New to this part of Mse.

aliasojo

If ever there was a situation being over thought, it's this one. Imo.

A badge is not going to define you, it's a prop to help enable you. Therefore it will have no bearing on your state of mind, other than in a passing, positive way.

lostinrates

aliasojo wrote: »

If ever there was a situation being over thought, it's this one. Imo.

A badge is not going to define you, it's a prop to help enable you. Therefore it will have no bearing on your state of mind, other than in a passing, positive way.

Yes, I know I am over thinking it. Its taken me two years to even work up the guts to ask the question on this part of mse:rotfl: but the doctor brought it to a head last week......


Edit...really, am I the only person who over thinks this? Its so easy to become a 'full time sick person' and live in the limits of what we can do and cannot, and I've been really guilty of that I know. But in some small ways I've been resistant. I've not taken anything I don't need....and it scared me this might be like a thin end of a wedge and before I know it I'll be lostinillhealth not lost in rates anymore.

aliasojo

lostinrates wrote: »

Yes, I know I am over thinking it. Its taken me two years to even work up the guts to ask the question on this part of mse:rotfl: but the doctor brought it to a head last week......

Yes, i did think you were being rather [STRIKE]daft [/STRIKE]brave.

Take your lead from your Doc. He's in the business of being practical.

nannytone_2

lostinrates wrote: »

Teehee.....clarifying driving is funny!

I started to have sight problems last year, but I don't have to give up my licence yet. When/if I do things will get very much more difficult. We live rurally and we'll have to find a whole new host of ways to manage. I've had a car since a few weeks after my seventeenth birthday and apart from when I have been too I'll to drive (for about a year) or days here and there I have always had a car.


Yes, no taking the last parking space, thanks, that makes sense.

i live in a rural area too and public transport is a nightmare, so access to a car is almost essential.

i was registered blind in 1996. my consultant said 'do you drive?'. i said no and he replied 'thank god for that!#
i do miss being able to rise a bike. i used to take the kids on long bike rides, but cant do it with the grandbabies,
still there are some positives .... i cant be trusted to change the youngest ones nappy!

Parva

Get your application in! The rules are tighter than ever now and if you qualify then you are certainly worthy of it regardless of your own rose-tinted view of your disability.

HB58

It's not as if there are a limited number of blue badges, your having one will not deprive anyone else. Try to look at this as a way of increasing your boundaries, not narrowing them.

Parva

You might also want to think about applying for DLA (or PiP I think it is now). It's a non means tested benefit (you could be Richard Branson and still receive it) - as far as I'm aware anyway. Either way, certainly apply for that blue badge.

patanne

I would say definitely apply for a badge. Look at is an insurance for a future date when you may have to be somewhere & are having a "bad" day. You just keep it in your bag ready just in case you do need it. It is going to enable you to do something in the future instead of you having to say I can't.

kurgon

Hi
Approaching it as a watershed moment probably won't help. You need to review what's happening and look for an additional aid, not to clarify your position, but to enable you to continue functioning in the same way for longer.
Not sure where you live, but a number of organisations are now starting to use CBT for pain management. It is specialised and focuses on catastrophisation and coping strategies but has some very good outcomes.
I would just say, look at what you do, and look at what can help you carry on doing that for longer. Don't let it define or change you, but embrace it as the assistance that it is.

lostinrates

kurgon wrote: »

Hi
Approaching it as a watershed moment probably won't help. You need to review what's happening and look for an additional aid, not to clarify your position, but to enable you to continue functioning in the same way for longer.
Not sure where you live, but a number of organisations are now starting to use CBT for pain management. It is specialised and focuses on catastrophisation and coping strategies but has some very good outcomes.
I would just say, look at what you do, and look at what can help you carry on doing that for longer. Don't let it define or change you, but embrace it as the assistance that it is.

Thanks, yes, that's the problem, I have looked on it as a watershed.


Hmm. I need to think. About that. I'm really kind of surprised no one else seems to have struggled with this. I feel a bit more of a freak now :D


I don't think I need cbt. I cope quite well, I'm quite bullish about the pain and work through it well, and have tried some of the alternatives like acupuncture offered in local pain clinic to no avail. I've got five consultants ATM, and lots of hospital appointments, I don't want pain clinic too, its the getting about that takes so much out of me and makes trying to keep up at home to any degree difficult.

I'm remarkably lucky in some ways, one is my stubborn nature, . (I have been known to sort of drag myself around on the ground and roll when I can,t walk,:o...alright at home and around my yard, not great out in town :rotfl: and I have a very high pain threshold. I can feel it alright, but I cope. I don't like the sort of pain relief that takes me 'out of myself' and remaining functional is key for me so I blunder through.

I have developed a bit of a doctor phobia over this time, which I think gets confused with depression. I get down, who doesn't, even perfectly well and very blessed people do! But I am lucky enough to feel not depressed. Some of the drugs I am on have a high risk of depression, I was on a bit of a suicide watch this summer with one, but I'm fine. I know that could change. If anything I get cross, or have the odd once in a blue moon weep, but then get on with things. Some times the pain brings me to tears, but not depression, just ruddy pain. . I rarely buy non water proof mascara these days.

In fact, that's the other way the doctor says I'm not helping myself. He says that by 'papering over the cracks' (his words) I don't let people see how bad it is at times. Now, I don't really know what one does about this, you cannot just give up trying. And sometimes front is what gets your through,