Fresh Starts and New Chances...

jwil

Sorry to hear it's still ongoing Emz. Hope you start improving soon x

beanielou

jwil wrote: »

Sorry to hear it's still ongoing Emz. Hope you start improving soon x

This.
Dont worry about work

Emzilla

Hi everyone

Well I'm still in hospital, even though it should have been for a few days. I came in Tuesday evening, they started my IVs immediately, and I woke up on Wednesday with a swollen hand and a rash all over my arm. It got worse and worse as the day went on and my hand ended up being at least double the size. It was so painful and I couldn't go anything.

So they took the cannula out and stopped the IVs. Thankfully it calmed down and my hand returned to normal size within a couple of days. They put a line in my arm the following day and restarted IVs, so the rash appeared on my right arm and hand, but no swelling.

I've had a biopsy on skin to see what the problem is, because nobody seems to know. Dermatology think it's due to an infection, but my doctors don't think I'm that ill. They keep on revisiting the possibility that it could be Orkambi, but haven't stopped it. And I'm just stuck in the middle with a nasty rash!!

I'm hoping they will let me out tomorrow to do my own IVs at home. I've got to get my "training" signed off (even though I've done it before), but I don't see any other reason why I can't go home tomorrow.

The food here is atrocious!! Don't get me wrong, I know it's the NHS and I don't expect anything great, but just being edible would be a start!! I ordered a cheese and tomato pizza yesterday (just one of the Chicago Town ones you put in the microwave) and it was brown and rock hard!!

Also, my room is freezing. It's like sitting in a fridge. I have to sit here in my dressing gown all day and sleep in it at night. I've got some bed socks as my feet have been like ice. I've asked them to sort it out, but all they ever say is "it's maintenance that have to deal with it".

So I need to go home to a) protect the weight I've gained and b) prevent developing hypothermia!!

Hope everyone else is well.

Emz xx

beanielou

Sounds just dire all round.
Take care of you.

You could always order a wee sneaky Domino!!

jwil

I hope you get out today!

Emzilla

I'm pleased to say I got out of hospital last week and have finished my IVs today - got my line out this morning :j

It was a bit full-on doing them myself at home to be honest. My treatment time doubled, so it was taking me around 5-6 hours a day to do my IVs, tablets, physio and nebulisers - no wonder they didn't want me to go to work too!! They also made me quite tired, especially the lunchtime dose, so I found myself having to take afternoon naps.

I'm going back to work next week and I'm going to try 3 x 4 hour shifts to see how I get on. I think I'll be fine, as the 2 x 4 hour shifts were no problem, up until I got my vasculitis anyway. I'll continue to wear the compression socks when I'm at work, so that shouldn't flair up again. I'm actually really looking forward to going back and am hoping that being more active again will help me to feel even better.

I've been trying to do a bit of earning online, but want to step it up for September, as we've got a bit to pay out for and I've got two birthdays (my OH's and my sister's).

I'm waiting for a £5 M&S voucher (thinking I could get £20-£30 for OH, but his birthday is a week Sunday, so I've left it a bit late) and I've got £15 in Amazon. I'm also trying to earn cash on Prolific to put towards them. I'm waiting for a £6.80 payment and have got £5.38 cleared too.

I would like to try and do the £10 a day challenge for September and get a full month of daily targets on Swagbucks.

Emz xx

jwil

Glad you are out and feeling better xx

stressed.mum

Glad you are on 5he mend, take it easy with and stuff - give yourself time to recover xxxxxx

Emzilla

Thanks Jwil and Stressed.mum :A

We went to visit OH's parents today as it's his birthday next weekend, but I'm working. They paid for the meal, which was good, so no money spent, except that now our petrol tank is practically empty. Also got a Greggs on the way so that I could take my Orkambi on the road (20g of fat needed with it).

We didn't get back until 8pm, but I have managed to do a bit of multi-tasking whilst doing my nebulisers. I reached the second Swagbucks target, so day one is under my belt, and I've earned £1.50 on Prolific, plus I'm supposed to be getting a £1 bonus on one of them too.

I started off my sister's birthday present ordering whilst at the in-laws. Dorothy Perkins have got 25% off everything at the moment, so I ordered her a dress that was £35, but was down to £26.25. I also had a leftover £5 voucher from my birthday that I put towards it, so it will only cost £21.25. I ordered on the try before you buy thing, so I've got 30 days to either pay for it or send it back (I'll try it on when it arrives - if it fits me, it'll fit her), which will give me time to earn the money on Prolific for it

Emz xx

Buffythedebtslayer

Emz so glad to read you are out of hospital and at home

You have inspired me (well you inspire me in many ways!) to do the Swag bucks thing. I reached my daily target today.

I hope you are being lucky in Swagbuck land XXX