We’d like to remind Forumites to please avoid political debate on the Forum.

This is to keep it a safe and useful space for MoneySaving discussions. Threads that are – or become – political in nature may be removed in line with the Forum’s rules. Thank you for your understanding.

The MSE Forum Team would like to wish you all a Merry Christmas. However, we know this time of year can be difficult for some. If you're struggling during the festive period, here's a list of organisations that might be able to help
📨 Have you signed up to the Forum's new Email Digest yet? Get a selection of trending threads sent straight to your inbox daily, weekly or monthly!
Has MSE helped you to save or reclaim money this year? Share your 2025 MoneySaving success stories!

PIP have conned me out of 2 years mobility

I originally applied for PIP and ended up getting the Daily enhanced allowance in 2019. I was not told that because I have EUPD, that I should also have received the Mobility component at a further £89.00 per week, and the form was not clear in showing that this was possible either. Mind you, being interviewed by a physio therapist, when I was claiming PIP for serious mental health illness, certainly did not help me either.

Having just received the Pip Mobility component for having EUPD for the last six months, I have just realised that because this almost went to the Tribunal Courts, but they gave it to me at the last minute, that in fact I should have been given this for 2 years, equalling £8,000! Wow, a massive amount to lose when being disabled is not my fault, and would certainly not be my choice either.

I'm now writing to ask, is there any way in which I can take PIP to a tribunal for deliberately not informing me that I could actually apply for this in the first place, we are talking 10 points on PIP Mobility alone?

EUPD has very clear symptoms, and I was diagnosed in 2019, and mental illness does not suddenly change when applying for PIP benefit.  I was completely open about having EUPD and that this was my first application. It seems so wrong that I have been penalised and only because I was not aware that I could have received this in the first place.  Surely when applying for a benefit, the department handling out the forms should ensure that the right benefits are given to the people asking for them.  How on earth are people supposed to know this fact when they go for the interview, surely it would be a legal requirement for the DWP to actually inform the applicant exactly what they are entitled to? Surely this would be the ethical way to do this, but no, it seems that the applicants have to scrabble about in the dirt to find any morsel they should be entitled to in the first place.

I have paid into the system long enough, so why is it so cryptic, and such a sheer fight to find what I am entitled to please, and then to realise that I have lost out simply because no body bothered to tell me what I was entitled in the first place?

I'd  be interested if anybody out there has any answers to this please, it is just an utter scandal not being informed, surely?  

Best wishes, and thanks, Helen

«1

Comments

  • calcotti
    calcotti Posts: 15,696 Forumite
    Part of the Furniture 10,000 Posts Name Dropper
    edited 2 February 2022 at 5:23PM
    helenjane55 said:
    I was not told that because I have EUPD, that I should also have received the Mobility component at a further £89.00 per week, and the form was not clear in showing that this was possible either. 
    PIP is not awarded based on a diagnosis.
    The PIP2 form includes questions about the difficulties ou have planning and following a journey and moving around. As with all the other questions you need to explain when completing the form the difficulties you have. If you score sufficient points you receive a Mobility award.
    helenjane55 said:
    ... this almost went to the Tribunal Courts, but they gave it to me at the last minute
    You say you have now been awarded it. I'm not clear if this is what you mean but if this as result of DWP giving it to you just prior to a tribunal hearing which was a challenge to the original decision then the revised award will automatically be backdated to when the original decision applies from (the start of the claim if this was your first assessment).
    Information I post is for England unless otherwise stated. Some rules may be different in other parts of UK.
  • poppy12345
    poppy12345 Posts: 18,943 Forumite
    Part of the Furniture 10,000 Posts Name Dropper
    calcotti said:
    helenjane55 said:
    I was not told that because I have EUPD, that I should also have received the Mobility component at a further £89.00 per week, and the form was not clear in showing that this was possible either. 
    PIP is not awarded based on a diagnosis.
    The PIP2 form includes questions about the difficulties ou have planning and following a journey and moving around. As with all the other questions you need to explain when completing the form the difficulties you have. If you score sufficient points you receive a Mobility award.
    helenjane55 said:
    ... this almost went to the Tribunal Courts, but they gave it to me at the last minute
    You say you have now been awarded it. I'm not clear if this is what you mean but if this as result of DWP giving it to you just prior to a tribunal hearing which was a challenge to the original decision then the revised award will automatically be backdated to when the original decision applies from (the start of the claim if this was your first assessment).

    Or was it a review?
  • Alice_Holt
    Alice_Holt Posts: 6,094 Forumite
    Ninth Anniversary 1,000 Posts Name Dropper


    Having just received the Pip Mobility component for having EUPD for the last six months, I have just realised that because this almost went to the Tribunal Courts, but they gave it to me at the last minute,

          Can you expand on this with a chronology and exact dates, please.

          Do I infer that you asked for a mandatory reconsideration of the decision not to award you the Mobility component?

          If, so when did you do this? 

          Have you had a re-assessment after 2019 ?


        As have been said PIP is not awarded on the basis of diagnosis, but how those conditions affect your ability to perform the PIP activities.

        PIP decision making can often be flawed, and all decisions carry a right of appeal.    

        It is sensible to seek advice from an accredited welfare rights charity if you disagree with the decision - did you do this after the 2019 decision?  
    Alice Holt Forest situated some 4 miles south of Farnham forms the most northerly gateway to the South Downs National Park.
  • calcotti
    calcotti Posts: 15,696 Forumite
    Part of the Furniture 10,000 Posts Name Dropper
    poppy12345 said: ..Or was it a review? 
    OP's post is not clear so I'm not sure which is why I said 'if'.
    Information I post is for England unless otherwise stated. Some rules may be different in other parts of UK.
  • Spoonie_Turtle
    Spoonie_Turtle Posts: 10,810 Forumite
    10,000 Posts Sixth Anniversary Name Dropper
    edited 2 February 2022 at 6:03PM

    I originally applied for PIP and ended up getting the Daily enhanced allowance in 2019. I was not told that because I have EUPD, that I should also have received the Mobility component at a further £89.00 per week, and the form was not clear in showing that this was possible either. Mind you, being interviewed by a physio therapist, when I was claiming PIP for serious mental health illness, certainly did not help me either.

    Having just received the Pip Mobility component for having EUPD for the last six months, I have just realised that because this almost went to the Tribunal Courts, but they gave it to me at the last minute, that in fact I should have been given this for 2 years, equalling £8,000! Wow, a massive amount to lose when being disabled is not my fault, and would certainly not be my choice either.

    I'm now writing to ask, is there any way in which I can take PIP to a tribunal for deliberately not informing me that I could actually apply for this in the first place, we are talking 10 points on PIP Mobility alone?

    EUPD has very clear symptoms, and I was diagnosed in 2019, and mental illness does not suddenly change when applying for PIP benefit.  I was completely open about having EUPD and that this was my first application. It seems so wrong that I have been penalised and only because I was not aware that I could have received this in the first place.  Surely when applying for a benefit, the department handling out the forms should ensure that the right benefits are given to the people asking for them.  How on earth are people supposed to know this fact when they go for the interview, surely it would be a legal requirement for the DWP to actually inform the applicant exactly what they are entitled to? Surely this would be the ethical way to do this, but no, it seems that the applicants have to scrabble about in the dirt to find any morsel they should be entitled to in the first place.

    I have paid into the system long enough, so why is it so cryptic, and such a sheer fight to find what I am entitled to please, and then to realise that I have lost out simply because no body bothered to tell me what I was entitled in the first place?

    I'd  be interested if anybody out there has any answers to this please, it is just an utter scandal not being informed, surely?  

    Best wishes, and thanks, Helen

    Unfortunately the DWP cannot be relied upon to collect all the relevant information in order to make the correct decision, so the burden is on us as claimants to either fully understand what we should be entitled to, or to get qualified advice, so that we know whether the decision in the end is appropriate or not.  It's not fair but alas that's the way it is.  There is no conning as such, rather systemic failings - really there should be qualified professionals who understand a wide range of health conditions in depth, to know what questions to ask in order to elicit relevant facts from claimants, rather than the current arrangement which requires claimants to either be well enough or to have someone knowledgeable helping them. 

    The only possible scant 'consolation' here is that everyone faces the same system so it's nothing personal to you.

    In terms of what you can do about it, that depends*.  If there is nothing you can do yourself but you have the emotional energy to do so, it may be worth contacting a relevant charity in case anyone's collecting accounts for any future reports or legal action.  (e.g. Mind, Scope, Disability Rights UK - if they're not, they might know if anyone else is.)

    *Edited per the comment from calcotti - depends on the exact details of your claim history.
  • calcotti
    calcotti Posts: 15,696 Forumite
    Part of the Furniture 10,000 Posts Name Dropper
    Spoonie_Turtle said:  ...In terms of what you can do about it, nothing yourself now as already advised, ..
    That isn't clear yet because the claim history isn't clear.
    Information I post is for England unless otherwise stated. Some rules may be different in other parts of UK.
  • Spoonie_Turtle
    Spoonie_Turtle Posts: 10,810 Forumite
    10,000 Posts Sixth Anniversary Name Dropper
    calcotti said:
    Spoonie_Turtle said:  ...In terms of what you can do about it, nothing yourself now as already advised, ..
    That isn't clear yet because the claim history isn't clear.
    Oh good point, thanks.  Will edit accordingly.
  • Alice_Holt
    Alice_Holt Posts: 6,094 Forumite
    Ninth Anniversary 1,000 Posts Name Dropper
    edited 2 February 2022 at 6:56PM

    I originally applied for PIP and ended up getting the Daily enhanced allowance in 2019. I was not told that because I have EUPD, that I should also have received the Mobility component at a further £89.00 per week, and the form was not clear in showing that this was possible either. Mind you, being interviewed by a physio therapist, when I was claiming PIP for serious mental health illness, certainly did not help me either.

    Having just received the Pip Mobility component for having EUPD for the last six months, I have just realised that because this almost went to the Tribunal Courts, but they gave it to me at the last minute, that in fact I should have been given this for 2 years, equalling £8,000! Wow, a massive amount to lose when being disabled is not my fault, and would certainly not be my choice either.

    I'm now writing to ask, is there any way in which I can take PIP to a tribunal for deliberately not informing me that I could actually apply for this in the first place, we are talking 10 points on PIP Mobility alone?

    EUPD has very clear symptoms, and I was diagnosed in 2019, and mental illness does not suddenly change when applying for PIP benefit.  I was completely open about having EUPD and that this was my first application. It seems so wrong that I have been penalised and only because I was not aware that I could have received this in the first place.  Surely when applying for a benefit, the department handling out the forms should ensure that the right benefits are given to the people asking for them.  How on earth are people supposed to know this fact when they go for the interview, surely it would be a legal requirement for the DWP to actually inform the applicant exactly what they are entitled to? Surely this would be the ethical way to do this, but no, it seems that the applicants have to scrabble about in the dirt to find any morsel they should be entitled to in the first place.

    I have paid into the system long enough, so why is it so cryptic, and such a sheer fight to find what I am entitled to please, and then to realise that I have lost out simply because no body bothered to tell me what I was entitled in the first place?

    I'd  be interested if anybody out there has any answers to this please, it is just an utter scandal not being informed, surely?  

    Best wishes, and thanks, Helen



    In terms of what you can do about it, that depends*.  If there is nothing you can do yourself but you have the emotional energy to do so, it may be worth contacting a relevant charity in case anyone's collecting accounts for any future reports or legal action.  (e.g. Mind, Scope, Disability Rights UK - if they're not, they might know if anyone else is.)

    *Edited per the comment from calcotti - depends on the exact details of your claim history.
          Hopefully the OP may come back with a chronology and exact dates of her claim / mandatory reconsideration history.
    Then, we may be able to make some concrete suggestions.

       If she doesn't, and for the benefit of others reading her thread, I would echo your comments.
      I would also suggest she:
        i)  familiarises herself with the PIP descriptors and the PIP process;
        ii) prepares the ground for getting relevant additional evidence in readiness for her next re-assessment;
       iii)  establishes where her local advice agency is;
       iv) researches the online PIP resources e.g.

           https://www.citizensadvice.org.uk/benefits/sick-or-disabled-people-and-carers/pip/
         https://assets.publishing.service.gov.uk/government/uploads/system/uploads/attachment_data/file/1046238/pip-assessment-guide-part-2-assessment-criteria.pdf

        https://www.benefitsandwork.co.uk/personal-independence-payment-pip/pip-points-system

        https://www.mentalhealthandmoneyadvice.org/en/welfare-benefits/pip-mental-health-guide/

       https://www.advicenow.org.uk/guides/how-win-pip-appeal

       
    Alice Holt Forest situated some 4 miles south of Farnham forms the most northerly gateway to the South Downs National Park.
  • enhanced rate for mobility on pip is not 89 pound the actual amount is more around the 60 pound mark enhanced daily living is 89 ish
Meet your Ambassadors

🚀 Getting Started

Hi new member!

Our Getting Started Guide will help you get the most out of the Forum

Categories

  • All Categories
  • 352.9K Banking & Borrowing
  • 253.9K Reduce Debt & Boost Income
  • 454.7K Spending & Discounts
  • 246K Work, Benefits & Business
  • 602.1K Mortgages, Homes & Bills
  • 177.8K Life & Family
  • 259.9K Travel & Transport
  • 1.5M Hobbies & Leisure
  • 16K Discuss & Feedback
  • 37.7K Read-Only Boards

Is this how you want to be seen?

We see you are using a default avatar. It takes only a few seconds to pick a picture.