A Vent.... At Life!!!

wik

I am needing to vent, as I cant cry just now......

Yesterday for a friday morning when you have teenagers it started well....

youngest dd (13)got up in a fab mood... hugs for me, and she popped through to see her grandad n his bit of house, gave him a huge hug when he gave her some pocket money (she was to go to a friends for a sleepover last night)

I then carefully woke other DD up, and headed down to do brekky, pack ups etc...

5 mins later youngest dd walks into kitchen, I speak to her, and she ignores me... hmmmm i say to her, whats up, nothing, just silance
so after about 5 mins, i have finished pack ups - i look up and see her making a funny face, next thing, she is all contorted, then falls to the floor, having a fit!!!

I have to say was the most scary thing ever... I shouted to other dd to get granddad, bless him he came running, and i grabbed phone to call 999...

I have to say the lady on 999 was amazing, as i have to admit i was a wee but paniking...

ambulace got here 20 mins later.. the joys of rural living (NOT) it has to be longest 20 mins in my life!!! DD's eyes were just staring and i am not being melodramatic, but I thought i was going to lose her!!
she then went on to have 2 fits once ambulance was there...

she has been looked after amazingly in our hospital and is fine now, she is to have tests for epilepsy next week.

one thing i never knew was my mum in law - who had alzinmers when i got married and was in a home had epilepsy, and one of my ex's grown up daughters does as well- was never in contact then so didnt know....

sorry to be so random, but i just wabt to scream at the unfairness of this all, and not even been able to cry properly as dont want my dad or girls to know how scared i have been ...

sharnad

that must have been really scary but she will be able to get help now to manage it

Amber_Sunshine

I think you can be forgiven for spelling errors under the circumstances. It was a frightening experience, so don't feel that you have to "be strong" and hide your feelings. Let it out, cry if you need to, your family will understand and support you.

Mylo_The_Moggy

What a scary experience for you to go through, as well as your daughter.
My hubby has epilepsy & I have to say, even after being with him for 14 years, it still scares the hell outa me when he has a full blown seizure.

He has them at night when he's asleep & it is pretty scary stuff to see & also hear. As with your DD, my hubby stares blanky when he's going into a fit & it's that that actually freaks me out.
After 14 years you'd think I'd be used to it, but I have never been able to fully settle at night for worrying he's going to have a fit. Not the best of things, but I'm always on edge.
I feel your worry & upset at what you have witnessed. It is always heartbreaking to see our loved ones ill.

Hubby was diagnosed nearly 30 years ago & has had various meds over that time. It's only in the last few years the ones he's on now have finally settled the seizures down.

I hope & pray you never have to go through this again & that your DD will be ok. Lots of hugs to you. xxx

RuthnJasper

Oh Wik, what a wretched situation for you. Please know that there is absolutely no shame in being scared about what happened - all that it proves is that you love your daughter dearly.

Epilepsy is a deeply unpleasant thing, but there are a great many people who have it and still live active, fulfilling lives.

And, until the test results are back, it may not even be Epilepsy.

I would say that the best thing is to be open and honest with your lovely girl (and the rest of your family). It's OK to admit that you're scared and don't have all the answers. My mum has had cancer twice now (in remission now, thank heavens), and although it's not seen as "good" to admit that you are scared and uncertain as well, I've found it the best way for the immediate family. My mum told me, when she was first ill, that she wasn't scared of the cancer - but she WAS terrified of other people's pity (however well-meaning). This, in turn, helped us to help her in the way that she wanted.

Whatever the outcome of your daughter's tests, I wish you and your family all the best. And, whatever your family-history might suggest, this is NOT "your fault" and does NOT make you "a failure". No-one in my family had breast cancer before my mum. Sometimes there is simply no explanation as to why or how these things happen.

Every blessing. xxx

Georgiegirl256

RuthnJasper wrote: »

Epilepsy is a deeply unpleasant thing, but there are a great many people who have it and still live active, fulfilling lives.

Yes....Me! :rotfl: Just kidding, but to be serious for a minute, I have had Epilepsy since I was 8, and like you say, still lead an active life :)

And, until the test results are back, it may not even be Epilepsy.

Very true.

I would say that the best thing is to be open and honest with your lovely girl (and the rest of your family). It's OK to admit that you're scared and don't have all the answers. My mum has had cancer twice now (in remission now, thank heavens), and although it's not seen as "good" to admit that you are scared and uncertain as well, I've found it the best way for the immediate family. My mum told me, when she was first ill, that she wasn't scared of the cancer - but she WAS terrified of other people's pity (however well-meaning). This, in turn, helped us to help her in the way that she wanted.

So glad to hear you Mum is doing ok now :j

Whatever the outcome of your daughter's tests, I wish you and your family all the best. And, whatever your family-history might suggest, this is NOT "your fault" and does NOT make you "a failure". No-one in my family had breast cancer before my mum. Sometimes there is simply no explanation as to why or how these things happen.

Again, very true. I know for a long time my Mam blamed herself for me developing Epilepsy, for a number of different reasons, still does to a certain extent I think, but as I have told her so many times, it's not down to her in any way shape or form, it's just one of those things.

Every blessing. xxx

It must have been so scary for you OP, I remember my Mam telling me that the first time she saw me having a seizure, she thought I'd had a stroke or something, and was so scared.

I wish you and your daughter all the best, and hope her tests go ok (I know how scary it can be when you're only young ), and hopefully it was just a one off, but remember, even if it wasn't, you'll all get through this, you'll learn how to deal and cope with it in your own way

Ps, I'm writing this on an iPad and tried to differentiate my replys above in red, but just managed to highlight the first and last words, but at least it makes them stand out abit, so you can see what's my writing etc.

Humphrey10

Mylo_The_Moggy wrote: »

What a scary experience for you to go through, as well as your daughter.
My hubby has epilepsy & I have to say, even after being with him for 14 years, it still scares the hell outa me when he has a full blown seizure.

YMMV but here is my experience:
I've got epilepsy, and the seizures look far more scary to onlookers than they are to me.
I know when I have had a seizure because of the feeling I get beforehand and the strangeness afterwards, but I am never aware at the time of any loss of consciousness or convulsions (as far as I know, I don't always have convulsions or lose consciousness for more than a moment) - I usually have to work out what has happened eg do my limbs ache? Have I bitten my tongue? If I am watching TV, does it look like I've missed parts of the programme? Is the car I was driving now smashed up and in a hedge? and so on.

RuthnJasper wrote: »

Epilepsy is a deeply unpleasant thing, but there are a great many people who have it and still live active, fulfilling lives.

Other than not being able to drive it doesn't really affect my day to day life.
Faffing around trying to get the right dose of the right tablets is a chore, but for most people it is possible to fully control the seizures with the right treatment (or so the neurologist told me).

Good luck to you and your daughter OP x

SpammyTheSpammer

Humphrey10 wrote: »

YMMV but here is my experience:
I've got epilepsy, ....
Is the car I was driving now smashed up and in a hedge?

"If you have a driving licence, and have a seizure of any kind, the DVLA regulations say that you must stop driving."

http://www.epilepsysociety.org.uk/AboutEpilepsy/Livingwithepilepsy/Drivingandtravel/Drivingandtransport?gclid=COGR1se9obcCFc3HtAodkwYAYA

MamaMoo_2

SpammyTheSpammer wrote: »

"If you have a driving licence, and have a seizure of any kind, the DVLA regulations say that you must stop driving."

http://www.epilepsysociety.org.uk/AboutEpilepsy/Livingwithepilepsy/Drivingandtravel/Drivingandtransport?gclid=COGR1se9obcCFc3HtAodkwYAYA

I think that Humphrey may have been making a joke there, as later in the post they say

Humphrey10 wrote: »

Other than not being able to drive it doesn't really affect my day to day life.

RuthnJasper

Georgiegirl256 wrote: »

It must have been so scary for you OP, I remember my Mam telling me that the first time she saw me having a seizure, she thought I'd had a stroke or something, and was so scared.

I wish you and your daughter all the best, and hope her tests go ok (I know how scary it can be when you're only young ), and hopefully it was just a one off, but remember, even if it wasn't, you'll all get through this, you'll learn how to deal and cope with it in your own way

Ps, I'm writing this on an iPad and tried to differentiate my replies above in red, but just managed to highlight the first and last words, but at least it makes them stand out a bit, so you can see what's my writing etc.

Lovely post Georgiegirl, bless you. x

WIK - Please let us know how you get on and the outcome of the tests. I'm keeping everything crossed for you... xxx

coolcats

For those with Epilepsy there is a facebook support group totally recommend. Its for all ages, and for people supporting people with Epilepsy. They are a registered charity.

Epilepsy sucks uk