PIP application with incurable cancer

calcotti

Usually the payments are issued at the same time as letters which means that payments often arrive before letters. If you wait a few days you should get a decision letter which will show exactly what has been awarded, the reasons why and for how long.

BooJewels

Thanks Poppy and calcotti.  I know that a letter will be en route, but we've had no mail for 8 days now, including things posted some time before that, so it might be a while before it actually arrives - and being impatient, if there was a known methodology to how they paid, I might have been able to work it out for myself, in advance of the letter arriving.  I'll also need to look at applying for Carer's Allowance for myself - another tedious looking form.  But it's not like I'm going anywhere nice just now or the time spent would be spoiling any adventures!

We're also waiting to hear more about his ESA payments and if he'll be placed in the support group.

poppy12345

BooJewels said:

Thanks Poppy and calcotti.  I know that a letter will be en route, but we've had no mail for 8 days now, including things posted some time before that, so it might be a while before it actually arrives - and being impatient, if there was a known methodology to how they paid, I might have been able to work it out for myself, in advance of the letter arriving.  I'll also need to look at applying for Carer's Allowance for myself - another tedious looking form.  But it's not like I'm going anywhere nice just now or the time spent would be spoiling any adventures!

We're also waiting to hear more about his ESA payments and if he'll be placed in the support group.

Give them a ring, as advised in an earlier comment.

Claiming Carers allowance is a very simple online application and there's nothing really tedious about it. Providing you don't earn more than £128 per week after deductions. Apply here. https://www.gov.uk/carers-allowance/how-to-claim

calcotti

BooJewels said:

I'll also need to look at applying for Carer's Allowance for myself - another tedious looking form.  

You can claim online if you wish https://www.gov.uk/carers-allowance/how-to-claim
In order to claim you will need the PIP award letter. You can then backdate the Carer's Allowance claim to the date the PIP award started.

BooJewels

poppy12345 said:

Give them a ring, as advised in an earlier comment.

Claiming Carers allowance is a very simple online application and there's nothing really tedious about it. Providing you don't earn more than £128 per week after deductions. Apply here. https://www.gov.uk/carers-allowance/how-to-claim

We were holding off on ringing them due to the extreme demands on the DWP just now - as I did reply to your earlier comment - it's only modest impatience to know what's what - not enough reason to burden them further just now.  The letter will turn up eventually.  But I would have worked it out if there was a known pattern for paying the backdated portion.

I was going to apply for Carer's Allowance on-line, but maybe print out the pdf application first, so that I could work through my answers in preparation - it just looks very confusing when it talks about periods where I wasn't able to care for him, not only by date, but time too.  He's back and forth quite a lot for hospital stays and treatment, so I'll need extra sheets!  I shall need to await the letter though.

poppy12345

BooJewels said:

poppy12345 said:

Give them a ring, as advised in an earlier comment.

Claiming Carers allowance is a very simple online application and there's nothing really tedious about it. Providing you don't earn more than £128 per week after deductions. Apply here. https://www.gov.uk/carers-allowance/how-to-claim

  He's back and forth quite a lot for hospital stays and treatment

Just so that you're aware. Any stays in hospital of more than 28 days then you will need to ring DWP and his PIP will stop. The day he goes home and the day he goes in doesn't count but linking days will count with this too.

BooJewels

poppy12345 said:

BooJewels said:

poppy12345 said:

Give them a ring, as advised in an earlier comment.

Claiming Carers allowance is a very simple online application and there's nothing really tedious about it. Providing you don't earn more than £128 per week after deductions. Apply here. https://www.gov.uk/carers-allowance/how-to-claim

  He's back and forth quite a lot for hospital stays and treatment

Just so that you're aware. Any stays in hospital of more than 28 days then you will need to ring DWP and his PIP will stop. The day he goes home and the day he goes in doesn't count but linking days will count with this too.

Thanks - I think it was calcotti that already explained that to me earlier - and we did include all his recent hospital dates in the PIP application, as there were several, with short gaps between and just let them sort out which days to count etc.  Most of it was before the PIP application date - we actually rang for the form on one of his forays home. 

I'm hoping that he won't be returning to hospital to stay, just his treatment days.  We both really want to knock that particular practice on the head!

BooJewels

Good afternoon.  We got a whole pile of mail today and the PIP letter was in there - and somewhat surprising.

He's been given the standard rate of Daily Living and enhanced rate of Mobility - no wonder I couldn't work it out, that's a permutation I'd eliminated, as we just didn't think mobility was much of an issue - and didn't put much effort into that section as we really didn't expect him to get it.    At best, I thought he might squeak into enhanced Daily Living.

He got 0 points in areas where I'd pencilled him in as a 2 or 3 (like budgeting decisions - they make the distinction between memory issues and cognition) and 12 points for mobility where I'd got to about 4 or 5 for both sections.  It looks like they rang his CNS and she seemingly explained that whilst he was very confused a while ago, that had improved with his treatment (which it has, so that's fair - he couldn't even remember his own name at New Year, but he's still not the man he was a year ago), but that she considered his mobility to be a major deterioration in him - they also commented that it was evidenced by what was known about his medical condition and the documents provided.  So I think that maybe had more sway than what we'd actually written.  He got 11 points for Daily Living, which is a shame to be only 1 point short.  But I'm certainly not going to query it further, the overall outcome seems more than fair to us.

Getting the enhanced mobility rate means he can get disability road tax and a blue badge - he's just spoken to the council and they confirmed it, so we'll look at that application and the Carer's Allowance as tomorrow's projects.

Again, profuse thanks to everyone who has given us assistance, I just would have not got this far without the generous help of people here and the Welfare Rights people at Macmillan - it's been truly appreciated.  Thank you!