Aspergers/ASD support thread

Flyboy152

koalamummy wrote: »

Thank you for all of the helpful responses I will contact the parents as has been advised. All of my childrens friends will always be welcome in our household regardless of any diagnosis or condition of any kind that they may have....I just want to be fully informed so that I can make any appropriate adjustments to make time spent here happy and trauma free. I was a diabetic child in the early 80's and friends parents were terrified of my condition so I rarely got invited to many peoples homes, and would never willingly subject a child to how it feels to be left out due to a condition that they did not choose to develop.

Koalamummy, if only there were more parents like you. Whether you get to be an expert, or just an enthusiastic amateur, I am sure any parent would be only too happy to have their child spend time at your house. Your children will be the richer for it too. All that is needed is a bit patience and understanding, of which you seem to have buckets load.

blue_monkey_2

Flyboy152 wrote: »

WOW!!!!

I have never seen this before, it sounds great. Flyboy12 has difficulty with concentrating for long periods and sometimes needs to move around, before re-finding his focus; this would be perfect. Big up for Odeon, but a shame the need wasn't recognised sooner.

Does anyone know if you can still use your CEA card in these performances?

Not sure where you live but the little cinema in Welwyn Garden City has Autism Friendly showings on every Friday night and it costs something like £2 for the movie. You have to book online before you go though.

I take mine to the £1 movie on Satuday morning cinema because if we have t leave, it has not cost too much and there are so many little ones milling around it makes no difference if mine is.

concerned43

Wondering if you could advise. My DS was at CAMHS again today and I was not allowed to sit in with him. My DS looked at me when told this and I told him it was OK and he went off with the physcologist. I was asked to go in for the last 5 mins whereapon I was given an update. i.e. DS says there is nothing wrong with him and he needs no further help - I just gave a little chuckle and the physc. turned to DS and said it was obvious that I did not agree and DS said he could do with some help on a particular problem that he had i.e. interpreting the actions of others. The physc. said "where did that come from because before your mum walked in you said that you did not have any problems". My DS explained that it was in his head when she asked the question before but did not say anything, the physc. then said that we need to have joint sessions.
When we left I asked my DS about his session and he said the physc. asked if I was making him say things at the sessions and asked if I insisted that DS does everything I tell him to!
I get the distinct impression that she thinks I am making everything up - I see a different physc at CAMHS (seperate sessions from DS) and was wondering if I should raise this with her as I am very upset about this misconception.

Savvy_Sue

concerned43 wrote: »

I get the distinct impression that she thinks I am making everything up - I see a different physc at CAMHS (seperate sessions from DS) and was wondering if I should raise this with her as I am very upset about this misconception.

I've never used CAMHS, but I'd say yes you SHOULD, absolutely, raise this with the psych you see there.

If I say any more, I shall probably say more than I should ... I really feel for you!

concerned43

Savvy_Sue wrote: »

I've never used CAMHS, but I'd say yes you SHOULD, absolutely, raise this with the psych you see there.

If I say any more, I shall probably say more than I should ... I really feel for you!

Thanks - will give her a call tomorrow - wasn't sure if I was just being paranoid...but I really felt uneasy with her and couldn't understand what she was getting at.

concerned43

Now I am really confused! I spoke with the physc. this morning and told her about yesterday's session and how I am now confused about it all.
The physc said that they are confused about us? they thought DS was autistic but yesterday's test suggested he's not but the other tests suggested he was???
She said it could take up to a year before a proper diagnosis is made.
My DS says he's not going back and said I am making everything up and that I am a lier because his physc. thinks it too. I put this to the physc, this morning and denied that they think I am making it up and that both he and I have problems and that they would need to change tact with us. Don't know what to make of that!
Has anyone been through these assessments before that I could PM (don't want to divulge personal stuff through forum) so that I can get a better handle on things...please

GlasweJen

Concerned, when I first started showing symptoms of my heart condition they accused my mum of using me as a proxy for Munchausen's syndrome. Long story short they got so caught up with their theory they didn't test for anything else and then by the time they did test me it was too late, heart was already grubbed and this year I almost died and had to get a transplant.

Obviously not the same but don't let their theories get in the way of treating your son. Ask to see someone who does not make your son feel uncomfortable and insisit on them treating the matter of you putting words into your childs mouth separately to your child's difficulties. That way when they realise you're not inflicting anything on him they won't have stalled his treatment.

concerned43

GlasweJen wrote: »

Concerned, when I first started showing symptoms of my heart condition they accused my mum of using me as a proxy for Munchausen's syndrome. Long story short they got so caught up with their theory they didn't test for anything else and then by the time they did test me it was too late, heart was already grubbed and this year I almost died and had to get a transplant.

Obviously not the same but don't let their theories get in the way of treating your son. Ask to see someone who does not make your son feel uncomfortable and insisit on them treating the matter of you putting words into your childs mouth separately to your child's difficulties. That way when they realise you're not inflicting anything on him they won't have stalled his treatment.

Bloody 'ell GlasweJen - that's awful, I am so sorry - my problems fade into insignificance compared to yours. many thanks for your reply she did say she would have to go back to the drawing board and come up with new ways of assessing us.
I was watching the programme on ITV about 'my child is not perfect' and I saw one of the children who had autism assessed over 3 weeks and got a diagnosis, but I have been told it can take up to a year! and I was just wondering how long everyone else that's been through it took.
Hope you are on the mend and wish you well x

julie03

my sons diagnosis took about 4 months but that was only because of waiting for ed phyc and the paedatrician seeing him at school as well as all the tests, i am astounded at the problems some people have, mine was so easy and the school is brilliant.

concerned- i hope you get some answers soon xx

starnight_2

My son's diagnosis took 18mths from he first seen paediatrician. 3 yrs from when it was first suggested!

But that was to do with problems with the school.

Hope you get somewhere concerned x