Any one with FMS?

Hapless_2

Tobruk, that actually sounds more like FMS, but then as I say they cross over in symptoms a lot.

TOBRUK

Well Hapless I saw a CFS/ME specialist about 9 years ago and he said that I had ME but there was nothing he could do for me. There are times when I really find it hard to function as you and others here would know. Today I am finding it hard to put sentences together as my mind is very foggy so I apologise if my posts seem dysfunctional, if that is the right word!

However back to the subject of DLA, it is very difficult getting round these forms when you have such a condition, I didn't think of applying for a few years although I also have a disability. It is important that you do apply and even go to tribunal if need be, however I do believe that they are recognising CFS and such more now than in the past.

DenBo_4

Hello Hapless and Tobruk, pleased to meet other Fibromyalgia sufferers on here. :beer: I have been off sick for nearly a year, I have applied for DLA but was turned down flat. I was told they went by the PCA doctor's report, who said I was too ill to work for 18 months but obviously not sick enough to get DLA! :mad: I have been to see a Welfare Rights Officer, who is helping me to appeal the decision, I have to pick up my doctor's report tomorrow and see the WRO as well, and send it off to DLA. He's hoping that with the doctor's report they will allow DLA without having to go to appeal. Hapless, did you get your DLA first time?

DenBo_4

Sorry JoeBlack066 I didnt mean to miss you out, welcome

DenBo_4

Ok, one of the problems of Fibromyalgia is "fibro fog" and I'm going to have to use that as my excuse for not reading ALL the posts properly and realising there are several people posting.............so welcome to everybody, pleased to meet you :beer:

emilyt

I too suffer from fibromyalgia.I have been off work for the last 5 years because of this awful condition. The first time i applied for D.L.A i recieved it with no problems. Last year there was a big delay in the outcome. Eventually i was awarded D.L.A at the same rate again. I had my rheaumatoligist and my doctors to back me up. It really is an awful illness. So glad there is another thread on this subject.
I do think that if you are working that it is harder to claim for D.L.A. when you are suffering from fibromyalgia and ME. Just from experience of other people i know.
If anyone needs any advice on filling the form in please PM me i will help if i can.
Take care everyone.
Emily

emilyt

daisy_doughnut wrote: »

can i just ask u a few questions as i have a illness that the doc just cant find what it is

ive had joint pains for yrs especially in my knees i have an x-ray an nothing
i had loads of blood test for various artheritus an nothing

when they get bad i can barely walk an the pain goes in to my upper an lower leg muscles an then to hips an back

i do suffer tiredness alot i have the normal night sleep of around 9 hours but i allways need a few hours in the day an i allways seem tired when my legs are bad or my stomatch it makes me have many restless nights tho like last night fell asleep around 1 was awake often an got up at 5 as i gave up i have had a few hours since tho

ive suffered bad with my stomach for yrs ive had cameras that say i have a slightly inflamed lining but the symptoms dont match the illness if u get me im constantly with a pain weather it be dull or sharp an often feel sick every so often it get very bad an sets off bowel problems

i suffer with anxiety panick attacks depression an short term concentration an memery probs i have to write almost everything down or i will forget

ive never heard of FMS before

do u think its worth asking the doc about it as im only 31 an sometimes feel like im in the body of an 81 yr old ive been like this for at least 8-10 yrs an its gettin no better

thanks

These sound like classic sypmtoms of fibromyalgia to me. Go and look up fibromyalgia on google and maybe you will get some answers.
Take care.
Emily

daisy_doughnut

hi all
i had an appointment at the docs tonight any way an i brought it up
he told me to jot down all symptoms an come see him if they dont get any better which i know they wont
i think he was more concerned about my aching limbs an muscles which hurt alot at times i cant climb the stairs or walk easly
im going to do this an go back in a week or so to see what he thinks
you've all been so helpfull

thanks

oh one last thing is there ant creams ect you can recomend to ease the pain
maybe this thread should also be started up on the health board as well

take care all

DenBo_4

When I first started to get Fibro symptoms I had pains in my lowers arms, my doctor prescribed "Feldene Gel" (Piroxicam) and I have found it to be brilliant and still use it years on. Not many people appear to have heard of this but if you wake up in pain in the night, rubbing this in gets rid of the pain for long enough to get back to sleep! My doctor doesnt rate it but I do, the only problem is it has to be rubbed in well to work, and when your arms/shoulders/wrists or fingers hurt it can be a problem. But as you will discover with Fibro, there's always problems!

debbiedolittle_2

hi i have just been diagnosed with fms, i have suffered with it for about 8 to 9 years maybe more, at first the doctors said i was suffering with depression, then i started having panic attacks and night terrors and flashbacks and all sorts of differant things constant headaces ibs inflamed stomach i am also scared to out the house, i was in pain with my knees having to put pillows under my legs also when i did sleep i would wake up felling bruised all over, i thought i had artheritis as my fingers and wrists and knees would swell up but after years i seen a rheumertoligist who said i had fms and i always will i have to go to phisio, i have two kids and if it was not for my friend i would be alone, she does a hell of lot for me ,i cannot go out on my own, i have read your forum and have seen i could be entitled to dla i did not know this has any one any advice for me and how to go about applying, it has taken me weeks to get the cougrage to write this any help would be appreicated, please excuse my spelling