Allergies and experiences

Silver_Lilly

Thanks everyone .

Ok:

1st of all Nestle-I have not targeted just them i have writtn to every company we have used or are likely to use and am still doing so.

Yes it is natural for people to eat pincnics in the park-and for us too.

I may so demanding but this letter got to me-we all do things that other people may not understand even until they are blue in the face-to keep our family safe.

Parties-I would be with her at all times and would be her carer and i am very experienced-people know this-it was just angry that stopped the parent of the child in question to the chilrens event.

I was allowed to take her out this weekend when the parent had calmed down!


Yes it is scary seeing your child having an anaphylactic shock reaction we have been though this twice before she was properly diagnosed.

However she is not going to spend the rest of her life in a bubble!

Pirion does make her sleepy,amongst other things but the alternative cetirizine does too!

Yes some companies are good and some are not and we are not just dealing with nut allergies here.

I think anyone that has children with allergies or not has the toughest job in the world -multiple allergies and shopping must be just as tricky.

yes we are adapting and finding ways to do what ever she/we wants to do.

Schools and allergies-too much to deal with here-But we will be are planning to home educate.

Yes places resturants shops etc areall different and i am finding the connecting to one person within a company establishment whatever is helping a lot.

Think i've covered everything.Its amazing to see the way others cope with things .When i get a chance i will share the good experiences!!

By the way does any one know of any 'Safe' nut free ,egg free,sesame free,vegetarian ice creams on sticks other than mini milk and Magmum?

Hapless_2

Silver_Lilly wrote: »

Thanks everyone .


Schools and allergies-too much to deal with here-But we will be are planning to home educate.

A little advice, join Education Otherwise ASAP even before yours are due for school age. South Gloucestershire council is very anti-HE. So many other home educators have had problems there.

Silver_Lilly

Thanks do you home Ed

dawnybabes

Re allergies - I did wonder if it could e linked to pregnancy cravings - as my LO is allergic to egg & shellfish. Whilst pregnant EVERY day I had an egg mayo butty for my dinner and if in the office had a Morrisons egg & prawn buttie. Another little boy I know with an egg allergy - his mum had boiled eggs like they where going out of fashion. I know not all would get allergies but if you are pre disposed to them perhaps this just tips them over the edge ? After all they don't advise you to have peanuts whilst pregnent now ....

Just my own little thoughts :-)

mumofgirls_2

I have a 9 year old who is allergic to potatoes (yes potatoes) which I can tell you is one of the biggest pains as many companies list starch on their ingrediants but don't say the source maize or potato. This causes major issues we have to carry epipens and don't always know which of the foods she had eaten caused the reaction. They even put potato in birthday cakes! We tend to cook everything from scratch as it is safer for her. I know that we are never going to get an allergy warning may contain potatoes but just accurate labelling would save us a lot of hassles. To all parents out there who carry epipens the company sell a training pack which include a carry pack for the pens (so much better that the boxes they come in) a training pen and poster. We use the training pen regularly and use it to show family members how to use the pen in the event of an emergency. It cost about £12 but was worth it, the case even fits strips of her tablets so it is all in one place.

ladysparklexx

My daughter has sereval food allergies, amazingly her twin doesnt, and so far everyone we have come into contact with has been really supportive. It was very hard at first but we have a good team of helpful people from the hospital. Our biggest problem was when she started school and when all of her friends started to have parties, I took her to choose her lunch box and she always takes her own food with her to parties and i always stay with her. She is now five and its hard on her because although she knows what food she isnt aloud, she trusts that other people will not make her poorly. For example we buy her the special free from jam tarts, chocolate etc so when someone offers her a jam tart she trusts them that this is not the ones that will make her poorly.
When ever she is invited around to a friends house to play we always make the activity of making special fairy cakes at home and then she takes enough for everyone once she is there, this way she doesnt feel left out and also feels special because everyone is eating her stuff.
We did brave camping this year which was difficult and when she does eat out my husband who is a chef normally asks if he could speak to the chef and after a friendly chat asking what they have got she could eat she has always been provided for.
We have also been lucky with our school, although nuts are not my daughters problem they have one child in the school who cant have nuts so the whole school is a nut free zone, dinner ladies are very good at checking lunch boxes so i felt reasured sending my daughter with her allergies. She cant have hot school dinners and she can only watch the cooking lessons but these are a small price to pay for her to be well. She does though have a great big poster on the white board at school and we got her to help make little leaflets and she takes these with her, these she has coloured in pictures of items she cant have.

We know our next big challenge will be a hospital stay we have coming up as i feel she will be very limited in there, and also i would like to travel to france with her in the spring, but these are all things that will be overcome.

I know it seems really hard at the moment, but it might be worth doing little leaflets for people, even my mother in law has problems getting her head around it, and in time you will find that you have fallen into a routine with everything.

seven-day-weekend

I don't maen to sound horrid, but if I thought a child may go into anaphylactic shock at a party at my house, even if I'd taken adequate precautions, then I wouldn''t invite them either. MUCH too stressful! (edited to say: Just read your post when you say you would be there too. In that case I would not have a problem).

I feel sorry for your little girl but I don't think everyone else should have to revolve their lives around her nut allergy.

Hope she gets it under control in the not-too-distant future.

eamon

Just to add, food allergies/intolerances can develop later in life as well. I have dyspepsia (similar to indigestion) and suffered badly for about 24 months before I discovered that for me a trigger was glucose syrup. For about two months I was wondering why I felt great Sat & Sunday but suffered Monday to Friday. The missing thing at weekends was Coffeemate, it's prime ingredient is glucose syrup. Dropped that from my diet and the dyspepsia eased. I still get the odd attack but they are less severe.
Glucose syrup is found in many processed food products coffee creamers/whiteners, processed meats e.g. salami, German bratwurst sausages.
I'm now that man you see in supermarkets reading the ingredients, putting the package back and muttering "why do they need to put glucose syrup into a processed meat product?"

yours

Eamon

blue_monkey_2

Yes Eamon, same with me too. I am 36 and even this year a new one on me is allergies. Because I can sense something happeening I tend to likc the foods first - I know that most of them are fruit based and after having a bad reactio to a fig last year I am extra cautious and I know what is going to start me off. It does seem for me that every year it is something new.

I do often get indigestion an I have really bad tummy pains if eating fresh bread. I don;t eat it that often now, I am a first born, no other kids in the family have it and neither do my parents, who knows??

blue_monkey_2

Ooh, also about pregnancy and allergies, I used to eat Scampi everyday when pregnant but then 2 years later I was allergic!! Can't tie anything else into getting the allergies that I can think of though, they just seem to come on.