OS ways and Poor Health

pollyanna_26

It's so lovely to hear from you Tink and sounding so upbeat and positive. It sounds as though the new medication is making a difference now it's settled.


I find it hard to recognise you now. So much more confidence and problem solving . I noticed your thread on both managing the debt and the cooking one too. We've been locked in the viral post viral thing that according to Superdoc the vast majority of the UK have been getting. Typically with us it became the gift that keeps on giving so kept coming back.


So I haven't posted much recently. The cold and damp weather or hot and humid version have meant flares and little sleep . I wish somehow everyone could order their perfect weather conditions but sadly life aint like that.


I'm glad you've almost finished the work on the house and are managing debt etc. It means you'll have time to do nice things this summer whether pottering in the garden or spending time with your husband and children.


Thinking back to your cooking thread I somehow got the idea you were Vegan when you began posting here , no idea why! I think I confused you with Doom and Gloom.


If you ever wondered why the only foods I recommended when you were looking for ideas were either veggie or vegan you know now:rotfl:


I agree with you about the amount of holidays , there seem to have been many this year including a lot of bank holidays.I end up needing to get the diary out to check what day of the week it is. May with 2 has been very confusing at times .


The appts have ramped up here too just when we had reached a point where there were less. I suppose we need to be grateful to receive them when so many are struggling to find any help and support .


How is your garden coming along? Mine is quite neglected at the moment and I need to make an effort there . There seems to be a lot to catch up on one way and another after the past year being flu x2, pneumonia , norovirus and the various viruses and post viral things.


Enjoy your weekend and getting back to normal when school reopens on Monday.


Did you return to work? I'm way behind on things so no idea.


Take care and thanks for keeping the thread ticking over along with Mothernerd.


Hands are hurting now so will try to post later . Thinking of all our friends and hoping things are ok . I do think of you all .
pollyx

maddiemay

Hi everyone, Tink great to see you so upbeat, I came across your new thread and subscribed. Polly so sorry that you and DD have copped for the viral and post viral stuff again, really knocks the stuffing out of one:(

I caught what became quite a mild cold early March, but it soon morphed into an annoying cough, which still has not departed. I have to keep an emergency pack of ABs as prescribed by lovely Immuno Consultant, I really did not believe that my symptoms indicated a chest infection though, but whilst OH and I were on our usual 4 week jaunt around the Lake District and SE Scotland during May I began to feel pretty ropey so took the 10 day course, didn't see the back of the cough, appt made to see a GP on Tuesday.

Still slogging away in my garden, it went a little crazy while we were away and although it is really hard work and probably too much for me, I really love being out there. My DOH and dear dog are both well and happy (he drove 1800 miles while we were away) and he still cycles 3 times a week, often 40 miles a time, dog thinks that I am her personal toy playing with person, even though I never get any cuddles, they are reserved for her Lord and Master:D

pollyanna_26

Hi maddie it's lovely to catch up with you although I'm sorry to hear you too have had "the gift that keeps on giving". It's a sneaky little beast . As you say it starts as a bit of a cold and then morphs into something far worse. It seems to finally going away then ramps up again. I've lost track of how many nearly betters have turned into here it comes again.


We've been burning up and pretty sleepless and it is so draining too.
DD always has a strong AB in the meds box as a back up for such times due to the compromised immune system. However even that hasn't seen it off so it's been a few more courses over the last few months. Hopefully the Dr will help get you better .


I'm glad you've managed to get out in the garden and into the air. I've been trying to be sensible and pace and am behind with lots of things so am hoping to work through things at a sensible pace.


It's good to hear your husband is well and getting out and about. That's an impressive amount of cycling and must be beneficial .
Glad the little dog is well and happy too. Hopefully once you got free of this bug you'll be able to make the most of the warm days ahead.


It's a lot cooler here today although it seems there have been high temperatures down south . Medium would suit me fine .


Take care

pollyx

Wednesday2000

I finally found this thread!

I got the results this morning of a study I took part in for Newcastle University regarding fibromyalgia. I completely forgot I did it as it was when I was researching and reading a lot about how to get rid of that nasty condition.

I thought I would just put it here in case anyone was interested.

The study involved 386 people and was concerned with the emotional impact of fibromyalgia and the effect on relationships.

What did we find out?

· Childhood emotional neglect was not associated with pain-related disability

· How much a person with fibromyalgia experiences their pain as disabling is influenced both by their own sense of security in close adult relationships, and that of their partner.

· Those who indicated that they find uncertainty difficult to tolerate also experienced more pain-related disability

What might this mean?

· Although some forms of childhood trauma may be relevant in later development of fibromyalgia; emotional neglect in childhood is not something that everyone with fibromyalgia will have experienced, and for those who have, it is not related to how disabling pain is in the here and now.

· Further research is needed to understand the relational findings better, but it may mean that when people feel very secure and content in close relationships (whether currently in a relationship or not) that the pain from fibromyalgia is less disabling due to less anxiety and stress. It is likely to be important to help couples understand what aspects of their relationship helps with managing pain and what aspects make it worse.

· It might be important for psychological therapy to consider the influence of close relationships on the experience of pain and also to consider strategies for managing uncertainty. However, there is much still to learn about what causes and maintains fibromyalgia as it may be quite different for different people

I found that quite interesting as I did develop fibromyalgia while I was caring for my husband when he had cancer and I obviously did feel very insecure during that time as I thought he might die. It was obviously a very stressful time in my life and I didn't have a lot of emotional support around me.

I have spoken to quite a few people who said that they developed fibromyalgia while they were the primary carer for a partner or a parent.

Primrose

That's an interesting study. I think we all underestimate the links between pain and psychological issues. Perhaps the only way of testing the connection is to try and practice some of the various well-being techniques for ourselvesand see whether they make a difference.

On the pain front, has anybody tried acupuncture for arthritic knee joint pain, and if so, did it work?

Wednesday2000

Primrose wrote: »

That's an interesting study. I think we all underestimate the links between pain and psychological issues. Perhaps the only way of testing the connection is to try and practice some of the various well-being techniques for ourselvesand see whether they make a difference.

On the pain front, has anybody tried acupuncture for arthritic knee joint pain, and if so, did it work?

Yes, I do try and prioritise my well being and mental health now as well as doing meditation and taking time to relax. If I'm ever in the position of carer again I will make sure I join a support group as well to have some people to talk to who understand what it feels like.

Anecdotally, I know people online who say that acupuncture really helped their joint pain.

Jojo_the_Tightfisted

Sounds like they haven't taken into account that a supportive relationship means the patient is less likely to be left to take on the burden of all housework, shopping, cleaning, physical tasks, maintenance, getting up to make food or drinks and working to pay the bills all by themselves, though. You know, practical help, rather than being told it's all in the mind and not getting any assistance at all.

[goes back to lurking]

Wednesday2000

Jojo_the_Tightfisted wrote: »

Sounds like they haven't taken into account that a supportive relationship means the patient is less likely to be left to take on the burden of all housework, shopping, cleaning, physical tasks, maintenance, getting up to make food or drinks and working to pay the bills all by themselves, though. You know, practical help, rather than being told it's all in the mind and not getting any assistance at all.

[goes back to lurking]

I was just putting the info from the uni out there.

Wednesday2000

I was too tired to respond properly last night (as I had a cold) and realised I haven't even updated how I'm doing on this health thread.

I'm almost a year into doing the amygdala retraining exercises (I started last October) and feel completely back to normal. I don't consider myself to have fibromyalgia now as the pains in my body were gone within a couple of months of doing the brain exercises.

The fatigue carried on as Dr Gupta said it might as he said my body would be sleep deprived.

I have thought for some time that it might be my thyroid causing the tiredness so I went back to my GP and demanded to be put on thyroid medication. My thyroid was in the subclinical hypothyroidism range and it went back to normal in a couple of months when I was retested. So, the fatigue I was feeling probably wasn't all to do with the fibromyalgia diagnosis.

I feel like I have my life back totally. I have been to lots of concerts this year already. At one point I couldn't imagine even going to a gig again as I worried I would be so tired and in pain that I wouldn't enjoy it!

candygirl

Wednesday2000 wrote: »

I was too tired to respond properly last night (as I had a cold) and realised I haven't even updated how I'm doing on this health thread.

I'm almost a year into doing the amygdala retraining exercises (I started last October) and feel completely back to normal. I don't consider myself to have fibromyalgia now as the pains in my body were gone within a couple of months of doing the brain exercises.

The fatigue carried on as Dr Gupta said it might as he said my body would be sleep deprived.

I have thought for some time that it might be my thyroid causing the tiredness so I went back to my GP and demanded to be put on thyroid medication. My thyroid was in the subclinical hypothyroidism range and it went back to normal in a couple of months when I was retested. So, the fatigue I was feeling probably wasn't all to do with the fibromyalgia diagnosis.

I feel like I have my life back totally. I have been to lots of concerts this year already. At one point I couldn't imagine even going to a gig again as I worried I would be so tired and in pain that I wouldn't enjoy it!

That's amazing hun xx