A Vent.... At Life!!!

Georgiegirl256

RuthnJasper wrote: »

Lovely post Georgiegirl, bless you. x

WIK - Please let us know how you get on and the outcome of the tests. I'm keeping everything crossed for you... xxx

Thank you RuthnJasper!

I think with developing it when I was only young helped me deal with it better than if I'd developed it as an adult (if that makes sense?!), as I think when you're younger you don't think about and analyse things as much....actually, that's very true? I'm a born worrier now lol!

I think in general though, people are more educated about it now than they were years ago, which is good

Georgiegirl256

coolcats wrote: »

For those with Epilepsy there is a facebook support group totally recommend. Its for all ages, and for people supporting people with Epilepsy. They are a registered charity.

Epilepsy sucks uk

I'm not on Facebook, but that sounds a really good group! Definetly worth a mention!

Valli

didn't want to read and run - hope everything turns out ok;

but please don't let your daughter lock herself in the bathroom at all, to use the loo, shower or the bath - especially the bath, for the time being at least.

Georgiegirl256

Valli wrote: »

didn't want to read and run - hope everything turns out ok;

but please don't let your daughter lock herself in the bathroom at all, to use the loo, shower or the bath - especially the bath, for the time being at least.

This is VERY good advice! I had a fit in the shower once, my Dad found me, it's one of the only times I've seen him cry

coolcats

Georgiegirl256 wrote: »

I'm not on Facebook, but that sounds a really good group! Definetly worth a mention!

They also have a website http://esuk.uk.com worth a look. They give anti-suffocation pillows away or you can buy them at a reduced rate, ideal if you suffer fits during sleep.

Mylo_The_Moggy

There is also Epilepsy Action, they are brilliant & offer lots of advice.

http://www.epilepsy.org.uk/?gclid=CL...FYHHtAodCQsAvQ

Also on Facebook. x

https://www.facebook.com/epilepsyaction?fref=ts

And it's also National Epilepsy Week this week, 19th-25th May. xxx

Humphrey10

Valli wrote: »

but please don't let your daughter lock herself in the bathroom at all, to use the loo, shower or the bath - especially the bath, for the time being at least.

I'd recommend avoiding baths completely tbh, not worth the risk.

MamaMoo wrote: »

I think that Humphrey may have been making a joke there, as later in the post they say

The first seizure I had was while driving, only the fact the car was in a hedge and I didn't remember it getting there (or the head-on crash with the other car) made me realise I'd lost consciousness at some point!

wik

Thank you so much for all the kind replies, Today we have had a very chilled day and talked a lot, one thing i am scared of is if she says she has a headache, as she had one on thursday, and then was ill on friday.
Tomorrow I should get a call from hospital with dates for the tests.

I am going to keep her at home, the doctor at the hospital said she w
should be ok to go to school,and was up to my judgement, but she is very very tired, so want her home tomorrow.

I spoke with my darling monsters half sister last night, she is 22 but was diagnosed with epiepsy when she was 8!!! Her mum at the time had no contact with my ex, and we were never informed. :mad:
I never knew about mum in law, as when i got married she was in a home in final stages of dementia, and passed away not long that.

This has made me really think about the importance of finding out about medical historys!


(a slightly calmer) wik x

Caitlin_Bree

Just wanted to offer my sympathy.
Some years back after my brother in law's wedding, my partner who is not epileptic and had not been drinking anywhere near to excess, was hideously sick all over the hotel bed, passed out and started seizing. I was terrified.

It was a small hotel with no night staff, I had no idea where the rest of the family were and no phone. Also no idea of where I was staying. All rational thought went out the window and I ended up trying to find the check-in sheet in an empty reception so I could find the rest of his family.
I really don't know why I didn't just scream for help.

I managed to find them and they called an ambulance, he'd been seizing for at least ten minutes and was awake again by the time the crew got there. Everyone convinced him to go to the hospital (he was half asleep, exhausted from the seizure and really didn't want to go).

The feeling of relief and reassurance I got from a smile from the paramedic on the way, was like nothing I've ever experienced before, or since.
I can honestly say I've never been so scared. It still upsets me now.

He was tested for epilepsy but they found no proof, and he has not experienced anything like it since.
He thinks it was something to do with a skiing accident he had that knocked him out, combined with the stress of the day (being best man).

I really hope that your nerves have settled and that your daughter is ok. Best of luck to you both.