Please, Please sign this.......

redwineguzzler

bright_side wrote: »

Have signed and shared on FB so hopefully that will help a little too x

I am so very sorry to hear the sad news about your son. My thoughts and prayers are with you to give you the strength to get through this desperately sad time x

My big sister was diagnosed with a brain tumour when she was 28. They said it was a childs tumour and would've been growing since she was tiny. It's terrifying to think it could go undetected for so so long. Her only symptoms had been dizzy spells when she was in her early twenties and her GP dismissed those by saying 'all young women get dizzy spells'. At 28 she had two fits which prompted a brain scan, followed by diagnosis, an operation to remove what they could and then radiotherapy. We were told it had 'gone'. She had yearly brain scans for around 8 years and then was told she didn't NEED to see the consultant again......however she could still see him yearly if she felt it would give her peace of mind. The yearly checkups continued, but never any mention of a brain scan.

When she was 43 she found she was unable to write properly and she would miss her mouth when she tried to drink. The brain scan revealed the tumour had returned with a vengeance. She couldn't be operated on again, so was given chemo for a few months before they realised it was too late. A few months later she was gone.

It's hard not to wonder what if?? ........

I sincerely hope this petition does some good.

Sending you love and hugs xx

A very cruel disease indeed, my thoughts are with you.... ((HUGS)) xx

Tiddlywinks

Thank you for being brave enough to share your story... if enough people come together on this then we can make a difference. Not enough is known about this horrible disease - I lost my mum to a brain tumour a few months ago. The doctors just didn't spot the obvious signs until it was way too late - how many more times can this be allowed to happen?

I support the Samantha Dickson Brain Tumour Trust which is part of the Brain Tumour Consortium - if you haven't contacted them already then please give them a try. They have some great people working on the helpline and have been really supportive to me; even just for a chat when things were going badly and I needed to vent.

They are also looking for people to share their story and help spread the word - I've joined the campaign just hoping that something good can come from something painful....

http://braintumourtrust.co.uk/

You have enough on your plate at the moment; my thoughts are with you... all you can do is make the most of the time you have together and keep being a mum.

Maybe, sometime in the future when you need to make sense of everything, the trust can help.

Best wishes...

chrissie57

So sorry about your son.

have signed and shared on FB

nuttywoman

Signed & shared xx

redwineguzzler

Tiddlywinks wrote: »

Thank you for being brave enough to share your story... if enough people come together on this then we can make a difference. Not enough is known about this horrible disease - I lost my mum to a brain tumour a few months ago. The doctors just didn't spot the obvious signs until it was way too late - how many more times can this be allowed to happen?

I support the Samantha Dickson Brain Tumour Trust which is part of the Brain Tumour Consortium - if you haven't contacted them already then please give them a try. They have some great people working on the helpline and have been really supportive to me; even just for a chat when things were going badly and I needed to vent.

They are also looking for people to share their story and help spread the word - I've joined the campaign just hoping that something good can come from something painful....

http://braintumourtrust.co.uk/

You have enough on your plate at the moment; my thoughts are with you... all you can do is make the most of the time you have together and keep being a mum.

Maybe, sometime in the future when you need to make sense of everything, the trust can help.

Best wishes...

Thanky ou.... I have certainly taken an interest in all 'Brain Tumour' related issues, since my sons's "late" diagnosis.... Life is just a !!!! sometimes, but iv'e learnt that being angry is just a wasted emotion, (but it still hurts) when there's so many other ways of dealing with this !!!! outcome - just watch this space lol's.... Thank you & sending love your way... xx

Tiddlywinks

redwineguzzler wrote: »

Thanky ou.... I have certainly taken an interest in all 'Brain Tumour' related issues, since my sons's "late" diagnosis.... Life is just a !!!! sometimes, but iv'e learnt that being angry is just a wasted emotion, (but it still hurts) when there's so many other ways of dealing with this !!!! outcome - just watch this space lol's.... Thank you & sending love your way... xx

I wish I had your wisdom... I'm still really, REALLY angry - by the time they figured out what was wrong it was too late for my mum - I just can't let it go... The Brain Tumour Trust stuff is the way for me to do *something* positive to channel those feelings.

Very best wishes to you all in your journey. x

Poppy9

redwineguzzler wrote: »

Thanky ou.... I have certainly taken an interest in all 'Brain Tumour' related issues, since my sons's "late" diagnosis.... Life is just a !!!! sometimes, but iv'e learnt that being angry is just a wasted emotion, (but it still hurts) when there's so many other ways of dealing with this !!!! outcome - just watch this space lol's.... Thank you & sending love your way... xx

Tiddlywinks wrote: »

I wish I had your wisdom... I'm still really, REALLY angry - by the time they figured out what was wrong it was too late for my mum - I just can't let it go... The Brain Tumour Trust stuff is the way for me to do *something* positive to channel those feelings.

Very best wishes to you all in your journey. x

I was very angry at GP who despite seeing my sister numerous times in a few weeks dismissed her as being depressed. She had what we now know were classic symptoms including sickness only on waking, disorientation, lack of co-ordination, headache, lack of concentration, loss of balance. From the time she first displayed symtoms (that we noticed) to dying was just 7 weeks

bright_side

It's almost 5 years since I lost my sister, so I guess for me the anger has subsided. I will always be sad that she wasn't listened to or treated better, but anger is such a self destructing emotion and I know my sis wouldn't want that for me. My poor mum is stuck inbetween guilt and anger and it's not nice to witness. I prefer to focus on the years we had with her x

boo2410

Signed, thinking of you all.

redwineguzzler

Poppy9 wrote: »

I was very angry at GP who despite seeing my sister numerous times in a few weeks dismissed her as being depressed. She had what we now know were classic symptoms including sickness only on waking, disorientation, lack of co-ordination, headache, lack of concentration, loss of balance. From the time she first displayed symtoms (that we noticed) to dying was just 7 weeks

Poppy9,
That's awful, there needs to be so much more awareness around the whole 'Brain Tumour' issue. Professional's were so wary of my son not being in the 'right age group' for his BT, and even then, when people knew about him they couldn't associate him having a BT and it actually being the 'big C'...... incredible, but BT's just aren't out there along with other types of cancer,and yet t's one of the biggest killers..... So very mis-understood....

My thoughts are with you and your family. xxx