Went for neurologist appointment today...

teabag29

Saw neurologist today as i'm still waiting for MRI that was booked as an emergency outpatient on 15th April (my previous thread 'waiting for MRI to test for ms' explains my ongoing symptoms that have been present for a month now) as my symptoms are getting worse.

He explained to me that hes new in the neurologist department. He didn't look up my notes, he asked about my symptoms but i only got as far as my left arm before he interupted and wouldn't let me get a word in. He didnt do any tests on me or read what tests had been done, he didnt even check my eyes as i explained i lost sight in my left eye 10 days ago.

He asked me if i had bad headaches alot, i said no. He asked if i was depressed, i said no. He then decided it was all just migraine and has wrote to my gp to start me on a course on tablets to prevent migraine.....i explained 3 times migraine is not one of my symptoms (i have left sided numbness for a month, face dropped on left side, sight loss, failed tests on reflexes that side and tandem walking i was very unstable, i have terrible itch that wont go on left side, very tired alot of the time, confusion and memory loss and sometimes bad back pain on left side and horrible chest pain).

Am i being silly or am i justified in saying that this is not a migraine, i don't even have a migraine.

Anyway he said my appointment for the MRI will be through soon enough and hes sure it will show nothing so he'll treat me for migraine. Dont get me wrong i hope its not ms and does show its not that but i know my body, i feel sure this isn't a migraine, i dont even have a headache

merlin68

Contact Pals. There miracle workers and complain loudly. I did this and consultant rang me within a few hours all apologetic and sorted it.

billywilly

teabag29 wrote: »

Saw neurologist today as i'm still waiting for MRI that was booked as an emergency outpatient on 15th April (my previous thread 'waiting for MRI to test for ms' explains my ongoing symptoms that have been present for a month now) as my symptoms are getting worse.

He explained to me that hes new in the neurologist department. He didn't look up my notes, he asked about my symptoms but i only got as far as my left arm before he interupted and wouldn't let me get a word in. He didnt do any tests on me or read what tests had been done, he didnt even check my eyes as i explained i lost sight in my left eye 10 days ago.

He asked me if i had bad headaches alot, i said no. He asked if i was depressed, i said no. He then decided it was all just migraine and has wrote to my gp to start me on a course on tablets to prevent migraine.....i explained 3 times migraine is not one of my symptoms (i have left sided numbness for a month, face dropped on left side, sight loss, failed tests on reflexes that side and tandem walking i was very unstable, i have terrible itch that wont go on left side, very tired alot of the time, confusion and memory loss and sometimes bad back pain on left side and horrible chest pain).

Am i being silly or am i justified in saying that this is not a migraine, i don't even have a migraine.

Anyway he said my appointment for the MRI will be through soon enough and hes sure it will show nothing so he'll treat me for migraine. Dont get me wrong i hope its not ms and does show its not that but i know my body, i feel sure this isn't a migraine, i don't even have a headache

I too went to the 'brain doctor' recently as my granddaughter calls her. For the first time in 20 years and after having had numerous brain scans over the intervening years, it has been confirmed finally that I suffered brain damage to the frontal lobe. Why did it take so long I asked? "Because you discharged yourself from A&E 20 years ago following a severe head injury and before we could carry out scans and tests - you were very lucky not to have had a cerebral hemorrhage at the time"

am_bain

When it comes to your health you sometimes have to make yourself heard as Dr's think they know best and do not take into account the fact you know your own body best I had a neurologist I did not really think much off and asked my gp to refer me to another one which was the best decision ever unfortunately I have ms but the treatment I received from my new neurologist slowed it down dramatically so speak up and be heard it's your health I hope you get the all clear.

NotBothered

On a positive note, at least he hasnt cancelled your MRI. The results of that should at least make things a bit clearer. It sucks when DR's pretty much tell you that it's all in your head. Take the ruddy tablets he has given you, as you never know (migraines can cause all sorts of strange symptoms as well), but keep pushing for that MRI!

tomtontom

No one can tell you whether the diagnosis is correct. Has he made a follow up appt for after the MRI?

If any help my mum was hospitalised with the same symptoms for over two weeks. They went between various diagnoses but eventually they put that down to migraine. That's not to say the same applies to you, but a migraine can be very debilitating and does not have to be a headache.

colin13

whats the diffrence between a neuro and god,,,,,god dont think there a neuro
as somone who has ms,sounds like a normall neuro appointment,,they are terrible
ope u get sorted soon

Indie_Kid

merlin68 wrote: »

Contact Pals. There miracle workers and complain loudly. I did this and consultant rang me within a few hours all apologetic and sorted it.

PALS are useless in my experience. I complained due to not being taken seriously. (apparently, being in pain 24/7 and having too pressure in my head is completely "normal" and nothing to worry about) They replied with "well, you've been referred. Case closed".

And then there was the refusal to give me my medical notes from CMHT. (I know there are exceptions - they didn't apply to me)

GlasweJen

Hope you get results soon. I have some really weird neurological symptoms but can't have an MRI as I have a pacemaker. They took blood, did a CT (even though they told me they wouldn't be able to see anything on it), an EMG, another EMG (lost the first set of results) and then a muscle biopsy.

As they couldn't find anything they discharged me, no ongoing support at all and that's only because I can't have an MRI. We know I have a brain injury but neurology don't want to know.

teabag29

If it is ms will an MRI definitely show this or if theres something else wrong? im more concerned in case whatever it is it doesn't show up and then they discharge me as its getting worse, especially the tiredness, im just tired 24/7 at the minute and no amount of sleep is taking it away

rogerblack

teabag29 wrote: »

If it is ms will an MRI definitely show this or if theres something else wrong? im more concerned in case whatever it is it doesn't show up and then they discharge me as its getting worse, especially the tiredness, im just tired 24/7 at the minute and no amount of sleep is taking it away

http://www.webmd.com/multiple-sclerosis/guide/diagnosing-ms-mri - probably.

But 95% of people having it detected means 5% won't - there are very few concrete tests with no error.
Good luck.