.
    I've given up trying to get my signature to work with the new rules, if nobody knows what the rules are what hope do we have?
  • mummytofour
    mummytofour Posts: 2,636 Forumite
    Just to give this a different slant. I have a wheelchair, which I loathe using. The first week, we were on holiday. I sat with my partner when along came a lady & her husband. The 'lady' grabbed me by the shoulder and started talking very s-l-o-w-l-y (you get the idea)...
    'Are you having a nice holiday'? Hard to describe but in the way some adults speak to children...it was awful just awful..
    my partner by now had to hide his face - dreading what I was going to say/do next.....
    I was too dumbstruck to do much (if you knew me you would know how amazing that was....)
    anyways, the whole thing has left me with a total wheely phobia - I dread it - so I use my stick.....unfortunate I realise but the 'does he take sugar' brigade are alive, well and out there.......

    You might like this? It is a film I saw yesterday in one of my lectures click on film 3 http://film.lltv.co.uk/index.html
    Debt free and plan on staying that way!!!!
  • .

    my 3year old daughter has autism and I have the very same problem with her in shops.I have to go the chemist every week to pick a prescription up for myself,and the pharmacist last week told me I wasnt allowed to bring her into the shop anymore as she is to noisy and this could lead to him making mistakes.I tried to explain she is autistic ,but he just replied "we dont see that we just see a distruptive child",and I would have to make alternative arrangements for her when i come in.I have nobody else that can look after her,she doesnt even go nursery yet,as they wont have her until she has a support worker.He wouldnt beleive me and just replied"of course you can make other arrangements"
    Of all the shops I have ever been in with my little girl,I have never ever seen anybody treat her so badly,
  • pipkin71
    pipkin71 Posts: 21,821 Forumite
    .

    my 3year old daughter has autism and I have the very same problem with her in shops.I have to go the chemist every week to pick a prescription up for myself,and the pharmacist last week told me I wasnt allowed to bring her into the shop anymore as she is to noisy and this could lead to him making mistakes.I tried to explain she is autistic ,but he just replied "we dont see that we just see a distruptive child",and I would have to make alternative arrangements for her when i come in.I have nobody else that can look after her,she doesnt even go nursery yet,as they wont have her until she has a support worker.He wouldnt beleive me and just replied"of course you can make other arrangements"
    Of all the shops I have ever been in with my little girl,I have never ever seen anybody treat her so badly,

    That's awful tianna.

    Does your pharmacist run a delivery service?

    It's not right that you shouldn't be able to go in, but perhaps if someone from there was willing to go to you instead :confused:

    I don't know if he can insist you don't take your daughter. Is there another pharmacist you can use?

    Pipkin xxxx
    There is something delicious about writing the first words of a story. You never quite know where they'll take you - Beatrix Potter
  • ivyleaf
    ivyleaf Posts: 6,431 Forumite
    Part of the Furniture 1,000 Posts
    bigturnip wrote: »
    I don't think the solution lies in raising awareness to specific disabilities, but to somehow try and make people more tolerant and to assume people who are using disabled facilities actually need to use them and not just assume someone is guilty until proven innocent. I'm sure the vast majority of disabled people don't mind being asked in a civil manner why they are using a service, it's when people launch in to a tirade of abuse or just give dirty looks that make people feel uncomfortable.

    :T :T :T :T :T :T :T :T Thanks bigturnip, what a great post!

    Tianna - I'm so sorry to read of your problems with the pharmacist! Pipkin's idea sounds good, is there any chance your medication could be dropped off at your home instead? I do hope so.

    Thanks to everyone for their posts, very interesting reading!
  • Savvy_Sue
    Savvy_Sue Posts: 47,284 Forumite
    Part of the Furniture 10,000 Posts Name Dropper
    As well as the earlier suggestions

    1. Is it part of a chain of pharmacists? If it is I would contact head office.

    2. Would your GP contact the pharmacist and confirm that your daughter has a medical diagnosis?

    3. Is it possible for your GP to fax or email the prescription through, then all you need to do is go in and collect it without a wait?

    4. There is a link in this thread to a company who will dispense meds by post in special blister packs, maybe they could take over your dispensing for you?

    5. Contact the National Autistic Society and see if they can offer any advice on resolving this situation.
    Signature removed for peace of mind
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