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killerkev

So you have worked for years with the symptoms with no problems so what has changed because someone has put a name to the symptoms!!!!

Indie_Kid

killerkev wrote: »

So you have worked for years with the symptoms with no problems so what has changed because someone has put a name to the symptoms!!!!

Disabilities change.

Torry_Quine

Poppie68 wrote: »

You must of known you were unable to work for 10.5 when you accepted the job? So why take it and now run the risk of losing it anyway? If they sack you, are you going to be able to claim JSA anyway as you will have to actively look for work and CB JSA is only payable for 6 months and with your husband working fulltime you won't qualify for IR JSA.

It does appear strange.

Indie_Kid wrote: »

Disabilities change.

Yes they do, I have ME myself so am well aware of how it can affect you. However without further information it seems that having the diagnosis is what has made her question the ability to do the job. There must be more than muscle and joint pain

rogerblack

tomtontom wrote: »

But they can dismiss for a myriad of non discriminatory reasons. Also there is no guarantee that the OP would have protection under the Equality Act, ME can vary massively in how it affects the individual and hence whether they would be classed as disabled.

This is in general incorrect.
If ME affects you enough that you need adaptions made to work, then you are disabled enough to qualify under the equalities act.
The equalities act (and the underlying EU legislation) test is Extremely broad.

I note http://www.dailymail.co.uk/news/article-2696693/Treat-obese-disabled-says-EU-lawyer-Ruling-lead-bosses-banned-discriminating-against-fat-employees.html?ITO=1490&ns_mchannel=rss&ns_campaign=1490 - which says that even self-inflicted disabilities (being obese) may count.

Of course, they can falsely claim they are dismissing you on other grounds.
This is no less illegal.

suse*

Do you have any probation period on your contract as well because this might exempt you from some of the above. If you have problems sitting for a long time which causes more pain you can ask for an OT assessment, with help from access to work for a more comfy chair or different keyboard mouse etc to help with pain from sitting down too long.

https://www.gov.uk/access-to-work/overview

Starting any new job is hard enough let alone when you finally get a diagnosis you've been trying years to figure out. Have a read up on spoon theory here and pacing in general. http://www.butyoudontlooksick.com/wpress/articles/written-by-christine/the-spoon-theory/ You need to work out how to managage your energy in a day / week, be that your partner has to get used to you flaking out the second you get home, and having to do more round the house. If that means by making adjustments so the cleaning goes out the window so you have enough energy to go to work then needs must at times.

Depending on your needs you might qualify for a benifit called pip which isn't means tested and you can get while still working. The critera are very strict though, and it can take 6 months or more to come through right now, but it is worth looking at a site called benefits and work and their guides to help figure out if your needs mean you might get help. Pip is what is replacing DLA but only pip can be claimed for new people now. They don't class this on your diagnosis though only on what help you need, eg eating, washing etc but only you know how much you can do and how often.

This is another good site as well if you haven't seen it which might help with some questions http://www.actionforme.org.uk/get-informed/welfare-benefits/brief-introduction-to-benefits/personal-independence-payment

Me doesn't have to mean you stop work depending on the severity, but it is all about working smarter and not using all your "spoons" on a monday so you're exhuasted for the rest of the week. The more you can look after yourself the better it might be worth asking gp about the expert paintient program, and if they run one in your area as it helps with some strategies like pacing and with how to try and work the best way with the nhs to get the help you need.

http://www.nhs.uk/NHSEngland/AboutNHSservices/doctors/Pages/expert-patients-programme.aspx

FBaby

Who diagnosed you with ME? You don't normally get it by going to your GP saying that you are some form of symptoms for years and you come out with a diagnosis that just comes to light especially when the main symptoms are muscle and joint pain rather than extreme fatigue.

Is it just your GP who said you had ME or were you assessed by a multi-disciplinary team that would include a consultant specialist?

Horseunderwater

Could also be fibromyalgia too.