PIP interview with Capita this week. (sorry, long post)

oldernotsowise

savykate wrote: »

oldernotsowise, just to update you.
But please do it, you sound like you need it too. I'll let you know when I get a decision.

Thank you for sharing your experience, sounds like a very thorough assessment indeed.
Look forward to hearing your result. Have made my mind up and decided to make the call next week. I phoned my GP surgery today and spoke to the practice manager about copies of letters but was told not to bother as dwp would contact GP directly? Will send appt letters and geneticist diagnosis letter instead.
Good luck

savykate

Amazed to say that yesterday I got my result! Enhanced for both daily and mobility! Totally shocked by that but really grateful and amazed it was so quick. I've been very blessed and surprised.

oldernotsowise

savykate wrote: »

Amazed to say that yesterday I got my result! Enhanced for both daily and mobility! Totally shocked by that but really grateful and amazed it was so quick. I've been very blessed and surprised.

I am so pleased to hear your good news you must be very relieved after all the stress.
Am filling my forms ready for claim, can i ask about extra docs? i am sending geneticist report confirming eds diagnosis and can show rheumy details and physio and orthotics dept. Anything else?
You have given me hope to complete this claim thank you

poppy12345

oldernotsowise wrote: »

I am so pleased to hear your good news you must be very relieved after all the stress.
Am filling my forms ready for claim, can i ask about extra docs? i am sending geneticist report confirming eds diagnosis and can show rheumy details and physio and orthotics dept. Anything else?
You have given me hope to complete this claim thank you

PIP isn't about a diagnosis of any kind. It's all about how your condition/s affect you in daily life. So any evidence that confirms the help you need daily will help. For E.G Consultant letters, Occupational Therapist, GP, or even a family/friend that knows you really well will help. If you use aids at home you can take pics of these and send them in. You can also write a diary for yourself and send this in. Good luck.

benniebert

poppy12345 wrote: »

, or even a family/friend that knows you really well will help. If you use aids at home you can take pics of these and send them in. You can also write a diary for yourself and send this in. Good luck.

Are you absolutely sure that the DWP will accept the above at face value as being genuine and unbiased?
If I was a DM there would be no way that I would accept a letter from a friend/family as being independent evidence.
Likewise photos of this nature could just as well be someone else's. And writing a diary is of no real use. I could write one but all of the entries that I would make would have to be exaggerated at best and at worst a complete fabrication of the truth.


Much better to have Social Services give a report - they will have been to your home to review your needs.

savykate

The supporting evidence I provided was a list of about 11 specialists I'm under and their contact numbers (including physio, occupational therapist, pain management clinic, geneticist, etc), my current prescription list and I did copies of all relevant letters from my hospital consultants and therapists over the last year (there was about 20 and I put them in date and department order). The letters explained beautifully how my life is affected in day to day activities.
Because Ehlers Danlos is a progress condition they know that it will only stay the same or get worse over time. We can't get better but they can help us to live as best we can. I'm in my late 20s and apparently that's when it's supposed to peak, but my Mum says hers peaked in her 30s. Just go through your letters, photocopy them and send as many as you can and that's the best evidence you have for how your life is affected. Just be honest.

poppy12345

benniebert wrote: »

Are you absolutely sure that the DWP will accept the above at face value as being genuine and unbiased?
If I was a DM there would be no way that I would accept a letter from a friend/family as being independent evidence.
Likewise photos of this nature could just as well be someone else's. And writing a diary is of no real use. I could write one but all of the entries that I would make would have to be exaggerated at best and at worst a complete fabrication of the truth.


Much better to have Social Services give a report - they will have been to your home to review your needs.

What i posted above is indeed a fact. Also i did actually post advice about getting a letter from Occupational Therapist which is indeed social services. Then you can take pics of evidence at home. A letter of diagnosis will NOT help in any way.

poppy12345

benniebert wrote: »

Are you absolutely sure that the DWP will accept the above at face value as being genuine and unbiased?
If I was a DM there would be no way that I would accept a letter from a friend/family as being independent evidence.
Likewise photos of this nature could just as well be someone else's. And writing a diary is of no real use. I could write one but all of the entries that I would make would have to be exaggerated at best and at worst a complete fabrication of the truth.


Much better to have Social Services give a report - they will have been to your home to review your needs.

Also there would be a lot of people who would be glad then that you're not a DM. Many people rely on letters from family/friend that know them really well because for a lot of people this would be their main form of evidence, apart from a letter from their GP. Many people have care and/or mobility issues that don't have specialists or consultants. So many people fail to understand what PIP is all about and i was simply giving suggestions of types of evidence. The trouble with some people on here is they're too quick to judge people.....

savykate

poppy12345 wrote: »

What i posted above is indeed a fact. Also i did actually post advice about getting a letter from Occupational Therapist which is indeed social services. Then you can take pics of evidence at home. A letter of diagnosis will NOT help in any way.

Letters of diagnosis for EDS and POTS were helpful for my case because my conditions are so rare and by having the diagnosis, it's clear what to expect from them in terms of deterioration and physical needs. The diagnosis explains what my physical limitations are and my assessor wrote about the diagnoses in my report.
I think at the end of the day all that matters is that you send as much information as you can and then it's up to them to work out what is useful and what isn't.

oldernotsowise

Thank you for all the different view points, i will send everything i have plus diagnosis etc and write a long letter as to how my day to day life has been restricted and where i struggle. As far as aids/aplliance are concerned i will list them and the face to face will show the obvious use of braces supplied by hospital orthotics dept.
many thanks for all the input