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Advice on filling in Form for DLA please

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Comments

  • sunnyone
    sunnyone Posts: 4,716 Forumite
    Tenth Anniversary 1,000 Posts Combo Breaker
    Mupette wrote: »
    oh it's not dla tomorrow that runs out in June, it's esa tomorrow.

    they wouldn't take a diagnosis over the phone yet dla did.
    they wanted proof, but with moving within weeks of diagnosis of MS last year i didn't get around to sending them consultant letters from then.

    although they did write to old gp a few weeks ago, from my old esa50 (not the current one) as it looks like she didn't respond or said she is no longer my gp they need proof.

    Sorry I must have given a garbled post Im so tired I should apologise incase it was in mixed languages :p, the DLA bit was about when you phoned them after your diagnosis (you posted about it at the time) I do know that its ESA's turn to make you worry.

    My husband had a ESA50 a couple of weeks ago and Ive sent off a letter from our GP about his fairly recent stroke because he certainly cant go to the normal center so if they want to see him they will have to come to our home.
  • Mupette
    Mupette Posts: 4,599 Forumite
    sunnyone wrote: »
    Sorry I must have given a garbled post Im so tired I should apologise incase it was in mixed languages :p, the DLA bit was about when you phoned them after your diagnosis (you posted about it at the time) I do know that its ESA's turn to make you worry.

    My husband had a ESA50 a couple of weeks ago and Ive sent off a letter from our GP about his fairly recent stroke because he certainly cant go to the normal center so if they want to see him they will have to come to our home.


    good luck with that, hope they are sensable and do the right thing.

    Home visit was requested, via fax under instuctions, gp was surprised that no reason was given why this was refused, so i have to brave it tomorrow, fortunately got a friend availble to take me, otherwise is wasting their money on taxi fares.
    GNU
    Terry Pratchett
    ((((Ripples))))
  • Worcsman
    Worcsman Posts: 345 Forumite
    Part of the Furniture
    Its something I have as we will need to claim for our baby when he's a bit older. http://www.cafamily.org.uk/pdfs/DLA_factsheet.pdf
    Bankruptcy and Supporters club... Member 340. :D

    I R Worcsman
  • cit_k
    cit_k Posts: 24,812 Forumite
    edited 9 February 2011 at 9:58AM
    Mupette wrote: »
    Tomorrow 1pm :(
    dreading it, but i can only tell them the truth.

    they have no recent paperwork about me from any medical persons..
    but i have a letter from my consultant that my gp should have too, this is about 3 months old, as one particular gp said she didn't believe i had ms until she had proof of the consultant. This letter is consultants reply to her. i have that packed to show them tomorrow, is it worth showing the medical personage anything tomorrow seeing as they do not make any descisions, or just wait for the fail and appeal stage?


    Ty for asking :)

    Show them all the evidence you have.

    If you have a dictaphone, or a mobile phone that can record audio, take it and (DO NOT TELL THEM YOU ARE RECORDING) secretly record the medical.

    If someone can be with you at the medical, even better, they can be a witness (but expect if you complain, for a witness not to amount to much unless they are a professional)

    Ask to see a copy of the medical report before they leave.

    They will refuse.

    Then ask them to send you a copy of the medical report to you so you can check for mistakes/errors before they send it to the DWP decision maker.

    They will refuse.

    Ideally, these refusals will be recorded on tape (assuming you could find something to record the medical)

    If you fail, tell the GMC and supply the tape, and point out they refused you a copy of the report before it was sent to the DWP.
    [greenhighlight]but it matters when the most senior politician in the land is happy to use language and examples that are simply not true.
    [/greenhighlight][redtitle]
    The impact of this is to stigmatise people on benefits,
    and we should be deeply worried about that
    [/redtitle](house of lords debate, talking about Cameron)
  • Mupette
    Mupette Posts: 4,599 Forumite
    I don't have anything decent to record, checked my mobile to see if it would voice record, but it was rubbish, but got someone comming with me, as there is no way i can get there alone, let alone want a taxi driver helping me as that means they have to handle me ifyswim.

    Wello Atos has just called to check that i will be attending at 1pm, i said yes just about.. wonders what would happen if i said no not feeling great today..... bye bye benefits thats for sure.
    GNU
    Terry Pratchett
    ((((Ripples))))
  • Mupette
    Mupette Posts: 4,599 Forumite
    well thats all done and it was horrible, the woman herself was nice.

    got there OH was driving so pressed the buzzer to be let in, was told to park behind where we were, he said disabled parking, the man said no.

    Park up, get to the centre to be asked do you have a blue badge, yes we said, ah you should of said we would of let you in.


    Any hoo an hour with the healthcare professional, i stuggled to understand her as english is her second language and she was softly spoken, several times i had to ask her to repeat herself, and to look at me when she talks because of my hearing loss in one ear.

    being sat in my wheelchair for that long it was uncomfortable, i was squirming around so much she must of thought i had worms or something.

    she didn't dispute me having MS or any of my ailments, but wanted detailed information of everything.

    I answered truthfully, and explained that when i rang esa to inform them of my dx they wanted the paperwork, i said that i had forgotten to do so as i was moving home at the time, but presented what paperwork i had for her to copy. So now esa will have everything i have.

    Once thing i did notice on the front of my file was a big captial D not sure what that was for.

    i did have an embarrasing time when she did a memory test 3 items, i kept repeating them in my head, said them out loud and promptly forgot the 3rd one, i hope she doesn't think i did that on purpose, i really did forget, OH asked me in the car did i do that on purpose, i said no, mind just went blank.

    she tried to see what i could do, with help i got out of the chair, couldnt bend knees or get down, and said it would hurt too much, she was nice and said don't do it if it hurts.

    but i did try to do what i could.

    Sooo glad that it is over, just have to wait and see now
    GNU
    Terry Pratchett
    ((((Ripples))))
  • sunnyone wrote: »
    Ive been tested for MS twice and its not pleasant, it hurts.

    I think that you will be ok with the letter to prove that you now have a positive MS diagnosis, DLA make an exception with MS (as you know from when you rang to update them) so does the VAT man when buying 0 rated vehicles which bodes well for you medical, Let me know how it goes, good luck.

    No, DLA do not make an exception for MS. Decisions on entitlement are made based on a persons care/mobility needs
  • sunnyone
    sunnyone Posts: 4,716 Forumite
    Tenth Anniversary 1,000 Posts Combo Breaker
    joyciebird wrote: »
    No, DLA do not make an exception for MS. Decisions on entitlement are made based on a persons care/mobility needs

    They do, many people with relapsing MS get DLA at the same rates all the time even when they have long periods of being well.
  • Indie_Kid
    Indie_Kid Posts: 23,100 Forumite
    Part of the Furniture 10,000 Posts Combo Breaker
    sunnyone wrote: »
    They do, many people with relapsing MS get DLA at the same rates all the time even when they have long periods of being well.

    Link please? DLA is based on care and /or mobility needs. There are a few exceptions (deafblind - for HRM only, terminal illness and kidney dialysis)
    Sealed pot challenge #232. Gold stars from Sue-UU - :staradmin :staradmin £75.29 banked
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  • MS is treated the same as any other disability and an award is made based on care and mobility needs. Not everyone who has MS is awarded as the relapses may be infrequent and they do not require any help for the periods in between. The following link is the correct guidance and advice a Decision Maker uses

    http://www.dwp.gov.uk/publications/specialist-guides/medical-conditions/a-z-of-medical-conditions/multiple-sclerosis/
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