Any one with FMS?

joeblack066

Hiya! I have Fibromyalgia Syndrome, which means that some days I am too exhausted to move out of bed, and when I am not, I have all over pain. I manage this as best I can, and work full time, tho sometimes it nearly kills me to go in, and apart from work and family, I have no other life as I am just too tired and in pain. I claimed DLA last year, but was turned down accross the board. Is there anyone out there who has FMS with a successful DLA claim?

Hapless_2

I have FMS and get DLA.
The knack with DLA is filling the form. You don't put I have FMS and it does this, you also need to list your symptoms (IBS, Muscle cramps, migraines, fatigue etc) and how they affect your day to day living. I am unable to work due to mine as I cannot sit or stand for longer than 20 mins and the act of doing so hurts. I spend a lot of time lying on the sofa or bed. it has got to the point that huby has just quit work to help me out. I had to wait 10 yrs for a diagnosis, but diagnosis does not = DLA. You need your GP on side. Whenever a new sympton appears or you have a flare up, see the GP, every fall, see your GP, every bout of IBS, se your GP. You have to assume that whoever reads your DLA form is an idiot (remember they have no medical background) so you have to describe everything in detail. send photos, statements from friends and family, dvd recordings of a bad day anything that could help.

joeblack066

Thankyou so much!! Since the denial for DLA I have had a terrible 6 months, with severe deprssion exacerbated by debts/ work/ stress/ work all of which has had a negative effect on my FMS, but I have stupidly been refusing to go to the GP (If he thinks I don't need any help then I'll do this on my own - kinda attitude). I need to be honest with myself about when I need to see the GP, and get the support that I need. I think that I have been so let down in life by partners, the last of whom included ridiculing my FMS symptoms when bad, that I have tried to be too independant. I try to hide my FMS. Thankyou for making me see that being strong is dealing with it, not ignoring it.

Hapless_2

Try keeping a diary, that might help if you decide to go for DLA again.
the independance thing, i can associate with..."I can manage"..(no we bl00dy can't but we are not going to let others think that. d@mn dropped another plate!)

Good Luck

daisy_doughnut

hi there

i dont know anything about your illness eventhough its sounds similar to my medical problems
but not going off subject..lol..go to the CAB and ask to see someone who can help you fill in the form

my friend has a weird illness one i cant even spell its that long but its not that common
she filled in the DLA form her self an got the lower rate on one
she appealed an had the CAB help her an now gets the higher which is what she needs

good luck

I JUST FOUND THIS MAY HELP

http://www.disabilitysecrets.com/applying_for_disability_with_fibromyalgia.html

daisy_doughnut

can i just ask u a few questions as i have a illness that the doc just cant find what it is

ive had joint pains for yrs especially in my knees i have an x-ray an nothing
i had loads of blood test for various artheritus an nothing

when they get bad i can barely walk an the pain goes in to my upper an lower leg muscles an then to hips an back

i do suffer tiredness alot i have the normal night sleep of around 9 hours but i allways need a few hours in the day an i allways seem tired when my legs are bad or my stomatch it makes me have many restless nights tho like last night fell asleep around 1 was awake often an got up at 5 as i gave up i have had a few hours since tho

ive suffered bad with my stomach for yrs ive had cameras that say i have a slightly inflamed lining but the symptoms dont match the illness if u get me im constantly with a pain weather it be dull or sharp an often feel sick every so often it get very bad an sets off bowel problems

i suffer with anxiety panick attacks depression an short term concentration an memery probs i have to write almost everything down or i will forget

ive never heard of FMS before

do u think its worth asking the doc about it as im only 31 an sometimes feel like im in the body of an 81 yr old ive been like this for at least 8-10 yrs an its gettin no better

thanks

Miss_Money

My sister has FMS, im going to make her read this thread tonight it might help her thanks for posting

Hapless_2

daisy doughnut I would ask your doctor as Fibro has to be considered as a possible reason for illness. Again keep a diary of how you are feeling and symptoms, it's handy to show the GP.

TOBRUK

I have had ME or CFS for years now and had to leave work 7 years ago. Looking up FMS the symptoms are so so similar you would think they are the same illness. I receive DLA and I would say joeblack not to give up trying for DLA and most important is to put your GP on the form where it asks for someone to contact with regard your condition, it does make a big difference. I am having a bad day and haven't got dressed today (again) pain killers not helping and mind very foggy! I live on my own and can see things that need doing but won't be done!
Anyway good luck joeblack and although it is hard work fighting for DLA especially with your condition you must.;)

Hapless_2

Sometimes CFS and FMS coincide, it starts with the tiredness and fatigue and ends up with pain a few years later.;)

TOBRUK

I have had ME for years and the pain is awful, when your body just hurts all over, when you wake up in bed and have to move because your body hurts so much and then it is hard to move because of the pain and the stiffness - am I making sense?