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Aspergers/ASD support thread

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  • blue_monkey_2
    blue_monkey_2 Posts: 11,435 Forumite
    And in case I do not get back on tonight to do anything other than ask questions, I wanted to wish you all a Happy and Prosperous New Year. Look forward to catching up in 2008!
  • blue_monkey_2
    blue_monkey_2 Posts: 11,435 Forumite
    Hi BM

    What is Section 21 notice? I think I may have missed something. This is a great thread but difficult to keep up with at times!!

    I know people who have got in touch with Shelter over housing problems and have found them very helpful!

    Sorry i missed this earlier. It is a notice from your Landlord to leave. My landlord is my mum believe it or not!! We have been given notice to be out of the house by 2nd February, if we have not managed to secure a private tenancy or had an offer from the council by then we have to 'stay put' and the Landlord has to apply to the court to get us out, the court will then give them a date for us to leave, if we have not left by then the bailiffs will arrive to throw us out and change the locks. Then we will be homeless!! Then we will be considered for hostel accomodation. If we leave of our own accord we have made ourselves homeless they won't house us, so we are waiting to be thrown out by bailiffs - which will be about 2 weeks after the 2nd Feb - if we have not been offered anything in the meantime. This is why we have had to find storage for all of our things, and this is why we have to close the business. Mum wants to sell the house (when anyone asks her why she says she cannot afford it anymore, but we pay everything to do with the house and she lives elsewhere, no-one is still any the wiser). She told me 6 weeks before Xmas that we had to leave.

    We are hoping that Ryan having this (but it un-dx and I don't think it is ADHD but I could be wrong of course) then it will mean they will consider us for housing raher than hostel due to the upheavel all the changes will do to his health and the changes, etc... plus him having to move school and then he will lose his teaching assistant, I am assuming that the council doctor will realise this. We can't however be sure, I guess what will be, will be.

    When I read all the the documents about who they house it seems people on drugs and people who have been in prison get the priority. Where is the justice in that?? :confused:
  • PasturesNew
    PasturesNew Posts: 70,698 Forumite
    Part of the Furniture 10,000 Posts Name Dropper Photogenic
    Haven't been on this thread for ages, but have something to say that will make you all laugh, I hope!

    As you know, my nearly-28-year-old son almost certainly has AS. His 20-year-old girlfrind is diagnosed with it.

    Well he went round to the girlfriend's house for his Christmas dinner and received his Chritmas present from her mum. It was just the right present for him, in fact he was so delighted with it he rang us up and gave us an ear-bending about it.

    It's obvious his girlfriend's mum knows all about dealing with Aspies and their 'different' interests and obsessions.

    What other sort of mum would buy a 28-year-old guy a remote controlled scorpion???

    About 2 years ago I found out about RoboRaptors.... and I HAD to see one. But I was living in a rural area. Then one day I overheard somebody say there was one in a town just a 40 mile round trip.

    I drove hastily over there, ran up the stairs in M&S and there it was. Available to play with, batteries/remote available. So I picked it up, carried it over to the lingerie department and plonked myself down at the base of a mannequin.

    I sat and played with the roboraptor for about 2 hours. I was entralled! Once I'd had my fill. I put it back on the display stand and calmly walked out.

    Brilliant!

    I could never understand why anybody could think this an odd thing for a middle aged woman to do! It was THERE to be played with. I was completely fascinated by it. I HAD to play with it. It was magical, sat there amidst Xmas shoppers.

    Now I know I have ASC (Condition, not Disorder now you un-PC people!) I can see why it held so much fascination for me; I can see why I wouldn't think it odd to sit/play like/where I did. I can see why everybody I told the story to seemed to think it hilarious in a weird way.

    I had fun.
  • Snaggles
    Snaggles Posts: 19,503 Forumite
    About 2 years ago I found out about RoboRaptors.... and I HAD to see one. But I was living in a rural area. Then one day I overheard somebody say there was one in a town just a 40 mile round trip.

    I drove hastily over there, ran up the stairs in M&S and there it was. Available to play with, batteries/remote available. So I picked it up, carried it over to the lingerie department and plonked myself down at the base of a mannequin.

    I sat and played with the roboraptor for about 2 hours. I was entralled! Once I'd had my fill. I put it back on the display stand and calmly walked out.

    Brilliant!

    I could never understand why anybody could think this an odd thing for a middle aged woman to do! It was THERE to be played with. I was completely fascinated by it. I HAD to play with it. It was magical, sat there amidst Xmas shoppers.

    Now I know I have ASC (Condition, not Disorder now you un-PC people!) I can see why it held so much fascination for me; I can see why I wouldn't think it odd to sit/play like/where I did. I can see why everybody I told the story to seemed to think it hilarious in a weird way.

    I had fun.
    It sounds great fun actually, and exactly what my son would have done. I love the funny things he does, and if I could wave a wand tonight and he would be neuro-typical, I wouldn't do it (unless he wanted me to...lol).

    Btw, someone mentioned before that it was now ASC, and I amended the first post, but would it be better to change the thread title too, or would that be confusing? I could put 'ASC (formerly ASD)'?
    "I wasn't wrong, I just wasn't right enough."
    :smileyhea
    9780007258925
  • blue_monkey_2
    blue_monkey_2 Posts: 11,435 Forumite
    ASC v ASD - it can mean either surely? I know it as ASD and the Austim website says it is ASD so anyone googling would look for ASD.

    The definiation shows it to mean either:
    Disorder: http://www.google.co.uk/search?hl=en&rls=GGLG%2CGGLG%3A2006-15%2CGGLG%3Aen&q=define%3Adisorder&meta=

    Condition: http://www.google.co.uk/search?hl=en&rls=GGLG,GGLG:2006-15,GGLG:en&defl=en&q=define:condition&sa=X&oi=glossary_definition&ct=title

    I don't know whether it is PC or UN-PC to say ASD but as this is the term I have always used I don;t see it as anything else, a disorder is when something is not working as it should, a condition is the state of something so for me the term disorder is more appropraie. BUT, it is down to personal choice of the term you have been using/have been told your child/you have, not whether it is UN-PC to say so. Snaggles, maybe change the thread to 'Aspergers/ASD/ASC/ADD/ADHD/AS support thread' as then other will realise they are welcome to join our conversations too - they are all on the Spectrum so this way anyone will feel the need to ask questions or offer opinions rather than it being just an Aspergers thread. Should Ryan be diagnosed with ADHD rather than Aspergers I'd like to feel I can come back here and chat with you all and then I would have the support of others who have or have knowledge of the condition.

    How does everone else feel about that?
  • Snaggles
    Snaggles Posts: 19,503 Forumite
    I'm happy with that - is that okay with everyone else?

    Or should I maybe start a new thread as this one is getting quite long? (but I will put a link at the end of this one so that people can find it more easily).
    "I wasn't wrong, I just wasn't right enough."
    :smileyhea
    9780007258925
  • blue_monkey_2
    blue_monkey_2 Posts: 11,435 Forumite
    Hi Snaggles, no I think that it would be fine to keep this one as it'll still show up in the User CP when you change the name and this is how I see if anyone else has posted. This is a short thread - have you seen the Uggs thread... over 130 pages now, LOL, pity anyone who wants to read through that!!

    Hubby back from work - got to make it ook like I've ben busy, LOL!! Byeeeeee
  • shazrobo
    shazrobo Posts: 3,313 Forumite
    blue monkey, most doctors who have seen my sons have commented that the violence is very common in kids with ADHD, which is what both of mine were diagnosed with, but i think they still have asd traits too, as i have a friend with a child with aspergers and the way he is, is just so like my two iyswim. been told by another friend that ADHD is on the asd spectrum too
    enjoy life, we only get one chance at it:)
  • Hi again Blue Monkey

    What a dreadful situation. We were given notice to quit our house 5 years ago in Dec. It was a terrible time but worked out well in the end. The council at that point would only offer homeless accomodation which just was not at all suitable so I begged and borrowed the money for the deposit on a private rental. The rent was crippling and I thought at first I had done the wrong thing as the council was then saying we were adequately housed. Thats when I went down the route of medical letters etc and it worked for me, I do hope it works for you also.

    Check out Shelter, they have their own solicitors and are supposed to be very helpful.

    It must be difficult when you do not have a proper diagnosis yet but it sounds like the medical proffesion and school are listening and taking on board your son's problems.

    Our children do not like change but good can come out of these problems. I honestly beleive that our 2 house moves in 4 months helped DS realise that some change can be good, mind you i nearly killed myself keeping up the pretence that all was well and things were going to be great. It was not an easy time but we pulled through with flying colours!

    Hope 2008 brings you and all the other posters good times, good health and good luck :beer:
  • PasturesNew
    PasturesNew Posts: 70,698 Forumite
    Part of the Furniture 10,000 Posts Name Dropper Photogenic
    To be honest, I find ADHD people completely contrary to my condition of ASC.

    In that: I cannot be around them. Noisy, boisterous types, which translates to me as: scarey/random. In real life I couldn't be in the same space as a stranger with that. It'd be like leaving a cat with a mouse even though both are in the spectrum of "pets".

    ADHD behaviours can mean they are moving about a lot. I don't cope well with people moving about a lot. It is disconcerting. I have to know/register who is where all the time. It's tiring keeping tabs on them!

    :)
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