ADHD diagnosis in Wales

We live in Wales on the border between England and Wales. Our adult son (aged23) has been having private therapy for 3 years (couldn’t wait for nhs) as he had mental health issues. The current therapist suggested that he thought that my son had undiagnosed ADHD. We tried to pursue this via the mental health nurse at our GP Surgery and she advised that she could refer my son to the NHS in our local health board but there was no time frame on when he would be seen. We therefore felt we had no option but to seek a private diagnosis (which was also difficult to find due to high demand). We finally got an assessment and diagnosis but were advised by our GP Surgery that they would now remove my son from the NHS Referral list for an assessment and diagnosis as we chose to go privately which means that we will have to pay for private prescriptions forever more (currently costs £150). Our GP Surgery have also stated that they will not enter into any shared care arrangements with the Practitioner that diagnosed my son. I have queried this with my GP surgery several times and always get this response. I have also written to the Welsh Health Minister who really didn’t answer any of my questions but referred me to our Local Health Board complaints dept.  Can anyone advise what the rules are in Wales and whether my GP Surgery are allowed to do this? 

Comments

  • MalMonroe
    MalMonroe Posts: 5,783 Forumite
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    Hi, if you google this - complaints about NHS GPs in Wales

    A lot of links pop up and you can click on the one that is most relevant to you, for instance - 

    https://www.professionalstandards.org.uk/docs/default-source/publications/one-stop-guide-for-complaints/one-stop-guide-for-complaints-about-healthcare-in-wales.pdf?sfvrsn=61677e20_8

    But there are many other different links that appear to be helpful.

    And I know it's not easy these days but could you start to apply for a change of NHS GP?
    Please note - taken from the Forum Rules and amended for my own personal use (with thanks) : It is up to you to investigate, check, double-check and check yet again before you make any decisions or take any action based on any information you glean from any of my posts. Although I do carry out careful research before posting and never intend to mislead or supply out-of-date or incorrect information, please do not rely 100% on what you are reading. Verify everything in order to protect yourself as you are responsible for any action you consequently take.
  • Spendless
    Spendless Posts: 24,138 Forumite
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    What about contacting a charity or support group  for ADHD. It's possible that they've come across this situation before and can advise. 
  • elsien
    elsien Posts: 32,672 Forumite
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    edited 18 January 2023 at 7:38PM
    I found this via google which seems to fit your circumstances.
    Information for Patients - North Cardiff Medical Centre
    It would seem to suggest you need to check your local health board policies with regards to what your GP would normally be able to prescribe. 

    It does seem to suggest though that you should be able to transfer back into the NHS from the private provider, but you can't use both at the same time. If your GP is saying no to transferring back, that could form the basis of a complaint but using your GP and the private provider together does seem to be against the rules as they stand. 
    All shall be well, and all shall be well, and all manner of things shall be well.

    Pedant alert - it's could have, not could of.
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