Baby steps to mortgage freedom for beanielou.

lindez

Hi Beanie its nice to hear you had a good time, hopefully the rest now will help, I do hope you manage to get to see a physio soon. I understand its a long wait on the NHS my sister is the same waiting she has waited since June and only just got an appointment for October. She like you is considering going private. Hope you feel better tomorrow x

beanielou

abba1772 wrote: »

Sorry your struggling beanie

I used a private physio until my nhs appointment came in which was a year after I had been referred by my doctor and can I just say what a difference it made to me, just having someone explain to me why I was hurting so much and show me exercises that could relieve my pain was definately life changing xx

Sadly the pain will never ever go away.
It is as it is.
With cerebral palsy sometimes the muscles go into spasm & this is the currrent problem & not the every day pain if that makes sense xx

beanielou

lindez wrote: »

Hi Beanie its nice to hear you had a good time, hopefully the rest now will help, I do hope you manage to get to see a physio soon. I understand its a long wait on the NHS my sister is the same waiting she has waited since June and only just got an appointment for October. She like you is considering going private. Hope you feel better tomorrow x

Thank you.
Physio is on my list of things to do which is ever growing.
Also at 50 quid a pop I need to do some serious money juggling.
A Dr friend tells me that she thinks that the spasms need to be pulled out as they are becoming more frequent & severe.

System

Beanie do you pay for any medical cover like health sure to cover for the dentist , glasses etc. When I hurt my back earlier in the year I was able to claim money back for a physio from this.

Also my first appt was through a groupon offer , sorry if not much help just trying to think of ways to make it cheaper . Would you qualify for a home visit from a physio owing to your medical condition.

Hope you get sorted soon . Which I could be of help .

beanielou

The girl I hope to see I have previously seen on the NHS & she is great.
No help with it I am afraid.
No home visits either private or on the NHS AFAIK.

Busy_Mee1

Hi Beanie so sorry to hear that you are feeling unwell.
My Dad got an urgent and immediate referral to a psyiotherapist from the falls prevention team after he had a couple of falls. I know you are much younger than my Dad but I wonder if is worth asking your Doctor about this.

Hope you are on the mend soonx

milann

Oh Beanie, it sounds like you are having a really bad time. Just gentle hugs being sent your way.
Pleased you enjoyed your lunch with family.
Keep posting and plodding. Physio sounds like a good idea....what did the docs say when it first happened...is there no way bypesterinv the GP you could get an emergency nhs appointment.

beanielou

Have done the falls clinic route about 18 months ago.
My problem is that short of not walking at all I am going to fall.

RE the muscle spasms they are a known problem with people with Cerebral Palsy & for me as I get older they are becoming much more debilitating , common & longer lasting.

Slept for 4 hours today.

Sun_Addict

Mr SA went through the falls team and physio. Unfortunately, as in your case, not a lot can be done to help long term conditions Would paying for physio do any good? I would hate for you to pay out then it didn't help xx

beanielou

Sun_Addict wrote: »

Mr SA went through the falls team and physio. Unfortunately, as in your case, not a lot can be done to help long term conditions Would paying for physio do any good? I would hate for you to pay out then it didn't help xx

Well I am hoping she can advise on a way to miminise the spasms & my Dr mate suggested they can be pulled out in some way~shudder!!!