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Been told I *may* have very mild aspergers. Advice please

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  • elaine373
    elaine373 Posts: 1,427 Forumite
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    I plucked up the courage once to go to their offices... and it was a complete waste of time. They weren't interested really. They said they have nothing to say to me. I have to go to the Dr and be diagnosed.

    It's all about families/kids. Single adults aren't of any interest.

    They made me feel worse/more isolated, to be honest. I wish I hadn't bothered.

    I do want a diagnosis, but I just feel very small and very alone in the world about this. I've spoken to nobody about it, there's nobody to talk to. I'm not even registered with a Dr (can't face the process/environment etc).
    Sorry to hear of your struggle. Have you got anyone (relation?) who could register you with a doctor so you can start the process of diagnosis?
    “Love yourself first and everything else falls into line. Your really have to love yourself to get anything done in this world.” Lucille Ball.
  • PasturesNew
    PasturesNew Posts: 70,698 Forumite
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    edited 10 July 2009 at 11:06PM
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    elaine373 wrote: »
    Sorry to hear of your struggle. Have you got anyone (relation?) who could register you with a doctor so you can start the process of diagnosis?

    No. They don't know... and they musn't unless/until it was formalised. I've had a !!!!!! life all round because of this and there was a lot of tension when I was growing up. They're also hundreds of miles away ... I've run away to be alone really.

    None have any idea whatsoever, they just know I was a 'problem child', which obviously has caused years of upset ... especially as nobody ever understands what I mean when I speak, so a lifetime of being misunderstood, put down and 'dismissed' offhand by people.
  • whitewing
    whitewing Posts: 11,852 Forumite
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    I scored 37 but would have scored higher when I was younger. I expect people on the dot too. I am very literal as well. I find it difficult when people are being polite. If someone asks how am I and then doesn't wait for an answer it confuses me as I think what's the point of asking a question if you don't want to know the answer.
    :heartsmil When you find people who not only tolerate your quirks but celebrate them with glad cries of "Me too!" be sure to cherish them. Because these weirdos are your true family.
  • elaine373
    elaine373 Posts: 1,427 Forumite
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    No. They don't know... and they musn't unless/until it was formalised. I've had a !!!!!! life all round because of this and there was a lot of tension when I was growing up. They're also hundreds of miles away ... I've run away to be alone really.

    None have any idea whatsoever, they just know I was a 'problem child', which obviously has caused years of upset ... especially as nobody ever understands what I mean when I speak, so a lifetime of being misunderstood, put down and 'dismissed' offhand by people.
    I am sorry to hear that, Could you cope with ringing or emailing a doctors surgery so you could register and discuss your concerns?? you sound understandably depressed.:(
    “Love yourself first and everything else falls into line. Your really have to love yourself to get anything done in this world.” Lucille Ball.
  • elaine373
    elaine373 Posts: 1,427 Forumite
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    whitewing wrote: »
    I scored 37 but would have scored higher when I was younger. I expect people on the dot too. I am very literal as well. I find it difficult when people are being polite. If someone asks how am I and then doesn't wait for an answer it confuses me as I think what's the point of asking a question if you don't want to know the answer.
    I totally agree with this post. I dare anyone to ask me `how i am`!! They will get the full reply.......and never ask again. lol
    “Love yourself first and everything else falls into line. Your really have to love yourself to get anything done in this world.” Lucille Ball.
  • PasturesNew
    PasturesNew Posts: 70,698 Forumite
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    elaine373 wrote: »
    I am sorry to hear that, Could you cope with ringing or emailing a doctors surgery so you could register and discuss your concerns?? you sound understandably depressed.:(
    I didn't know about emailing. I could phone, theoretically, but then I have to speak and feel most unlikely to be understood (receptionists = scarey pit bulls with lipstick). I guess I'd just muck it up - and just saying the name of it makes me feel useless and, well, tainted, like something that needs to be pitied. Also, my verbal processing isn't that great, think of it as "I don't listen", it's like that, but the words aren't actually being processed, so I can come off the phone not having an answer/resolution to why I called.

    I'll get round to it... I did get into the surgery once to register, but they gave me a form and wanted to know my current Dr's name ... no idea, nor the address. So I took the form and left... never got round to filling it in.
  • PasturesNew
    PasturesNew Posts: 70,698 Forumite
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    elaine373 wrote: »
    I totally agree with this post. I dare anyone to ask me `how i am`!! They will get the full reply.......and never ask again. lol
    The full reply starts about 2-3 weeks ago ... and moves methodically through everything and every decision and action since then to this point in time... doesn't it :)
  • seven-day-weekend
    seven-day-weekend Posts: 36,755 Forumite
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    edited 11 July 2009 at 12:26AM
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    elaine373 wrote: »
    I scored 35. These are my issues.Firstly, I dont feel i fit in perfectly, anywhere.e.g. I always feel like an outsider in any social circle.,I am very very literal. I hyperventilate with time keeping if i am late.I hate it when someone is late when they have arranged to meet me.I expect them on the dot.I have tried telling myself they mean give or take a few minutes but really, i do expect them exactly when they say. I worked last year as a care worker and got accused of being a council spy because when i was training i queried things in an odd way, `apparently`. I offend people with my direct way.I really hate talking on the phone.It takes me a while to realise why i have offended someone.I dont have good eye contact with people outside of my family.Normal within.(shyness?) I am always wondering /worrying what people think of me.I love walking into a public place and finding it empty. I would quite happily live in a remote place without seeing people for ages and ages.I cringe when people hug me and dont really like physical contact. (dont mind my younger children sitting on my lap or having a hug but not into hugging adults)
    what does anyone think ? Am i just antisocial? I have 7 children, 4 of whom show various social issues. I had a mum who was happy not to socialise. I have a brother who is `different` and an uncle who is basically a hermit. are we just an odd family or could there be a strong family chain of aspies? nearly forgot, my 6 1/2 year old son has a fascination with dates and ages.he is so literal that if he hears a phrase like gobsmacked, he thinks someone has been punched in the mouth. other phrases confuse him as well. He has an obsession with footballs and can never have too many bouncy balls and he loves deflated balls as well..he collects figures and will stake ages to set them up but not really play with them. any opinion on any of my queries welcomed. :)

    I too hate unpunctuality and get very stressed if it is me that is late (not that it usually is!!).

    My husband and I once turned up five hours early for a flight because we'd allowed extra time for traffic jams/traffic hold-ups - and there weren't any! :)

    Also I don't usually recognise some forms of humour. There is a film called The Big Lebowski that my husband loves and has watched mny times. It took about six airings before I realised it was meant to be funny! I like it now I know it is meant to be funny. Before I realised, I thought it was a stupid film.

    I also don't alays know how to answer questions, especially if the answer is supposed to be a yes or no, with no qualification.
    (AKA HRH_MUngo)
    Member #10 of £2 savers club
    Imagine someone holding forth on biology whose only knowledge of the subject is the Book of British Birds, and you have a rough idea of what it feels like to read Richard Dawkins on theology: Terry Eagleton
  • dmg24
    dmg24 Posts: 33,925 Forumite
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    I am just at this moment trying to steer my little asperger boy through the maze, which most of you seem not too have had to much trouble with which begs the question were you autistic at all?

    Aspergers affects people in so many different ways. All because someone does not show the same symptoms as your son, it does not mean that they do not have the condition.
    Gone ... or have I?
  • dmg24
    dmg24 Posts: 33,925 Forumite
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    No, but firstly, he is Autistic.
    Nobody with Aspergers is not Autistic.

    But as I stated, people do not have to show the same symptoms as your son to have the condition!

    Are you back on the booze jbs?
    Gone ... or have I?
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