Continuing Health Care - Preparing to fight PCT's decision

monkeyspanner

Happy Birthday CHC thread 3 years old today.

Katykat

I have to report that my mum finally passed away last Monday. It wasn't in the way I wanted. I had formulated an End of Life plan with the home where she has been for nearly 4 yrs and I wanted her to stay there, not go to hospital. Unfortunately, circumstances dictated that she was admitted to hospital. I stayed with her for 6 days and nights, she was unconcious for the last 2. In wasn't pleasant, but I am now so relieved that her suffering is over. But for me the fight goes on. I will continue to fight for ( now) retrospective funding, I just so wish I didn't have to.

L-J-R

I'm so sorry to hear of your loss Katykat. I'm sure your mum knew you were there, caring and loving. I know that doesn't make the loss any easier. Such long farewells that we bid to people who have suffered for so long can't be rationalised with platitudes such as their suffering being over. The loss remains keen - and will do for time to come, but take time to remember the good times, how she helped make you the person you are and how you fought and continue to fight for justice for her.

weanie

I lost my mother on Christmas Eve and held her funeral in the New Year. I think the reality was that I 'lost' my mum to Dementia some years before. Her death was not easy either.
I am also chasing the funding retrospectively and have had meetings postponed at short notice.
Losing someone is very hard and my condolences go out to you.

soolin

Katykat wrote: »

I have to report that my mum finally passed away last Monday. It wasn't in the way I wanted. I had formulated an End of Life plan with the home where she has been for nearly 4 yrs and I wanted her to stay there, not go to hospital. Unfortunately, circumstances dictated that she was admitted to hospital. I stayed with her for 6 days and nights, she was unconcious for the last 2. In wasn't pleasant, but I am now so relieved that her suffering is over. But for me the fight goes on. I will continue to fight for ( now) retrospective funding, I just so wish I didn't have to.

KatyKat, so sorry to hear your news, my thoughts are with you.

I lost my Dad last month and he too died in hospital, but at least at the end he had some dignity. I refused to let him go back to the hospital that had so badly mistreated him and we went to a different hospital together, I travelled with him in the ambulance and held him. I spent the night holding him and telling him it was alright to let go and that I loved him but he waited until I had gone for a brief lie down before actually going.

Tallony

Don't know if anyone can help on this matter. Never posted before on this forum but anyhelp would be gratefuly received.

My dear old Dad (71) is seriously ill with liver failure and is in a nursing home. He was assessed for CHC but was turned down last week as he doesn't meet the level required - quite how ill you have to be is completely beyond me. My Mum is currently facing an absolutely ridiculous bill from our county council. My parents paid a lot of money over the years into my Dad's state pension, so that when they retired they would have money to live on etc.... As the pension is in my Dad's name, it is deemed that is is his own money and that Mum is not entitled to a penny. It seems that if she were to divorce him she would be entitled however as they are still married she is not entitled. My Mum has a very small pension and cannot live on this. As a family we are really struggling as to what to do and where to turn. Mum is more than happy to pay for Dad's care, but not the amount that is being demanded.

If anyone could help, or pass me to someone who could, I would be most grateful.

Thanks,
Tallony

Ambre_Solaire

Message of Thanks for Monkeyspanner

I just wanted to send my heart felt thanks to you for the help advice and expertise in CHC you offered during my Mums illness. As a result of this my Mums received CHC for over 2 years whilst in her own home. In fact she only left her beloved home 18 hours before she died in Marie Curies Hospice. I take strength from the knowledge that she is no longer suffering from the horrific lung cancer and dementia which blighted her twilight years.
RIP Mum x

Bakewell54

Katykat wrote: »

I have to report that my mum finally passed away last Monday. It wasn't in the way I wanted. I had formulated an End of Life plan with the home where she has been for nearly 4 yrs and I wanted her to stay there, not go to hospital. Unfortunately, circumstances dictated that she was admitted to hospital. I stayed with her for 6 days and nights, she was unconcious for the last 2. In wasn't pleasant, but I am now so relieved that her suffering is over. But for me the fight goes on. I will continue to fight for ( now) retrospective funding, I just so wish I didn't have to.

I am so sorry KK. I ask how can it be, your mum and my mum both needing funding. My mum passed away yesterday and we too had a plan in place with the nursing home. We insisted that Mum stayed at the home when she became gravely ill on Saturday and she died yesterday, 3 days later. We had fought a fierce battle with PCT and had not paid for her care. The Peevish CT would not award NHS CHC, refusing twice, and we also went to the SHA who judged the PCTs referral not good enough to even look at. You KK have to fight retrospectively, and we never arrived at a fair conclusion. 2 very unsatisfactory situations and 2 ladies dying with their care funding in question. So sorry KK.

Bakewell54

Tallony wrote: »

Don't know if anyone can help on this matter. Never posted before on this forum but anyhelp would be gratefuly received.

My dear old Dad (71) is seriously ill with liver failure and is in a nursing home. He was assessed for CHC but was turned down last week as he doesn't meet the level required - quite how ill you have to be is completely beyond me. My Mum is currently facing an absolutely ridiculous bill from our county council. My parents paid a lot of money over the years into my Dad's state pension, so that when they retired they would have money to live on etc.... As the pension is in my Dad's name, it is deemed that is is his own money and that Mum is not entitled to a penny. It seems that if she were to divorce him she would be entitled however as they are still married she is not entitled. My Mum has a very small pension and cannot live on this. As a family we are really struggling as to what to do and where to turn. Mum is more than happy to pay for Dad's care, but not the amount that is being demanded.

If anyone could help, or pass me to someone who could, I would be most grateful.

Thanks,
Tallony

If you can avoid paying while you fight then do so. It looks like your dad has been means-tested. Maybe get help in the form of a solicitor with experience in the field as this is worth it I think. Be brave and document everything with dates and who said what.
Good luck.

malid

Tallony wrote: »

Don't know if anyone can help on this matter. Never posted before on this forum but anyhelp would be gratefuly received.

My dear old Dad (71) is seriously ill with liver failure and is in a nursing home. He was assessed for CHC but was turned down last week as he doesn't meet the level required - quite how ill you have to be is completely beyond me. My Mum is currently facing an absolutely ridiculous bill from our county council. My parents paid a lot of money over the years into my Dad's state pension, so that when they retired they would have money to live on etc.... As the pension is in my Dad's name, it is deemed that is is his own money and that Mum is not entitled to a penny. It seems that if she were to divorce him she would be entitled however as they are still married she is not entitled. My Mum has a very small pension and cannot live on this. As a family we are really struggling as to what to do and where to turn. Mum is more than happy to pay for Dad's care, but not the amount that is being demanded.

If anyone could help, or pass me to someone who could, I would be most grateful.

Thanks,
Tallony

Before you even think about going to a solictor as advised by Bakewell54, read this thread. I know it's long, but trust me, there is invaluable information here to help you proceed without costly solicitors.

All the best