Best place to get help for my daughter

Spendless

This not labelling makes me cross. Grrrrr. It led to my friend not being diagnosed/not told she was bi-polar until her late 30s, despite having her first attack when she was 19 and being hospitalised on several occassions between these times. They wouldn't have said the same if she'd been diabetic and as far as I'm concerned it IS the same thing, both are medical conditions.

OP I sympathise. I suspect my dd has some sort of sensory disorder, but have hit a blank so far in finding out. I too would try the school if you can't get anywhere with your GP.

You could also contact any charities that you suspect she may have a condition of eg dyspraxia or autism and have a chat to them. They may be able to signpost you to someone or suggest another route to take.

Troutwrestler

Thanks, I'm now feeling quite quilty about not pursuing things when she was a baby. I always thought there was something not quite right, but I was continually told it was fine, she would catch up.
She didn't walk until she was 20 months, never crawled , never babbled, and as I said was very delayed with her speech.

As soon as she started nursery they picked up on her differences but no one can tell me what it is or how to help her really, as long as she seems to be doing ok and kind of floating along at school that seems to be great with them.

I worry about how she will cope in the future and really want to get her the support she needs.
I will speak with senco and gp first thing on Monday.

Thanks again x

Octobergirl

I struggled for 2 years to get a diagnosis for my daughter, I felt an overwhelming sense of relief when I finally got it, as I could then do research and find ways to help.

Have you had a look at sensory processing disorder? There's obviously many different types which can lead to diverse difficulties. My daughter has vestibular problems, startles and doesn't cope with loud noises.

I'm afraid I agree, medical bods don't like to label as they then need to finance support if its in black and white.

There is a forum on 'special kids in the uk', a very friendly bunch which has a wealth of varied knowledge, might be worth posting to see if anyone can help.

keep_flyin

You need a referal to a community paediatrician. They can then take a proper history. When you say she is on the SEN register is this School Action or School Action plus and does she have IEP's?

Troutwrestler

keep_flyin wrote: »

You need a referal to a community paediatrician. They can then take a proper history. When you say she is on the SEN register is this School Action or School Action plus and does she have IEP's?

As we are in school she's on the staged intervention plan. I have meetings with the sen coordinator and she seems happy with my daughters progress, but I have to say that as she gets older the difference between her and her peers is becoming more apparent.

globetraveller

While it may not be autism, it sounds like your GP does not really know what autism is. The one thing I have learned from all my experiences of autistic children is that every one of them is different.
A label might not mean anything more than just being aware and knowing how to work with it. Coping strategies can be put into place to help the child. Just keep pushing and good luck with it.

ahja

Have you considered dyspraxia, as how you described your daughter fits my grandson who has been diagnosed with it?

Worth a look at the Dyspraxia Foundation website if you haven't thought of it.

coolcats

see if you can see the school nurse, they can push things if the GP wont.

Troutwrestler

ahja wrote: »

Have you considered dyspraxia, as how you described your daughter fits my grandson who has been diagnosed with it?

Worth a look at the Dyspraxia Foundation website if you haven't thought of it.

Thanks I will have a look, my brother is dyspraxic, although I'm not sure it runs in families, so I will have a look.

delain

Troutwrestler wrote: »

I brought up the subject both with senco and the gp.
Senco didn't really want to comment but said it was a possibility and asked us to make an appt with the gp. Gp has dismissed that straight away, saying if she was she wouldn't be chatty and loud and outgoing, he seemed to think autism would present with exact opposite traits

My twins have mild ASD and are pretty much exactly what you described. See another GP and ask for a referral to the community paediatrician. The school can also refer so don't let them fob you off.