kidney transplant support to wrag

epitome

nanytone,
Do you aleady get EDP?

If you want help to find out what monetary difference would be for SG, you know what info we will need, you probably don't need help with this.

You can be in Support Group and volunteer for WFI and Work Related Activity.

How do you read the computer screen then? If you use reading software... what does your software do when it hits a spelling mistake?

stevemLS

Another post that turns out, in fact, to be about nannytone, despite what you might have thought!

epitome

stevemLS wrote: »

Another post that turns out, in fact, to be about nannytone, despite what you might have thought!

The OP has had his answers, what's your problem?

jacques_chirac

stevemLS wrote: »

Another post that turns out, in fact, to be about nannytone, despite what you might have thought!

I was thinking the same thing!

nannytone_2

epitome wrote: »

nanytone,
Do you aleady get EDP?

If you want help to find out what monetary difference would be for SG, you know what info we will need, you probably don't need help with this.

You can be in Support Group and volunteer for WFI and Work Related Activity.

How do you read the computer screen then? If you use reading software... what does your software do when it hits a spelling mistake?

i use JAWS ( screen reading software)

i dont get any premiums as i only receive low rate DLA ( thats another story 0
im not concerned about the monetary aspect at the moment, but i know i will be very soon as my direct payment funding is currently being reassessed, and like everyone else, i am expecting a cut.
i actually wualify for high rate mobility, but had a very unsupportive consultant who refused to send reports without a ridiculously high payment.
he also only ever wrote 'condition deteriorating' on letters to the GP.

i have a new consulltant now and she seems a lot more supportive and i have a benefits advisor coming to see me tomorrow to complete new forms

GlasweJen

You won't get support group for being on immunosuppressants. I'm suppressed and work with the public! There are things to consider like hand hygiene, exposure to people carrying dangerous illnesses and working your visits to the transplant team into your work routine - it's hard when you need every other Tuesday morning off but it isn't a huge barrier to work.

All transplant patients have some degree of graft-host disease and we are expected to learn to live with it, it's not so debilitating that we can't be safe going about our lives and if it is then you'd be in hospital.

The reason you're kept in a side room at the hospital is to stop you infecting the sick people recovering from transplant on the ward by the way.

SmallL

I was offered immunosuppressants for my eczema, both types i would have had to have weekly/bi-weekly blood tests.
I'm only 21 and the side-effects and impact on my life is enough to convince me to simply try to cope without. I feel really sorry for those who have not had a choice and must take them.

nannytone_2

i dont thinl glaswejen feels sorry she has to take them!
they enabled her to have the traspnat she desperately needed.

if immunosuppressants are the worst thing ever, then no one would ever have a transplant!

GlasweJen

I was hours from death and drowning slowly in my own body fluids, believe me immunosuppressants are a walk in the park!

nannytone_2

i feel quite queasy now!